HI All, My young son had wonderful results from FT with his mother as his donor. Dr. Brandt was a big part of our success as he guided us via emails. Here is my two cents as to why this works for...
Hey All, Glad to hear the FT movement is alive and well. Just an update about my now 7 yo son. He is 13 months full remission following a scope and follow up home FT protocol. Jack had severe UC and...
Hey All, We are still alive and well. My son is now 7, and has been in complete remission for one year now. In fact, I remember last Halloween being 2 days after his transplant. He ran around the...
This is an alternative supplement: Traditional Ayurvedic herb that detoxes and rejuvenates the GI tract. Does anyone have experience with this...results?...
My vote is backwash.....UC. Also, have you ever considered an FT at this point? You may want to consider this (at home), since the abx would have altered your tut flora. The unknown of course, is,...
There's always triple abx therapy...ask about that. If that would stop things, then I would attempt an FT. Regardless, you may run out of time, although if my memory is correct, you seemed to have...
Congrats and continued success....
The odds of clearing the first cdiff infection is good. However, every recurrence increases the odds of it becoming refractory. This is why GIs won't touch an FT until the 3rd relapse minimum. In my...
My son was hospitalized for 3 weeks needing blood transfusions, morphine, and heavy pred, vanco, flagyl, etc., for the cdiff. NOTHING worked. He battled recurring cdiff for a year and severe onset UC...
I hate that most people think surgery is the better option before even trying Remicade. "Remi" is considered a "miracle" drug for many refractory UCers. Either it will work for you or it won't...its...
Sorry to hear your having symptoms. I've always said, FT should be looked at as adjunctive therapy. I do think ongoing meds...hopefully less of them, will be necessary for a while. Maybe you dropped...
BeatUC, The amputation "fix", is of course, only if you have the right diagnosis and without complications. I'm simply quoting what other people have posted and what is printed. I never said that...
Lets assume the most plausible explanation of IBD is a genetic predisposition, a bacterial trigger, and an autoimmune response. Now, here we sit with this condition "without" a cure. Regardless,...
One major indicator of cdiff is a barnyard smell. It has a VERY distinct odor. Otherwise, symptoms are really similar to a bad UC flare....
For what its worth, we have never used saline....only distilled water. We had good results without it?...
Just offering advice from my own experience. We've lived through one of the worst cases of cdiff I've ever heard about and I've researched this very topic for a year since. My only point, is when you...
Anemia.....my son got this when he became anemic....
Rifaxamin is prescribed for UC, Cdiff, and other ailments I'm sure. It's just another abx that may or may not work for you. Children's Hospital made it really clear to us that often times treating a...
I just want to point out that even if FT doesn't "cure" this disease, it is most likely to help (given donor compatibility). For me, I would love a cure...but if we can get to a better place, and on...
DBwithUC, Seriously? Edbar has brought nothing but good insight and support to this forum. He is very careful to articulate his OPINIONS. You are WAY too confrontational and need to be less...
Kenz: You do need to realize, it may not be that easy to get rid of cdiff. It is an extremely resistant bacteria that can take on the meds and win. I wish it were as easy as you think. The reality...
Flagyl, vancomycin, rifaxamin, and fidaxamycin...are the drugs used for cdiff. S-boulardii (Florastor) is the recommended probiotic. And, yes FT is the most effective of all....
Don't bother with any more meds at this point. Schedule a fecal transplant with a GI via scope ASAP! It is almost 100% effective and you'll be back in stride within a day or two. My son relapsed 8...
Hey Bananagirl, I'm so glad your feeling better...you deserve it. Regarding the FT.....A couple things to point out: 1) Never had the donor tested, 2) Donor compatibility. I think the donor is the...
Bananagirl, What is going on with you? How are you doing? Are the FTs starting to work yet?...
I wouldn't change anything with the remi just yet. 4 doses is not enough to judge its efficacy. Also, you do have other options: LDN, FT, etc. Since you've now started imuran, wait and see how things...
The increased use of abx as treatment for UC supports the infection theory. 70% of our gut flora is unknown. Thus, odds are in favor of an infection cause. GI's commonly prescribe Flagyl, vancomycin,...
Glad to hear your hanging in there Bananagirl. I really do believe it is a battle going on in your gut. After much research and many conversations with other FTers, I believe this battle will take...
OMG, did you have your donor tested? Its really tough to say, I've only heard of one other person whose symptoms got worse during FT??? Donor compatibility is a huge component to this and one that is...
Congrats on the anniversary and feeling well. My 7 year old has been on Remi for a year and a half now, without any issues....
herbgarden, Check for Cdiff....the barnyard smell is a good indicator. Cdiff is a bacterial infection that will wreak havoc on your gut flora and produce UC flare symptoms....
Edbar is spot on. Tankor, with all do respect....Bananagirl does not want to start over or do anything different, now that she has started the FT protocol. Bananagirl, it sounds to me that things are...
Thats the irony of Remicade....it is also used to treat arthritis (RA), but can produce joint pain as a side effect???...
We too had the serology 7 test and not only was it inconclusive, my GI did not put much weight into it. We pushed for the test hoping for some answers, but to no avail. In this case, the GI was right....
Dr. Brandt can't do FT for UC yet. He is tied up with red tape at the moment. Unfortunately, we are all stuck for a while doing the DIY version, unless you have cdiff or your able to cut through some...
Great news, let the battle begin. To answer your question....I would stop all other probiotics during your FTs. If you still have D, I think you could keep S. Boulardii going though. Once the D...
Insofla, We haven't looked into LDN yet for Jack. He is in remission, so we have decided to wait at least a year before thinking about the Remi wean. At that point, LDN might be used in our protocol...
I remember hearing from some FTers, that they felt flu like symptoms following their initial FT? Also, D can come with abx, so I would not worry about the watery increase yet. Obviously drink plenty...
According to Google statistics, we have a 1 in 100 chance of dying in a car accident in our lifetime. The amount you drive of course affects the numbers, but this is average. So, to have a 1 in a...
Hi Lodi, I think your spot on with all your assumptions. The sick gut flora is out of balance (dysbiosis) and overrun with bad bacteria. The bad guys wreak havoc on your mucosal lining, causing...
ER to check labs, stool test. Maybe Flagyl, ask about it. Certain ABX can shut down a flare. I would also use S. Boulardii every time there is D. I think a flare is a result of sick gut flora, so...
Some people on HW have done so effectively....please chime in, people....
Keep in mind, ongoing flares also increases your odds for colon cancer. So, regardless, you need to get the UC symptoms under control. As for Remi and 6mp, I want to say the odds you refer to is when...
Not sure if 4 infusions is enough to change protocol yet. I do however, agree with your concerns about combining the two mentioned drugs....
Interesting post and great question. People have posted on here before, that you can take them together. In fact there are some HW folks that do. I'm hoping they chime in with there results....
Just to clarify, you should take the S. Boulardii during the Flagyl protocol....
I guess I was referring to mucosa as the same as muscous lining? In any event, I think were on the same page. So, if this mucous barrier is broken down, it can't do its job, and thus, sickness...
If LDN revs up the immune system, does this then contradict immunesuppresant thearapy? I remember reading somewhere that "autoimmune" could mean an overactive or underactive immune system that is...
Old Mike, If the mucosa is thinnest in the distal region of the colon, and we assume gut flora is disrupted in UC individuals, then "leaky gut" ensues causing inflammation at that point. With a...
Gut flora....We should start a thread asking if ANYONE does NOT suspect their flora to be at the root of their UC problem. ANYONE? For the record, an inbalance in gut flora that leads to an...