Hi Derby, Maybe try switching to wine? I'm on the SCD and wine is allowed because it's not grains. There might be residuals/yeasts left in the beer that's getting to you. Spirits are allowed as well....
My flare wasn't too bad this past week. Last year at this time, it was really bad, the worst it had been in many, many years. But that's not what I'm talking about here. Also, who is "this person"...
Ok, so, it's been a half a year since I posted. In short - this didn't "cure" me. Not that I expected 100% cure, either. Could be that I didn't do antibiotics to start, could have been because my mom...
Possibly one of the most judgmental & negative threads I've read in a long time. Folks, if you don't like it or him, just don't say anything. Maybe it helps someone, or maybe they like the drink. Not...
Yes, thanks for the update!...
You're welcome Serenity. Just a quick update: I do seem to be doing better, although I haven't eaten much the past couple of days. But my gut feels "slower" - you all know what I'm talking about, I'm...
Yesterday went much the same as the day before - Wake, breakfast, prep my mom's donation, meditate, back exercises (which help move the stuff in my gut out), infuse ~1/4 bottle, hold ~40 minutes, go...
Thanks, twiggs! Ok, quick update on yesterday. I took an Imodium around 11am after the prep (my mom & I have been doing all the prep since day 4. Or was it day 3?) I was waiting around, trying to...
Thanks, Probiotic. It's nice to know that I'm not the only one. :) Mark has suggested cleansing enemas, but that just didn't go well the other day. I tried last night and it didn't hold either time....
Something else I wanted to do that I forgot about was to say what I was expecting on this trip, and what I was hoping would happen. In short, I wasn't expecting anything. I'm not very good at telling...
Hi Pluot - thanks for the suggestion! I don't have access to those, but I can see how they might help! Interestingly, I've been very anti-any-drugs for help with my UC, but when Mark described how...
Oh, and to get back to DB's question, this afternoon's was probably 40ml or so? Maybe? The one I just tried, maybe 30. I don't have a measurement in front of me to guess. I don't know offhand how...
Really good question, DB. I think it's probably varied. The bottles we have been filling are probably close to the 150ml size, but I've never taken a full one of those. I'm just not retaining my...
Infused at 12 midnight. Fell asleep & held until 1:30 when I woke to urinate....
So, I tried another infusion around 3-3:30 I think. The acupuncture lady showed up just as I was dozing off a bit and I felt like I had to pee so I got up and ended up losing that infusion as well....
I tried infusing later last night, lost most of it fairly quickly, and then infused with the small amount that was left. I retained that for a while, about 3 hours. This morning we got up, mom...
So, my mom learned how to process the sample today. It is laborious, to be sure. I held my infusion for about 2 hours. Mark says there's really no research that points to exactly how long to retain,...
Lots of diarrhea last night & this morning, or *extremely* loose stools. Not necessarily a ton of urgency - well, there was one time during the night. I'm going to dial back the fiber today. I...
You're welcome, Serenity Now & sas. :) Today was challenging. I wasn't able to hold the cleansing enema for very long - it was my first time doing something like that. I didn't make a horrible mess,...
Another thing - Mark said that the donated sample can hang out for about 4-6 hours before needing to process the infusion. The sooner the better, obviously, but it can wait. We just spoke (Mark & I)...
Thanks, sas! Yesterday started off kind of dodgy - I ate breakfast (eggs, spinach, broccoli) as per the protocol, but my mom was ready to "donate" and we didn't have any collection materials! I...
In Portland, OR for my FMT retreat with Mark Davis. Checked into the house - Mark's assistant came to pick my mom & I up from the hotel this morning. Both her and Mark are *extremely* nice and very...
I've had four colonoscopies over probably 10 years. I can't imagine four in one year. That seems excessive to me, especially just for bleeing. I bleed all the time. What are they looking for?...
It's funny reading this, because I always thought *I* had mild UC because I don't have a lot of the pain or "days in bed" days that others talk about. I usually have a couple of decent flares per...
Oh, and I also wanted to say that if I was the anthropomorphic type, I'd say that my colonic microbiota was trying to sabotage my trip - the bad bugs are on the chopping block. :) But...that seems...
5/21 - 10 5/22 - 9 5/23 - 6 5/24 - 8 so far today Mostly has been pretty soft. Not much urgency. Some blood, some mucus. Well...tonight's the night I fly out to Portland. I'm excited, but I'm also...
Hi Edbar - Yes, that's the plan for now. I'm thinking a regular follow up on Saturdays with my mom, but we get back on the 1st, I'll probably skip the 2nd and follow up on the 9th. Mark said he...
5/16 - 5 5/17 - 8 5/18 - 7 5/19 - 6 5/20 - 5 I think there have been more, on some of these days, but I've not kept great track. So...I leave Thursday with my mom to go. I guess some of my in-laws...
He does suggest low fiber for 2 weeks before the retreat. It makes a certain amount of sense, but as I mentioned, I'm finding out/realizing how much of my diet is fiber. :)...
Here are my BM frequency numbers since the 8th: 5/9 - 4 (The day I started my low-fiber diet for the FMT on the 25th/26th) 5/10 - 12 5/11 - 10 5/12 - 6 5/13 - 5 5/14 - 9 5/15 - 8 It's been pretty...
Ok, here's what I have for my BM counts this month so far: 5/3 - 6 5/4 - 10 5/5 - 6 5/6 - 9 5/7 - 11 5/8 - 7 Most of them have been solid, and I've been good overall, no urgency or near-misses. Well,...
So, I counted 6 BMs on Tuesday and 8 yesterday. I did go to see my GI doc yesterday as well. He said he's cautiously optimistic about "The Procedure". :) He doesn't see any reason for concern about...
I've been to Portland briefly once before, Sheila, and I agree - it's a beautiful city! I hope my mom & I will have a chance to explore it a bit while we're there. :)...
@stereofi - Thanks! It's been tough at times, but I think my health, especially long-term, is easily better for it. To the point where if I were cured by the FMT (I don't have any such illusions or...
Hi Joanna - We're staying at the retreat house (don't know where that is yet) but not a hotel. I'm doing the full retreat, many thanks to my parents. Mark and I had a conversation back when the...
So, in the run-up to my retreat, I'm going to post what I'm eating, what the "prep" calls for, how many BMs I'm having per day, and what those are like. (I put "prep" in quotes because when I think...
Good point on the empirical observations, DBwithUC. :) In other words...things are complicated! :D...
One of the interesting things for me with UC (and I think Crohn's, too) is the higher rate of disease in first-world countries and northern latitudes. I don't pretend to have a theory about it -...
Thanks Sheila & InSoFla. I'm hoping for full remission, too. My gut has actually been really good as of late, after I came out of my yearly early March flare. Maybe it's one of those "car mechanic"...
Oh, and another thing - I've written a lot about my journey on SCD on another site. If you would like to read those posts, let me know here and I'll get that info to you. I'm trying to keep these...
@trojen - I've asked him how the retreats have gone - I think he's done one early but also one in March & one in April that's going on right now. He said that the people that have been through have...
Hi Joanna! You were one of the others I was following here - which has made me very thankful also that I have a supportive family that understands the science & is willing to help as donors and...
@killcolitis - I have been lurking here for the last couple of months reading up on curl3d and pupluv & a few others. It's been encouraging, and informative considering that I feel like I'll probably...
@seasons21 - It is with Mark Davis. I asked him if I could name him & the clinic and he said that I could, but I held off because I didn't want it to seem like I'm shilling for him or the clinic....
I hope this is ok to post, hopefully a moderator will let me know if it's not. I've had ulcerative colitis for almost 20 years - well, I was diagnosed in 1994, anyway. The first 10 years were kind of...
I agree with princesa on the nut butters & healthy fats. It took me a little while to realize that SCD doesn't say anything about avoiding fats. If you can find legal mayo (or make your own - if you...
Hi Rakshas, I took that for my recent scope on March 23rd. After a while of not much happening, it all came rushing forth. I actually did a split dose, first at night then in the morning. Morning...