Hello - It has been a very long time since I have posted on this forum but I decided a few months ago I should see if there is anyone I can help. This group helped me tremendously several years ago!...
I've been on Imuran for 2 years now without any side effects. I have never heard of this being a side effect. Are you on the vancomycin for C-diff? The sores you describe could be a staph infection...
garylouisville said... You've also got to keep in mind that there is like a 20% chance UC'rs will come down with colon cancer at some point. If you read medical studies you will see a big variance in...
Hi - I have been on Imuran for almost 2 years now. I am at 150mg. I have not experienced any side effects. I was in a 4 year flare and like others tried everything else and nothing worked. I actually...
My doctor said it could be used daily for a few weeks straight. I have used it for two weeks or so in the past. For me it helped get me through when I was almost out of a flare but not completely....
I am on 150mg of Imuran and have been for almost 2 yrs. I don't experience any side effects. Since you are still bleeding and having frequent BM's it is pretty clear the Imuran is not working for you...
I am on Imuran which is basically the same medication. I have been on it since October 2010 and it has been a lifesaver for me. It is the only thing that put me in remission and has kept me there. I...
I am on Imuran and have not exoereinced side efects. I do wonder though how your doctor knows that the nausea and diarrhea were from Imuran and not from UC? Were you symptom free before starting the...
I second giving Imuran a try. It has worked for me when nothing else did. How long have you been with this GI? I would strongly suggest that you get a second opinion or change doctors. With the...
When I was starting to heal in the rectum the enemas actually began to irritate the fragile lining. I actually stopped using them and saw a huge improvement. I only stopped using them once the Imuran...
For me remission is no symptoms at all. For me it is like Pre-UC days when in remission. I would consider seeing blood and mucus and having some bloating as a minor flare. It seems like you are...
I am sorry you were treated rudley. That is never fun but seems worse when we don't feel well. Did you make an appointment or were you just a walk-in? I ask because if you made an appointment and...
I haven't noticed that the eye drops improve my UC but I have noticed that generally if my eye flares up my UC does too....
Yes, I was in a flare when I started Imuran. I stayed on Apriso (which honestly wasn't doing much for me) until the Imuran kicked in. I had been in some state of a flare for about 4 years and had...
Hi there - My UC sounds similar to yours. The urgency is caused by the inflammation in the rectal area. Since you have lower inflammation you have the urgency so it actually does make since. I use...
Yes, you can flare withut diarhhea. You can even have constipation with a flare. Blood and 4 BM's a day could be a flare so you should have it checked out. Blood is never normal. Anytime symptoms are...
Makiaa - no my GI slowly moved me up to 150. I started at 50 for 2 weeks then 75 for 2 weeks then 150. I had blood tests weekly during that progression. Yes, zero side effects. Imuran is the only...
Are you lactose intolerant? I never have issues with ice cream....
Hi - Apriso gave me some of those symptoms after long term use of oral 5ASA's. When I stopped using it and the Imuran had kicked in I felt way better. I did not realize it was the Apriso until I...
I never have problems with it unless I am taking a 5ASA drung at the same time. My doctor said if it doesn't bother me it is okay....
Sounds like the begining of a flare to me. My scopes haver only shown inflamation 6 inches up in the rectum area and I often had thin stools. I was told it was due to the digestive system being out...
Yes, that sounds very similar to my experience when I started Imuran....
I think you have gotten some good advice. When you come in late do you also stay later in the afternoon/evening to "make up" for lost time? I think that helps with both the boss and peers if you are...
I work in the medical field and honestly there is not much of a difference between an MD and DO anymore. Many DO's practice just like MD's. Their education is in fact VERY similar and they both go...
Mikaa - I am on Imuran alone, no other meds and it is keeping me in remission so far. Nothing else worked for me. I have not had any side-effects and am glad to be symptom free....
Yes, the emptying issue can be normal with UP. It does not happend to everyone but it can happen. I would not assume that the blood is just from hemmie and/or fissures. UP alone can cause bleeding -...
Hemmies also don't usually give you mucus so I would say you are seeing flare symptoms. Since you just had a baby you really don't want to let a flare get out of control. It is really stressful to...
I am on 150mg. I started at 50mgs and worked up slowly to 150. I also alternate taking 100mg one day and 150mg the next. We are trying to see if I can go down to 100mg long term. I am on Imuran so I...
It is so strange because I have never been one to catch GI type virus infections. I can only think of one time that I have had a stomach bug since I was diagnosed in 2006. I was flaring at the time...
I was not on pred when I started Imuran but I know many people are. Pred never got me out of a flare so my GI saw no reason for me to be on it. I was on Apriso and Rowasa though....
Unless you are in a terrible flare you do not have to have a C-Section. I delivered my son vaginally and was in a small flare. There is absolutely no risk of infecting the baby just because you...
So sorry - I know you suspect that you either have a cold or allergies too. When I have a cold my UC tends to act up. Being sick or having allergies on top of UC and pred can really drain your...
I think that it is a positive sign that he only saw some mild inflammation. It does not sound like he saw ulcers and that is good too. When I was diagnosed from my first scope the doctor told me he...
Yes, I get that when I am flaring or when I am begining to flare. Sometimes it is my first sign that a flare is coming.. My doctor said it is caused by spasms of the colon due to it being inflammed -...
That does not seem like an average adverse reaction to Imuran - it sounds more like a cold. You carry a cold virus for several days before you get symptoms so you most likely were already infected...
In my prayers! I hate it when my kids get sick and I feel helpless. I also hope it is just something short term. Like notsosiclygirl - my symptoms of proctitis did not just start up over night. It...
I totally agree with you about using as few drugs as possible. I would love love love to not have to take Imuran but it is the only thing that works and I really hate pred anyway. I also agree that...
Hi - I am sorry you are dealing with this. I am one of the few on this site that does not have great success with rectal meds. Rowasa SOMETIMES helped me a little and cort foam also helped sometimes...
I have gotten bad cramps from UC so it could be from that. I hate it when doctors blame every cramp on "female problems". If you don't usually have these cramps then it is likely not from your cycle....
soystud: The difference in a flare and UC is that we will always have UC unless a cure is found but when in remission (not flaring) we will have no symptoms. I am in remission now and am 100% symptom...
MNbeachgal: Transplant patients usually take twice what UC patients take. 125mg is not a high dose. Transplant patients often take at least 200mg and up to 300mg....
Hi - I know what study you are referring to. It was not 10 out of 12 people taking Imuran that were studied. It was 12 people who were taking Imuran and ALSO had acquired a T-cell cancer. Of the 12...
Usually when I had those symptoms I was in a flare. For years when my symptoms were mild I would question whether it was a flare or whether it was my UC, I learned over time 99% of the time it was...
I take them all in the evening....
It sounds like your doctor is working with you to get this back under control which is good. Were you in complete remission with the Lialda and aza? I ask only because you stated that mornings were...
Hi Seasons - I know you have been very stressed and worried (rightfully so) about your disease and about the medications. Also flaring for long periods causes stress (mental and physical). High...
I know someone with Crohn's. She is generally healthy and does not have long flares anymore but she did when she was first diagnosed. Since you sort of supervise this person I would be very careful...
Hi - My GI had me come in every two weeks for labs at the begining (not sure how many times I did that - maybe 3) then it moved to once a month, then to every three months. After I was on it for 18...
Hi Old Mike - no I don't use vegetable oil at all. I use olive oil but not often. I may eat a handful of nuts once every two weeks or so. I agree 100% that the way food is manufactured today needs to...
I do not eat red meat or pork. I eat vegetarian most days but eat fish and chicken (organic) occasionally and I still developed this disease. High meat diets may trigger it for some people but it was...