I have an Amazon Prime membership so I can watch it for free. Thanks for the great recommendation - I look forward to watching it! I read a similar book not to long ago - The Happiness Project....
Wow. Makes me thankful that I have three toilets to choose from in my home. I can't imagine having to share one outdoors with the neighbors. Interesting post!...
I think you need to remember and be greatful for the areas in life where you are able to contribute. Focus on the positive, and the tiny positive things count! You might keep a gratitude journal and...
It sounds to me like you need to follow up with your dr. With the various medications you are taking, you should not be in so much pain. I don't understand the post-surgical swelling or the...
I've been on it for a couple of months now. I noticed some nauseau in the beginning and thought I was going to be in real trouble, but the nauseau has subsided over time. I use zofran on ocassion...
I just had my first Remicade dose this week as well. It made me incredibly sleepy - almost comatose I just could not keep my eyes open. I napped off and on the rest of the day. I'm still in the...
I don't have any advice just to say I feel your pain, dear. I am on day 12 in the hospital and still not improved to where I want to be. Like you, I just started Remicade and am on 6mp. I've heard...
Hello there dear, I think we can all relate. I just get mad, too.... It's not fair that we are given this darn disease that controls so much of our daily lives. It can affect all of our decision...
Hello everyone from the hospital! I was admitted on Thursday 8/8 for uncontrolllable diarrhea, which I've had for 18 months now but suddenly it worsened. I was going 12+ times a day and not able to...
I'm glad to see your story. I'm in the hospital suffering right now, and for those of us 'in the trenches' it's nice to see that there is a light at the end of the tunnel, even if it does mean...
Well, I don't know anything about your MRI results. I would be confused too! I do want to mention my headaches - google occipital neuralgia. I get these headaches that last for weeks or months. The...
I'm not aware of any ST disability company without a pre-existing condition clause. I just wanted to say that from my experience, it's very common that you need to sign up right away or you won't get...
Oh 40&crashing, you almost made me spit my drink out! Too funny....
I am on week five of 6mp. My GI started me at 150mg right away and that's what I've stayed on. I'll have my second blood test later today. Feeling better on this med - less urgency, less frequency....
Sounds awful, but I'm thankful you followed drs. orders and recovered so nicely!...
Yes, I would gladly take the twenty pounds instead of arthritis and other joint issues, definitely! I hope that is not in my future. To be honest, all my life I've been thin. I don't truly mind...
Moody? PREDNISONE DOES NOT MAKE ME MOODY! Ok, I can add that to this list of side effecs, LOL. Joanna I can't believe you gained that much weight, and even more I can't believe your mom had to cut...
Thank you prednisone for these twenty extra pounds. Thanks to you, I have had to buy all new summer clothes as hardly a thing in my closet fits me! I have had to buy new shirts, shorts, capris,...
I was on it for several months. A combination of rifaximin and other meds helped me get better after the first time I was hospitalized - at that point I couldn't eat, and the rifaximin and entocort...
Catriara, I'm not familair with the SUV, but it sounds awful. My husband had severe hives for 6 weeks and the prednisone, cimetidine and another antihistamine eventually helped him get better, but it...
Prayers coming your way that it's not a fistula! I hope your situation resolves quickly. My fingers are crossed.......
Welcome! I agree with you, it is nice to have a place where you belong, feel comfortable and know that others understand what you're going through. I hope your current flare resolves quickly!...
Jen, so sorry to hear that you're in a flare. It's frustrating. I'm on pred again and can join your 14 pound club, you're not alone! Hopefully the pred will get things quickly under control for you....
I have Interstitial Cystitis - a bladder disease which causes pinpoint bleeding and ulcerations inside the bladder. It is painful, irritated by various foods and substances (MSG, nitrates, minerals,...
I woke up during a colonoscopy once too. Yikes! Not something you want to re-live. In the 3 or 4 colonoscopies I've had since then, I haven't had any problems. Good luck with your appointment - maybe...
Oh wow, you've really been through the wringer. I'm so sorry to hear of all you've gone through. I'm about to start Imuran myself, and am nervous about the immune supressant effects it has. However...
DD = darn disease...
I've been b-12 deficient for years - before my UC diagnosis. I had to have loading doses of injections daily for one week, then weekly for 4 weeks, now I just do monthly but a few times over the past...
Hello, I used Cortifoam last night for the first time. I was able to hold it in and fall asleep. Woke at 3 am with severe stomach cramping and pain. Had a few loose movements (loose is normal for me)...
I've been really low on potassium in the past - it can make your muscles cramp - and I read once that pred can make potassium absorption even more difficult. It might be something to look into. I...
I am about to start Imuran - so I appreciate hearing these stories. I am doing the initial bloodwork for Imuran today before I can get my prescription. I am on pred now - although my dr. has plans...
I picture the poop fairy with a toilet brush for a wand. Lord knows we all need one handy at all times!...
NJmom - Prednisone seriously irritates my bladder as well. Firecracker - I also have pelvic floor dysfunction, and did have pelvic floor therapy. It helped me quite a bit. Stef - hopefully you get...
I just want to say you're not alone. I've been severely ill now for 18 months. My whole life has turned upside down. I wouldn't wish this darn disease on anyone, yet it does help put life in...
Prednisone gives me night sweats, too. I just started on 40mg pred last Thursday and woke up drenched in sweat last night. Crohns itself can also cause night sweats. I hope you get better - after...
Fingers are crossed that your good luck streak continues!...
I bought the extremely large pack of costco tp as well - I don't like it. Not thick enough for my needs! However, we do use it at our camper, where it's good for the septic system....
Look at my user name - I'm part of the accident club as well. Two today so far, 1 yesterday, 3 the day before. I'm starting some new meds, though, and hopefully that will help....
I happen to be blessed with IBD and a bladder disease called interstitial cystitis (IC). IC's common symptoms are bladder urgency, frequency and pain. If you have urgency or pain, along with your...
I don't have any advice, just wanted to say that I'm so sorry. I can understand your frustration - I would want to cry as well. Hang in there, hopefully your GI will have some good advice....
Going on 18 months here, sorry to say. But I was just officially diagnosed and have only been on medication for a few months....
I also can't believe all this clay talk. The original poster is asking for help with her Crohns. Gaby - I'm a 36 year old woman and I feel the same way many days. My back hurts, my gut hurts, I shake...
Well, talk to you GI and see what he says. Most of the times, they should be able to give you good advice on the extraintestinal manifestations, including joint pain. I'm sorry you're feeling so...
I'm sorry you're having such a tough time. What did you go to school for? What activities were you involved in, and what are your interests? Using Craigslist is a great idea - advertise yourself and...
Have the drs. checked your vitamin B-12 levels? I know when mine get low, and when I'm close to being due for a shot (I get monthly injections) that I notice my tongue getting inflmaed, red,...
Hello Journey - I'm glad you were able to get some help. How wonderful that your employer was able to accomodate your request. I'm sure the different time will help....
You all have given me such wonderful advice, and I sincerely thank you. I've had my suspicion confirmed, that I'm not getting the best care. Joma - I agree with the anger. How can any caring human...
Hello, I was finally diagnosed wiht UC a few months ago after much testing and over a year of nothing but liquid diarrhea. I started official treatment with 1 month of prednisone, then nothing for 2...
I gained 15 pounds so far this year. My symptoms are still raging, although very slightly less D than before. I can't understand how someone with near constant D gains weight. I feel your pain! I...