Nope, but I’ve heard a lot about it from Ben Greenfield, who really advocates for the peptides on his podcasts and website....
Just wondering if anyone has tried out Viome, Gutbio or Daytwo? Their websites make lots of claims, but I was just wondering if it had much utility for us UC folks... Thanks....
I lived in Amsterdam for about 5 years and in my opinion there are very good facilities for IBD sufferers there. There is a big community of people with IBD. I always felt comfortable with the...
Hi Has anyone ever tried this liquid 6mp? It's like doing a chemistry experiment every time you take it because you have to measure out the ml in a dropper/pipette. Apparently this allows for the...
Sent in my 23 and me sample back in April, and received the ancestry results only afterwards on their website. They do have a great website with lots of explanations but it would be better from my...
Hi all, I searched this question on the site and couldn't find anyone who had this problem. The main problem for most on this drug is low levels of thioguanine nucleotide (6-TGN). I have been on 6-mp...
I just developed a painful wart on my thumb. It really gets in the way with grasping things and playing golf. For me, it's probably a consequence of the 6mp....
I had to go to the A&E (ER) in London recently. I was in a lot of pain, bleeding, vomiting etc. Thought I had pancreatitis (which I didn't). Anyway I made the mistake of having my wife call the NHS...
My parents are Indian from Bombay, and I have lived in mostly northern places like Buffalo NY, Anchorage AK, Amsterdam NL and now in London, UK. There are lots of first/second generation south asians...
I started on the 6mp about 9 weeks ago when I was suffering from bad flareup symptoms. I was even hospitalised one month afterwards with a terrible re-occurrence of symptoms (I had a massive CRP of...
In my many UC years, I have had 6 gastroenterologists in 4 different countries, and none have advised me not to take imodium (loperamide). Although some have mentioned limits such as 4 or 6 tablets...
For what it's worth I have been taking up to 4 tablets of imodium (loperamide) daily for the past 20 years to manage diarrhea - with the approval of my doctor. As far as I am concerned it's a...
If you are interested in the immunology of the gut, this is pretty good: http://www.nature.com/ni/multimedia/mucosal/index.html...
I have UC and get skin symptoms as well. Usually at the first signs of an exacerbation of symptoms I will get mild erythema nodosum and pyoderma gangrenosum on my legs, and a drying and cracking of...
I have been on and off of Prednisone for nearly 20 years, and for me it works a little less each time. It also depends on when I last took prednisone. If the time between Pred cycles is less than 2...
I started 6MP 2 days ago. I am also steroid dependent and needed to try some other med treatment. Obviously it's too early to notice any effects yet. Good luck to all on immunosuppressants....
If you haven't seen this interview, I thought some might enjoy a big tough English rugby player talk about suffering from colitis on BBC's hardtalk television programme. Here's the link:...
For me: Risk factors not present: never smoked cigs or anything else, parents didn't smoke, never worked in smoky place, no family IBD history, not Jewish, no sicknesses prior to UC diagnosis, no...
We'll all be advised to eat only vegetables and whole grains soon....
I am not aware of any research on enteric-coated fish oil and UC. Here's an analysis of various studies of omega-3s and IBD, that suggests that enteric-coated pills warrant further studies....
Just another update - this disease can be vicious. As a recap, I am trying to recover from a second surgery on my Achilles tendon and at the same time trying to get over a mild UC flare. I finally...
I switched to Asacol HD from standard Asacol. I hardly noticed a difference. The minor difference that I did notice was that I saw less of the pill coatings in the toilet, ie. going through me. That...
Here's some data from a recent 2011 CCFA webinar. The doctor was not surprised by the relapse rates, but was very interested in eventually trying to identify the 20% of people who will not relapse...
Many thanks for being active on this forum. I have a question. Generally, doctors or probiotic manufacturers will state that you need to increase consumption of probiotics during active IBD. For...
The omega-3 polyunsaturated fatty acids (PUFA) in fish oils produces anti-inflammatory effects by modulating inflammatory pathways in animals and other non-human studies. The paradox is that such...
Yes you are right - it is 4 packets of the DS strength or 8 packets of the standard strength (3.6 trillion bacteria per day) that are used in the studies....
Hi all, I have had moderate pancolitis for 20 years. In general, my disease has remained pretty consistent over the years with flares and remission periods, and luckily no hospitalizations. What...
Totally agree. I am now trying 4 packets of VSL#3 per day (2 in the morning and 2 at night) which I believe was the amount tested in the clinical studies, and will see after a couple of weeks if the...
Just a note about the heparin I am taking - Lovenox 1 syringe daily 4000 IU: Although it may help certain people with their UC, it doesn't seem to be helping me as my UC is still causing me problems....
Go to the international VSL#3 website for non-North American orders. http://www.vsl3.com/order-international.asp Age 42 (male) UC since 1992 Asacol 2 800 mg x 3 1 VSL#3, omega 3, imodium (as...
Hi all, Just wanted to give an update on my orthopedic surgeries and UC. Last week I had my second surgery on my Achilles tendon. My UC had been fine before the surgery, and I had been successful in...
Hi all, Since I see a few questions about tendon problems on the site, I thought I would share my story. In April 2011 I was in remission (ie no antibiotics or pred at that time) and started to play...