I too experience hair loss on Prednisone. I have been on Pred. for almost 8 months straight and I am so frusterated with my hair being everywhere. I have long hair and it seems like it has taken over...
Herbgarden, I am 25 years old. I was first diagnosed with AIH when I was 13, but then it was changed to PSC when I was 14. AIH and PSC are similar and can overlap. I have a book that states this...
Mrs. Traywick, I am so sorry to read of all of you and your husbands hardships the past years. I have never read any of your posts, I myself have just found this message board, but your story pulls...
Thanks, I will definetely be checking that out....
Hello Everyone, I was wondering if any of you ever experienced "prednisone mouth". I have been on Pred. anywhere from 5-40mgs for the past 8 months. I have noticed when my dose is higher I get this...
I am currently on 20 mg. and have been in between 5-40 mg for 8 months. My hair started falling out about 3 weeks after I first started and then when I decreased to 5-10 mg is stopped. It is falling...
Hey guys-- First I want to clear up some confusion the medication I took that was my brothers's was the exact same medication that I was taking. I appreciate everyone informing me on the problems...
I am on 150 mg. daily with 5 years remission. I think it depends on your weight, how severe your UC is, and of course how you react to it, and how much you metabloize. What was your white count when...
You should definetely get so answers from your doctor about your UC, where it is located, how severe it is, and dealing with everything. I am 25 and was diagnosed when I was 14; so it was a big deal...
I too have noticed that some of the side effects can take awhile to wear off. I think coming off of Prednisone is hard on your body anyway. I came down to 5 mg. after 6 months of 40 mg. and tapering...
I have been on birth control pills since I started my period and have been suppressing it for the past 8 years, like Sparkleplenty, by not taking the sugar pill and starting a new pack. I have been...
I have been on Prednisone for the past 8 months and I too have noticed that I have blurred vision along with all the other side effects you mentioned. Sometimes it is like I see spots for a split...
I have had UC for 11 years, been in remission almost 5, and was diagnosed when I was 14. I too could not tolerate dairy and did not eat it and many of the other foods you have mentioned for a long,...
I have been on Imuran for 11 years now. I don't think it has done anything to weaken my immune system. I already had low white counts because of my liver disease; I usually run in the 1.0 area, and...
Susie, Snowbunny, and Kate, Thanks for your comments they were really helpful. I am clueless when it comes to rules about pain medication and all the guidelines, so I am really glad I posted on here...
Thanks for all the comments. I am aware of the legal aspects of using someone elses prescriptions, on anything. I was not sure if I should have said all that in my post, but it was the truth and I...
I usually start seeing side effects within the first week of taking Prednisone. My side effects are moon face, not being able to sleep, my face gets red (not acne, just red), I am emotional- one...
Dany, I will get your my email address this weekend. My email is full and I need to go through and delete all the junk emails that I get. I don't want to miss anything from your friend because my...
Snowbunny, and Cogito, Thanks for the replies. When I said I had never taken any pain medication for all my other medical problems, I meant up until now, when my wound and skin disease happened. For...
Hi everyone, I am in need of suggestions about a new pain medication. I was diagnosed with Pyoderma Gangrenousm, which is a autoimmune skin disease, in October. Basically it is an open wound now that...
Quincy, I am currently on Imuran, Propranolol, Sprirolactone, Nexium, Furosimide,Allegra, Ambien and since October have been treating Pyoderma Gangrenousum with Prednisone, Gabapentin, and Imuran. I...
Dany, Thanks that is the info. That is what I wanted to hear. Now if only I my doctor would call back and let me know for sure about the dosing and get me started on it. The sooner, the better....
James, I would definetely other medications along with trying to see what type of diet or foods work for you. I have been on Imuran for 11 years to control my UC. The first 4 years that I was...
I was diagnosed with UC 11 years ago and have been in remission for about 5 years now. I still take Imuran daily to stay this way, but I have been lucky to not have any major flares that required...
David and Connie, thanks for the info. I had looked up CYCLOSPORIN before I posted so I saw the million and one side effects, but wasn't sure which ones really affected anyone. I've been on Imuran...
Hello Everyone, Does anyone here have any experience with this medication? I have been treating Pyoderma (an autoimmune skin disease) with Prednisone and Imuran for the past 8 months now. I still...
Astro, I treat my UC with Imuran and Prednisone also. Prednisone only in a flare, but I have been in remission for a couple of years now. I have been on Prednisone for 7 months straight--I tired...
quincy said... Girly Girl...there's absolutely no reason for invasive exploratory for diagnosis before an MRCP unless a patient is already in obvious distress of probable blockage. ERCP can cause...
Fact ---Stress definitely makes UC worse....
YES!!!! I have been on Prednisone for 8 months now and have been having teeth that are breaking. I have been on Prednisone off and on for the past 12 years and have had terrible tooth decay. When I...
I have had PSC since 1999. I actually was diagnosed with that, and then UC. You cannot tell if someone has PSC just by looking at their bloodwork. Have you found out what you are having done? I think...
I think yogurt is good as long as you can tolerate it. I used to not be able to have dairy products, but since I have been in remission I eat yogurt at least once a week. It just depends on what you...
I have been on Imuran for 11 years nonstop. I have had the side effects you noticed, but I never thought it was the Imuran. I take Nexium which helps the symtoms you mentioned. I also take Zofran for...
I have experienced a lot of anxiety with my UC. Whenever I was going anywhere I would have serious anxiety. I especially experienced anxiety riding in the car, going places I had never been, even...
I was diagnosed with Primary Sclerosing Cholangitis (PSC) at age 13 in 1999. I then was diagnosed with UC in late 2000. Then this October I was diagnosed with Pyoderma Gangrenosum. The PG is common...
I have taken birth control pills for the past 8 years with no problems. I take the first 21 days, so I do not get my period, because of bleeding issues. I have not encountered any cons other than...
Hi everyone, I am newer to this site. I have been looking for any information I can find about Pyoderma Gangrenosum (PG). It can happen to about half of all the people who have an IBD. I have had UC...
No, but I am going to post over there also! Thanks Sherry....
Hi Jon W., Whenever I push my boyfriend away because of my medical problems; in reality I am just pushing him to see how much he can take. You don't want to be with someone who will just flake out...
Hi, I have had UC since I was 14, I am 25 now. When I was first diagnosed I went through almost every med. out there (except for Remicade) and the only thing that ever has worked for me is Pred. and...
LightenMeUp, I am sorry to hear about your depression. I completely understand what you mean about isolating yourself;in October I found out I had an autoimmune skin disease (PG) that kept me...
Beat UC- I was first diagnosed with PSC and then over a year later diagnosed with UC. The symtoms started appearing when the Pred. and Imuran I was taking for the PSC were being lowered....
When my UC is really bad I lost about 60 pounds in 4 months, while on a 40 mg. sometimes more. I am on Pred. right now and lost weight at 40 mg. again. I am now at 5 mg. and I too think I am starting...
It Hurts Bad- Hang in there. I am 25 and have had UC since I was 14. I promise things will get better; I finally found remission a few years ago. I was diagnosed with UC but some biopsy samples have...
I have been on Imuran since 2001 at 150 mg. daily. My UC has been in remission for about the past 5 years. I also have a liver disease (PSC). I don't think I will quit taking Imuran--this October I...