I definitely would too! I had a lot of incontinence with UC and am glad I haven't had issues with it after takedown. The surgeon said it happens for some people at night but I haven't had that...
Thanks everyone, I know I need to have patience and I did expect to be in the bathroom lots, my surgeon told me the first while is 'rough'. I'm just having a down day, the j pouch isn't that bad and...
I had my takedown on October 9th. Been going to the bathroom around 8 times a day and once at night. I've been feeling frustrated the past couple days because I can't eat like I did with my bag. I...
I had my takedown last Wednesday and I didn't have to prep. I was told nothing after midnight, but just to be safe I didn't eat after supper....
Sounds like you are doing well! I had my takedown last Wednesday and was home Saturday morning. I'm also only going once in the night which is so much better than I thought it would be! Wishing you a...
My prayers go out to his family and friends, may he rest in peace....
Thanks Marianne, I haven't come down with anything yet so I'm keeping my fingers crossed I don't get it! If I do, I'll call the surgeon's office....
Ok so I'm panicking a bit. My husband and daughter are sick with a head cold and I think I'm coming down with it too this morning. I'm having my takedown surgery in 4 days, on Wednesday, and I'm...
Thanks for your input! I am hoping I will be able to take my daughter trick-or-treating but if not my sister said she can take her since my husband will be working. @pluot - thanks for the advice...
Hi everyone! I haven't posted in a long time, I've been doing well and enjoying the summer. I actually felt good enough for the first time since I was diagnosed with UC to go kayaking! I went with my...
I was 24 when I was diagnosed, was hospitalized twice and had surgery when I was 26 (proctocolectomy and j pouch creation)....
Sorry you are not feeling well, this disease sucks! There is hope though - I'm definitely pro surgery. I was 24 and pregnant when I was diagnosed, and had a severe flare up (pancolitis) from the get...
I was on pred, imuran and remicade all at the same time. I hated being on so many drugs but needed to get my flare up under control. Remicade only started working between my 2nd and 3rd infusions...
Thanks everyone :) @Somedude: I had the surgery done at the Royal Alexandra hospital in Edmonton, Alberta. My surgeon was Dr. Plewes, he's awesome! He even took pics of my intestine after he took it...
Hi everyone! I haven't been on here in a really long time but thought I'd post about my surgery. I had the step 1 of 2 for the j-pouch done on December 7, 2012. Surgery went perfect! Was out of the...
I had positive results about a week after my second infusion. I was going to the bathroom around 15 times a day and now go around 3 times. Just had my 3rd infusion yesterday....
@ActiveUCer: The surgery would be done at the Edmonton hospital regardless; we don't have a colorectal surgeon at our local hospital and even if we did, I don't think I would trust them! I go on the...
Oh this will get reported, once I'm settled in again and have everything in order. And one of the medics was kinda cute so that was nice but I looked like heck so that didn't make me feel so...
@tournevice: we got back home yesterday afternoon since I have nothing scheduled yet. @quincy: yes, talk about a huge waste of provincial resources! It's exactly what my husband and I were talking...
Well I am back home but not without another fiasco, OMG!!! So Saturday morning I am determined to go home. I tell my nurse I want to see the doctor so I can talk to him about getting out. He comes in...
Thanks Andrina! Yes, I will be having a colectomy with a temp ostomy then j-pouch....
Ok, so I've had an interesting couple of days. Writing this as I sit in the hospital. As some of you know I've been battling a flare up for the past 2 months with steroids not really doing their job....
Too funny! Thanks for sharing!...
I am in the exact situation, I fly tomorrow and am also flaring. Yesterday, I took half a tab of imodium in order to go for my remicade infusion without having to go to the bathroom constantly. It...
I was not breastfed; I have an aunt and great-aunt with UC as well (father's side)....
Sounds like you had a fun day, you deserve it! Hope you keep getting better every day :-)...
Yes, I had this happen once when I came off prednisone. The pain was throughout my chest/ribcage and was exactly like you described as being stabbed when you take a deep breath, hiccup, laugh, etc....
Thanks Brannah, I'm closer to Edmonton but would be willing to travel to Calgary if need be. I have checked out that website as well, just thought I'd ask on here too for more opinions :smile:...
I posted this on jpouch.org as well but haven't got any responses over there so thought I would ask here too. I'm jumping over from the UC forum since I have decided to have surgery. Now, I am...
Thanks everyone for your replies. It's nice to hear how other people made out, whether it worked or not. I'll just be patient and see how things go. @OhCr@p! - I hope it works for you! 12 days in the...
The last time I had steak i was in the early stage of a flare up. It made things so much worse, more D, bleeding, etc. That's when I said 'no more steak' and haven't touched it since....
Oh I see, I thought a loading dose was an initial higher dose then the dosage is lowered after that. I understand now, thanks bananagirl :smile: So yes, I am doing the loading doses. I have my next...
No, I didn't have a loading dose. I was given the dosage of 5 mg per kg of weight. I'll ask about blankets next time for sure!...
Well I had my first Remicade infusion 2 days ago and haven't noticed any changes yet. I'm remaining hopeful that it can slow things down a bit from the 10-15 bm's I'm currently having. Definitely not...
I am in the exact situation as you, I put off going on remicade for the last year and am going for my first infusion today. I'm only taking it so I can hopefully get some relief from this flare up...
LOL, I love all the comments. What a good laugh, thanks! You know you have UC when you paint your toenails while on the toilet at 3:00 am....
Thank you for sharing your story, I was diagnosed a year and a half ago with UC and have been in a flare up most of that time. I'm sick of all the meds, side effects, etc. and I plan to ask my GI for...
That's scary, I'm glad you're ok! And hopefully it doesn't happen again....
Sorry I just need to vent. I'm so fed up and stressed out with being sick. I'm starting remicade as soon as I can get an appointment booked on Monday. And I'm only going on it so I can (hopefully)...
Scrambled eggs and toast, sometimes with a little bit of mild salsa if I'm feeling ok....
Lol, I'm gonna have to check out that theme song! Toot and puddle...oh man, I think we've all been there unfortunately!...
colgone1 - how long did it take for LDN to work for you? I know to some people surgery may seem extreme, but honestly, I would rather have it done than be sick all the time. Even if remicade, LDN or...
I have thought about asking my GI about LDN, I just learned about it recently so it's totally new to me. Also, I have tried salofalk enemas as well as pentasa suppositories but they didn't seem to...
I've been checking out this site for a while and am so happy with all the information that is available here. It's nice to know that I'm not alone with this awful disease. I was diagnosed with UC in...
Your positive attitude is awesome! I'm so glad your surgery went well and that you are bouncing back so quickly. Seeing happy stories like this makes me less apprehensive about surgery; I'm seeing my...
The same thing happened to me and my GI is away till the second week of August! My family dr said to go back up to the dose where I had no symptoms. I would do this if i were you since its only 2...
I am considering surgery which is why I'm on this forum but I did have an epidural when I had my baby. You are awake for it but it didn't really hurt. From what I recall, there is a burning sensation...
Absolutely! In fact, I had a breakdown today talking to my husband about how frustrated I am with being sick and meds failing. It's totally understandable to get overrun with emotions when we are...
Good luck! I'll definitely be checking out your blog, I'm strongly considering surgery too!...
Thanks everyone for your input. No, I do not want the long term effects of the prednisone and other drugs, which is why I'm here looking for the experience of others who have been in my shoes. I've...