not much comes up on google Quincy. im at a loss. possibly something to do with the pancreas issues or kidney stones. of antibiotics now and urine has been sent to the lab again. how is everybody. Ju...
update, i saw the gp and she seen traces of blood in the urine again but my labs came back normal. no sign of infection. GP says its muscle related but im not convinced. the pain is far deeper than...
Hi all, hope some1 can advise. I had my 1st remicade infusion 2 wks ago. it improved my uc by 80% overnight and i feel very lucky. last wk i noticed my urine was a darker so i mentioned it to the...
just wanna clarify, definately dont skip a dose, wait till you get some food 1st. Ju...
Hey i took my pred the morning of the test, i didnt have the scope till 2pm and i could drink water upto 4 hrs b4. well, i was out of my head. my pupils were massive like i was on narcotics and i...
oh anxious, i was too, hate the thought of some1 seeing my bum. i got a pair of shorts the last time that open just at the "crack". It'll will get easier. Best of luck. ju...
Are you passing this dose of the prep? You know i went through all that prep too and when i went in it turned out i didnt need it. they said they werent doing the whole bowel just the left side!!!!!...
how long were you on pred. im on it now 5 wks and ive put on 5lb. Its not that mysterious how i did it. it would be the biscuits and cakes and sweets that pred is making me crave all day long. i have...
hi i was told i could drink up to 4hrs b4 the test. just wanted to add that. water wont obstruct their viewing during the scope. as long as there is no solids just. good luck. keep posted afterwards,...
remain calm, If nothing else has changed ie no diarrhea etc it prob is a hemmie esp seen you're passing bigun's. lol. maybe a wee visit to the gp for an owl digit test. or try treating yourself with...
ah no, hope it doesnt mean the remicade has stopped working. good luck with the scope. maybe eat lightly today and you might not have a much to "get rid of" tm. thats what i'll be doing in the...
hi, remember not all get those side effects. moonface for instance is only after months on the drug at a high dose. every1 is individual with what side effects they get and how they're disease...
those are some big jumps you're doing. 50- 37.5- 30 woah, can you step down by 5mg a day or every 2 days. wouldnt you being in a flare make you a perfect patient for a trial. there be no use trailing...
what other symptoms did you have apart from pain? Ju...
thanks old hat, we call it sudo cream or nappy cream. always good to have some of it about. Ju...
Jeez i really feel for you. I was devestated when my Gi said if these drugs dont work you will have to consider surgery. All my hopes and plans vanished in an instant. I planned on getting pregnant...
Thats good news peace. woo hoo...
yes me and i dont get a period because i have the mirena coil in. both times on pred i got cramps about a week after starting. The 1st time i even had a little breakthrough bleeding for a day. God...
notsosickgirl, I opted out of the sedation as they said they were only doing a left sided scope. they went the whole way to a corner and once past the corner it looked healthy. my butt aches...
yeah must mean 50cm more. cant remember my 1st scope results that clearly or whether they stated how far it went. Ju...
Another auto immune disease def sucks big time. I feel for you having 2 myself. hope you get some relief soon. i wonder though is there a connection with it all?...
old hat, more cream than grey, and i saw little white pimple things everywhere. do you know what they are? where transverse colon bends to MY? left so is that the bit going down my left hand side?...
And its spread, doc says 50cms. how far is that? i watched the whole thing. it was the coolest thing. felt sorry for my poor bowel though. it didnt look well at all. all covered in mucous and...
Thank you mary, i just joined. Looking forward to talking more about it. Ju...
thanks for the support. im worried about the scope because im flaring prettty bad and the inflammation must be bad considering the amount of blood i loose each bm. Sorry for the moan. gotta suck it...
no hemmie cream. Just wondering now how the scopes gonna feel. will it hurt. cant imagine them putting anything in my bum now. hope they give me some strong pain meds. Ju...
i never got any instructions on the citrafleet. it just said when to take it and eat nothing and drink plenty. didnt quite make it there to the loo. ive no control. cant squeeze my cheeks cuz they...
hey? suppose that makes sense. no its not clear. still looks like dirty water. uugh...
its the day b4 my colonoscopy. i took citra fleet 4 hrs ago and i feel like my insides are in the sewer pipes. yuk. my 1st scope last year wasnt nearly as bad. i had some laxatives to take for the 2...
peace, been there already, not much action in that site this past while! Yeah Steroids took my pain completely away that im thankful for. i was in complete agony every eve. now its reversed and im in...
mary, thanks pm me will you, with the name of that group. looks like ill be needing it. its definately chronic for me. have had numerous episodes since march. last one lasted a month and was stopped...
They only ever mentioned amylase to me. i had to get my blood tested twice a week and it only ever had amylase on it. well they must of been testing me for both all along or it wouldnt amke sense....
OOOOOOOOOOOh, my favourite subject at the minute. I just been diagnosed with auto-immune pancreatitis. well its hard to say diagnosed as it is impossible to get clear answers from my GI. He keeps...
Thankn u...
yeah, im sure someone out there has the FACTS about long term steroid enema use. my GI told me that. But on the information leaflet i have it list NO side effects. weird huh? Here a piece on it i...
Ju It can be confusing reading about surgery, especially the j pouch because it's pretty complex. I'm my opinion, anyone going on Remicade should start doing their homework about surgery and at least...
i was told i could use steroid enemas indefinately. I know others will disagree though. If they work why not. I am on a 5mg pred suppository and a 20mg pred foam emema and 35mg pred oral!!!! full...
Hey Ill know if im in the same situation on monday after a colonoscopy. Im flaring pretty bad and my uc isnt responding to drugs, my next step will be remicade so im trying to stay positive itll work...
No, because you've stopped them right. i've read alot of people on here getting symptoms back after stopping steroids. the steroids were keeping it at bay. You have 2 options i can think of. go back...
jeez, some might laugh but im so lucky to be in Ireland with free health care. I coulnt imagine the extra stress paying for all those meds would cause. I mean 4600 for 1 infusion. i would be bankrupt...
so another 2 for remicade. i should of did a pole Thanks jay, im glad its working for you. Ju...
yes maybe we should stick our gender in our sig also. sounds normal. i've had 2 abdominal US. the pressure is very uncomfortable esp when your bladder is full. Ju...
pah try living in ireland were we get zero to nil sun. lol yeah do the lotto. we can always dream. Ju...
Peeka, so what are you taking. Hydrocortizone enemas is it. ru peeing out of your butt in the am and how often is it happening. Could be the enema coming out again. or could be diarrhea. JU...
yes, but i havent cried yet. I did get really upset on fri after my GI app as i was told that A) ill have to postpone having anymore babies for a possibly 2 yrs. B) im gonna have to choose between...
crap is right. you wanna get better b4 you start changing diets etc. All of the oral 5sas's i tried gave me a bloated and painfull tummy and any rectal 5sas's came straight back out. my colon was...
gee, i dont know much about mesasal but i do know about drug intolerances. i didnt tollerate asacol and had side effects. thing is there are loads of different meds out there. whats the point in...
thanx for your opinion Jay. so if you dont mind could you tell me what are the side effects you have and is it making any difference to your UC. Ju...
hi and welcome, 1st line of treatment - 5 sas's like asacol, mezavent, lialda, salofalk. suphalazine or mezalazine are their generic names. you can get suppositories and enemas aswel as the oral...
so whats the deal. can uc patients get it in the US or not. seems to be alot of different info out there. Ju...