I got my 2nd dose of Moderna on Jan 28 and no difference in UC. I have been in remission since 2012....
I got the Moderna vaccine on 12/30/2020. No notable side effects except sore arm at jab site for 3 days. Much more sore than a flu shot....
I’m staying healthy and very careful, but wondering if anyone with UC here has recovered from COVID? How did your UC stay during the bout? What naturals or medications did you use? And what was your...
I have a colonoscopy tomorrow and I’m scared. It’s a routine check but occasionally I have had more left side abdomen pain. I had my FMT in Aug 2012 I have continued Lialda (now generic) all these...
Would the protocol be to stay on the biologics for the long term / indefinitely? Or are many prescribed them to get into remission then taper off and go to a maintenance med?...
Look on shop.vsl3.com I’m not sure about dairy free question. I ordered from here several months ago, and the site still seems to be valid for orders....
Thoughts on this research? Not sure if this has already been discussed. I don’t check in all the time anymore. I have a google alert for ulcerative colitis and I had a few articles today around this...
My son is almost 4 years old. In the last week, he has had 2 different “juicy toot” or shart events. I’m overly paranoid because of my diagnosis. I have a call into the Peditrician. But would this be...
Just curious if you had any antibiotics since your initial FMT’s. I have tried so hard to avoid them. But I know I had them in IV’s during 5 surgeries since my FMT. Not sure if they cross the gut...
I will be checking in Curl3d. I hope the FMT brings you remission again soon! You were doing your FMT posts right in the same time frame that I did mine. I did them in August 2012. I am still in...
Most likely they gave you antibiotics for the surgery, at least through an IV. I would ask about taking VSL#3 DS. My GI doctors also have me taking curcumin and alpha lipoic acid w the R value one....
I love hearing about fecal transplant news... This was posted on American Gut Projects FB page....
I was flaring while pregnant and loosing weight. Not good! It was a chiropractor who helped me by telling me to eat as many avocados as I could. Makes sense as this is one of the first foods you...
I understand hair loss frustrations!! I went through chemo a year ago for breast cancer. I cold capped to try and save my hair but still lost up to80%. If you are looking for ways to conceal thinned...
Interesting article. I have a lot of hope in FMT....
I had FMT in August 2012, done at home with the advice and support of a doctor. . They no longer do this. I don’t recall being told any waiting period before getting pregnant but since I was flaring...
I hate to hear this surgery spurred your flare. I’m looking at another surgery soon. An oophrectomy. It will be my 4th surgery since my FMT in 2012 and I have stayed in remission. Do you take VSL#3...
I'm not sure if I have updated this thread on my progress. You may remember I had 10 FMT treatments in the summer of 2012. I continued on highest Lialda dose (4 pills/day) + VSL#3DS. In December...
I have been on Lialda for about 5 years. I just learned that the pharmacist that a generic for Lialda just came out. She said it's not available for this month's refill, so I will be getting the...
Does anyone know how Levaquin and UC respond? That's what the oncologist issues as standard to start if any fever is 100.5. I have read scary stuff about it. Saying it's like a nuclear bomb to kill a...
I take 900 billion daily during remission at the advice of my GI doctor. This would be 1 sachet or the VSL#3 DS which is prescription strength in the US. There are different VSL products that are a...
I'm a complete believer in FMT! I didn't see where it listed how frequently the FMT was administered. And did each patient have different donors?...
I had a fecal transplant in August 2012. The GI who helped me with the protocol told me at the time to try and avoid antibiotics. I have been in remission ever since - loose stools at times but...
My insurance won't cover VSL#3 DS because they said it's a medical food. Is Visbiome classified differently?...
I just found this link. Anyone taking Visbiome? Imagardner2 - is this what you were referring now to?...
Do you know the rival company name? Would be interesting to look into....
Did VSL#3DS change the formula? The packaging changed in my most recent fill. But now that I opened it, it tastes different. I don't remember corn starch being on the Prescription version. I don't...
Thanks, IamCurious. I have recently been reading about Vitamin D. How much dosage should I take? one while fighting cancer, and two after the double mystecomy that looks like I'm facing. They are...
So, I have just been diagnosed with breast cancer. I'm devastated. My UC has been doing so well. It's all new and I don't have too many details right now. Anyone here ever fought cancer and UC at the...
I have been taking VSL#3 DS daily ever since my FMTs in 2012. I also still take lialda because my doc said it has a coating affect and they find it reduces cancer. I strongly believe the VSL is an...
My insurance stopped covering me also and I have been paying out of pocket for VSL#3DS. I did the math if I were to switch to thenon perscription version and it wasn't that great of a savings over...
I know. Makes me a bit nervous to make changes. But about 2 years ago when I was also in remission, the doctor I saw (who has since moved but I truly admired because he gave me the protocol for FMT),...
I'm in remission from 2011 pancolitis diagnosis. Today I visited my GI doctor and I asked about taking Curcumin. She told me to take 1 gram a day. I went to the local natural store and got a bit...
Interesting! I have been taking 4 Lialda at night for about 4 years. I never heard to take in the AM. I initially did night because that seemed to be how my breast fed baby would get the least amount...
How does the D affect hunger in most people?...
Sorry to hear you are flaring again after such a long remission. Did I read that right 13 years in remission?? What maintenance meds where you on? I would love to believe this diagnosis of mine in...
Not at all what experienced in my 2 pregnancies. My first, I started flaring about 16 weeks but was undiagnosed. My daughter arrived at 34 weeks, I'm still not sure if that was UC related. My water...
I have been on full dose of Lialda for about 3 years. I don't think my doctors have any plans of changing it. One doctor told me that Lialda is like aspirin for the colon. He explained that even in...
And when you say family history of colorectal cancer---my maternal grandfather did have colon cancer but he lived to be 89. Is that enough of a risk for me to have this colonoscopy at age 39?...
Thanks everyone. I also forgot to mention I'm exclusively breastfeeding so the prep is also hard for nursing moms....
I was diagnosed July 2011 four months post partum after flaring undiagnosed through pregnancy. I saw 3 GI docs after that and really trusted the one who led me through the FMT process, which I...
I have always been told to avoid NSAID use since I was diagnosed with UC. I just had a c-section 5 days ago. I had a hard time in the hospital getting the staff to remember that I was not supposed to...
Your infant donor -- can you describe how she was born ( vaginal vs c section, how long in labor, natural, etc)? Has she been exposed to any antibiotics since birth. I have become very interested in...
I'm 32 weeks pregnant and just called to set up Cord Blood Banking with our 2nd child. (We banked cord blood only back in 2011 with my daughter.) The sales person also told me that it's possible to...
Call the Infant Risk center and talk to a nurse. They are worlds of help. It's free! It's associated with Texas Tech University and Dr Hale, leading doctor who wrote the Mother's Milk & Medicafions...
I have to have a c section later this summer. I'm very concerned about what the antibiotics will do to my UC. I'm doing great right now and can't bear to think of a flare and a newborn baby. Already...
Plain eggs, sweet potatoes, chicken, cooked carrots, turkey, avocado. I would eat foods you would feed to a young infant -- easy to digest foods....
I'm convinced my UC came about after a year of not sleeping well and high stress followed by a pregnancy. Now, I really try to manage my stress and sleep. It's much better but not perfect. Things I...
Just wanted to add--not sure I made it clear, I took Aza only before the FMTs (6 weeks before if I remember correctly) then I continued Aza for a brief time after then stopped that medicine after the...
That's great news UC_Hater. I completed a 10 day FMT process in August 2012 and have been doing good ever since. I also consulted with the same facility. Im now 28 weeks pregnant. The pregnancy has...