We are based in London, UK. My 10 year old son has had ulcerative colitis for 5 years. He was relatively well at first, but in the last 18 months has had an ongoing flare up. He is steroid dependent...
Another question, when we spoke to our consultant about elective surgery, he said that he would recommend waiting several years before getting a j pouch - saying this surgery is difficult on children...
My 10 year old son has had ulcerative colitis for 5 years and has been flaring badly for a year. Docs have tried imuran, methotrexate and remicade with little success. He is currently on 20mg pred...
Banana girl sorry to hear that. Does sound quite similar. I had really high hopes of the FTs - I have always had very healthy bowels and we share a blood group - I had all the screening tests costing...
Thanks everyone. They have done an x ray and ultrasound which were both normal. Edbar haven't asked about 6mp yet - but will do tomorrow. I wonder if it would cause fever though? Perhaps......
Docs have just been in to say no sign of a bacterial infection, although they won't absolutely rule one out. They say it could be a virus or symptoms of the inflammatory disease itself....
My 10 year old son has been in a flare for over a year - at the last colonoscopy in November his inflammation was moderate to severe and throughout the colon. He was intolerant of azathioprine and so...
Thank you, can you please send to my husband's email it's [email protected] thanks again for your help and advice I really appreciate it. Bex...
Hi again, thanks for your reply Edbar, its pan colitis, though I believe the descending colon is worst affected. I'm so pleased to hear how well your son is doing. Based on your replies earlier, we...
Thanks very much for your replies. Have been asleep hence the delay - we are in the UK. Edbar, we have the Fleet enema bags - 133ml, 4.5 fl oz. planning to dump the saline solution then use our own...
My 10 year old son has been in a bad flare for over a year. Meds haven't worked except prednisilone - he's been on 10-15mg, now gone up to 20mg. Docs want us to meet surgeon. We are starting at home...
Hi again. Not a good meeting with doc on Friday. He will give my little boy one last infusion of Infliximab (remicade) next Friday, then do a colonoscopy 2 weeks later. if no improvement, says we...
Thanks but I want to do everything possible before resorting to surgery. We probably will see the surgeon though. Susan451, sorry to hear about your son, but sounds as though he is doing pretty well....
Thank you so much to everyone for your replies so far. It's heartening to have your help, advice and support. Our consultant says that enemas (he was talking about steroid ones) are only effective...
My son has had UC since the age of 5. It is pan colitis - mild to start with, and kept under control quite well. But he started a major flare up a year ago (sparked by iron tablets, I believe) and...
Thanks so much for your replies, I really appreciate it. Regarding Remicade - doc says that's our only option left before surgery. My son was put on azathioprine - I believe immuran in the us - but...
Hi Gary those were my thoughts exactly. Doc couldn't answer when I said just that, apart from to say they were just making sure. It makes me mad... Is it ok for kids to take slippery elm do you know...
Thanks for your reply, we have VSL3 at home - we tried it for a month a while ago and didn't notice any improvement so stopped it. Docs here (I'm in the uk) have no opinion on supplements - have...
I'm writing this from hospital - my son had a colonoscopy 2 days ago that revealed a worsening of his Uc - he's had it since age of 4, now moderate to severe pan colitis. He had a high temperature...
Sorry didnt think submit button was working so pressed 3 times!...
Such good news Lolil, congrats. Thank you so much for your postings - and to Edbar - you have given me hope. My 10 year old son has UC and has been in a flare for a year. He was intolerant to...