Just wanted to say bye for now and thank those of you that have been helpful to me. However, I am no longer finding this forum to be a happy place for me due to all the constant bickering between...
Obviously, there are many theories as to the increase in autism cases and without a doubt additional diagnoses made that wouldn't have been made in the past are a contributing factor. (kind of like...
Yep. 10/month. I have boxes and boxes of them. I have been using them nightly for the last 4 nights. I see a little imrpovement, but not a ton. I am with you... HATE them!!!! And, it isn't something...
Thanks all! Still freaking out, but... slowly coming off the ledge as today I just took my 3rd dose. Science girl... sounds like your situation is similar to mine, although I didn't start the 6mp at...
I did read that there are not studies on long-term usage of 6mp at low dose (100 mg or less), so the long-term effects are not definitely known as they are with the higher, more traditional dosages....
So 4 weeks after my 3rd Remi infusion, I have seen some improvement, but not enough. Still bleeding, still mucous. So I just started 6mp yesterday (50mg) and am terrified. Terrrified of getting...
Only thing I can think of is that with the enemas I have used (both generic) I found that the cortisone released much quicker. The mesalmine seemed to have a much tighter seal and required...
Some have found great success with diet modification which is why I tried it. For me, giving up food that I had no desire to eat anyway wasn't so tough. lol I was living on chicken soup and eggs for...
keep moving... This flare started in February. In April I decided to try gluten free and did so for 2 months and saw no improvement. After the two months, I eliminated dairy as well and did so for...
Appreciate your thoughts carl and well taken in many regards. But SIL wasn't kidding. She wasn't trying to raise my spirits. She was truly expressing her feelings/desires. And again, it's one thing...
I should add that she knows I have had a really rough year. She knows I have been in/out of the Dr. She knows I have bounced from medication to medication. She knows that I had to skip the family...
Sorry you are not comfortable in your own skin, but this sounds like something you have to move past emotionally and/or change physically if you are unable to move past. I refer back to my original...
Envy isn't an unacceptable emotion to have... but I don't think anyone appreciates being envied. So when/if I have it, I generally try to refrain from showing it. Maybe I am alone in that regard?...
Actually, not to be a contrarian... but I can't see how telling someone they are lucky for winning the lottery is a positive way of using the term. It is not refutable and definitiely true. But what...
You are missing the points entirely. 1) I only wanted to tell her something rude and obnoxious to hurt her as she had me, not because I personally believe it or care for that matter. 2) I wouldn't...
Perhaps if you read more... wrote less... you wouldn't be so confused and irritated. My first lines were: "Of course we can say we are lucky we don't have some other awful disease, cancer, heart...
Of course we can say we are lucky we don't have some other awful disease, cancer, heart defects, etc... We can also say we are lucky every day that we don't die in a car crash, plane crash,...
Adventure, you are right about the name. I feel like Chrons Disease is at least labeled in such a way that most people have heard of it. There are more people with UC than Chron's, yet fewer people...
Sue, that is awful?!?!?! What did you say?...
Sorry for another rant but this one burned me up... This weekend I was told by a relative "You are lucky, because you can eat whatever you want and not gain weight." On what planet is it considered...
They pre-med me with zyrtec and tylenol. The first infusion was benadryl and like others it made me groggy, but the zyrtec seems to have no effect and I felt completely fine after my last dose. 1st...
well... if it is in fact the prednisone that has caused my sensitve teeth, than the answer is that if it goes away... it takes a while since I have been off of it for a month. But I can say the...
I'll try the calcium. I am pretty sure this has nothing to do with the Pred since it didn't appear until after I was tapering and now that I have been off of pred for about a month, it is still there....
I am also new, had my 3rd infusion two weeks ago. It has helped, but I am still having some bleeding/mucous, although pain, urgency and frequency have been signficantly reduced. The one side-effect I...
yeah, and apriso is a low quantity of mesalamine when compared against lialda, asacol, etc... i literally almost burned a holde in my rectum from the canasa. while it isn't as high a quantity, it is...
For some, intollerance/sensitivity is quantity triggered and not an allergic reaction in which case quantity wouldn't be much of a factor. I believe that may have been my issue that the combination...
Funny, well not really, but I was just noticing (and remembering) this morning when I got dressed that if some clothes drag across my stomach just right, I still get a tingly/electric feeling. Since...
I have night sweats when I am flaring even when I am not on steroids....
personally, I am not going to take the parasite risk. I know its small, but just not something I need to be dealing with....
And some around here will argue that living without it is easier than living with it!...
I won't disagree with any of that pb4. But understand that for me, there is no correlation I can find between my diet and my UC. That's just me. And as many others have pointed out, UC is probably a...
I'll add that my first flare (that I know of) occurred three years before my DX. I had pain, urgency, mucous, a little blood (which I thought were hemis) but my sympotms improved in a few days on...
Diet has an effect on IBS, so it can definitely have an effect on IBD. ------------------------------------------------------------------------------ Huh??? That makes as much sense as saying... Diet...
And one more point. Many of us ate whatever we wanted all the years leading up to our UC. If diet was/is such a contributing factor why didn't UC rear its ugly head sooner? In my case 30+ years....
imagardener2 said... I kinda agree that I am lucky. But I worked darn hard to find the diet that works for me. So in my case lucky=very hard work. And I have worked hard to have no success so in my...
Let's put something out there that we can all agree on. The luckiest ones are those that don't have UC! lol...
I wasn't referring to you specifically soystud. but there are others that seem to have this superiority complex, that they were able to overcome something that I have not been. be it through diet,...
Bottom lineis for those of you that have found diet to be succesful, you aren't smarter, stronger, or more devoted than those of us that haven't. You are lucky that you have either found your...
i'm wondering why it would take 5 years to get started on clinical trials for a medication that already exists....
Yep. I am sure that food isn't the culprit for me. I do believe my case is more an environmental contaminant exposure that has triggered my immune system to go haywire. And no, eating organic won't...
Can't really follow your logic flow.. You name several known factors that can result in a shingles outbreak, of those one possibly being Humira and then state that Humira is the one that caused it?...
garylouisville said... Could very well be the Humira which caused this virus to come out of hiding. In fact, I'm betting on it. ______________________________________________________ Then you are...
For me the warning sign (which I ignored) was a numbness tingling sensation on my stomach. In hindsight, it was kind of like the feeling you get before you get a cold sore just a larger area and on...
i just had my 3rd infusion 1 week ago. No aches to report. However, I did go through a lot of aches and pains when tapering off prednisone, so perhaps that is you source?...
Meds won't hurt... but when I had shingles I was told that once the rash appears, its too late for the anti-virals and they will be of little effect. Neurontin or some other nerve deadener may help....
So my experience would be no, it doesn't stop/start a flare. However clearly there are foods for me that irritate things which is true for most people. So yes, diet helps with some of the symptoms...
I took lialda for about 3 1/2 years with only very minor incidents along the way. Then... it stopped working and after a few months I developed some kind of intollerance to meslamine and it was...
My GI started me on remicade before 6mp/imuran. He told me that the philosphy used to be immunomodulators prior to biologics, but in recent years that is changing where he now frequently goes with...
I just had my 3rd infusion last Tuesday. I can say that I didn't see a big imrpovement with the first two, but this third really made a difference (which may also have to do with the fact that my...
I recently started remicade as well, just had my 3rd infusion on tuesday. While I have not experienced the dry mouth, I did receive instructions to hydrate myself well the first few days. So... maybe...