My daughter has had a good experience with VSL. Also, I looked again at the insert and it said for an active flare you could use up to 8 packets (or equivalent with capsules) so we went for it, and...
also, somedude--is it working for you? what are the variations?...
somedude: you are a smart guy. My daughter has been a picky eater since day one. She can also be incredibly motivated and disciplined. So if she decides to do the SCD, it might work. I'm not going to...
My daughter was given a prescription for D for 3 weeks. I didn't ask enough questions but I assume it was low and this was a super duper version. I have been wondering about it and will ask if she...
Probiotic--I am really sorry to hear about your situation. My daughter has failed most of the drugs too and they are pushing surgery but she is not flaring as badly at the moment. I hope you find...
Mindoverbutter--thank you for the rec. If we head to NYC will definitely make a stop there...I have also heard excellent things about Mt. Sinai's pediatric IBD dept. I know people for whom the diet...
VSL #3 has helped my daughter. It is expensive but sometimes you can get your doctor to write a prescription and maybe get it covered. There is some hard data proving its effectiveness....
My daughter's doc (or her colleague) agreed to do an FT via colonoscopy; they are doing a study and including her. However he didn't seem to think it would work, which was a bit annoying.Now we are...
I'm glad you're feeling well, and hope it stays that way! Good luck!--Bearmama...
Gary--yes, I think it's hard for docs to admit they don't have the answers, even when it is obvious they don't. My daughter's first doc (who was more of a researcher) freely admitted it and I liked...
Also, noga, I'm sorry to interfere. But my dentist recently told me to be careful of brushing for too long as it causes gum disease. You can actually abrade the gums. That's why you should also use...
Mike--thank you so much for posting all these. This has been on my radar screen along with many many other possible evils... Just wondering, do you know if carrageenan goes by any other names? (Kind...
There has been some evidence that Wellbutrin can HELP UC--it is a TNF inhibitor like Remicade, Humira. Maybe you could switch and see what happens. There have even been studies on it but nothing...
Thank you so much, everyone, for all these replies! I had done one search but felt like I was mostly finding reiki and massage therapists. Not that I don't like a good massage. Anyway thank you for...
My daughter has now failed every drug up to and including 6MP and Remicade, and we are getting the full court press to have surgery. However her quality of life is still pretty good (she has no pain)...
I also meant to say that from the very little anecdotal info I have, it sounds like Remicade usually does work pretty quickly. So I am not very hopeful for my daughter. That's why I wanted to post...
But I have no idea what the necessary diet modifications are! Of course I got the line from her doctors that diet was irrelevant. And of course I don't believe that. But there are so many conflicting...
Hello everyone. I have been lurking here for a while and thought I'd come out into the open as I keep thinking of things I'd like to ask the kind people here. I am so impressed with the wealth of...
My daughter has been taking VSL #3 in a smoothie for breakfast--three packets along with milk and bananas, sometimes other fruit. Do others take VSL different ways/ at different times? She also takes...
I am new here and later on will post LOTS of questions...but for now I just wanted to add that they are beginning to do FT at Children's in Boston. They have only done it twice but we are in line...