YOU KNOW YOU HAVE FIBROMYALGIA WHEN.... ...your version of a "good day" is not spilling food on yourself. ...you count spoons instead of hours. ...getting dressed to leave the house is like planning...
I know I had planned to come back regularly like some of the old-schoolers to check in with everyone and help lend support to some of the newbies, but life got way too out of hand for me to be able...
Hello, Newbie here. I am relatively new to fibromyalgia (Dx June 2016) and new to this group but not new to Healing Well by any means. If you'd like to hear more of my story and see how I'm handling...
Still waiting to hear from one of my best HW buds.... Somedude, where are you, and how are you doing??...
Q- Good to hear!...
Thanks, quincy! Great to hear from you, too. :-) How are you doing? Banana- Good luck with the FT. I was in such bad shape I don't think it would have done anything for me, but hopefully you're...
Hi Marianne! So nice to hear from you! :-)...
Oh wow, I bet! That's great, Hat. My UC was always aggravated by stress, so I imagine retirement would be a pretty good "treatment" plan! Glad to hear things are still going well. :-)...
Haha, yeah that looks about right! Nice to see you again, Hat. :-) Still in remission?...
Hey, banana!! Yeah, it was a lot of fun. But more importantly, how are YOU doing lately?? It's been so long... Hope all is well....
Hello, All! Long time no see! Thought I'd pop in and let you all know that I'm still doing great. For those of you who don't know me, after seventeen years of struggle with UC, I chose the route of...
Just an update for anyone wanting more info on the j-pouch procedure... I am four and a half months out from my takedown surgery, and I can now sleep through the night without having to get up to go...
The rectals don't have to be every day of your life. Generally we use them to get into remission and then use other systemic meds as maintenance. I will second Red's question: how far up is your UC?...
Mine took about three months after my last dose of pred to go away completely....
So glad surgery went well for you! Are you doing a perm ileo or a j-pouch?...
P.S. Somedude.... I miss you too! LOL...
Thank you, everyone! I know I need to update my blog... I meant to write a post all about the pros and cons of life during the "adaptation" phase of a j-poucher (first 4-5 months), but I've honestly...
Just giving a quick update.... I'm never on these boards anymore because I am too busy living and loving life!! I am four months out from my takedown after j-pouch surgery. The first month of that...
Was just about to post an update! Wait for it..........
Congratulations, Summer! That is pretty exciting. :-) If you want any tips from an insider (I have some good ones), or if you have any questions or issues, feel free to email me any time (addy on my...
Feeling good today! The pain/bloating seems to be gone now. Went for a walk, did some exercises, cleaned house, now getting ready to go take a shower and go shopping. :-) Working on getting on a...
1) I was told a solid seal (glue or stiches) wouldn't work since it was not a sterile site (previously used for waste evacuation) and needed to be able to drain. So mine was closed with staples,...
Yes, it is normal to have a bit of trouble digesting food the first few days. It took about a week for me to really feel confident eating. The gas pains can be pretty bad, but they will go away after...
I had a temp loop ileo for ten weeks before my takedown. I would empty my bag maybe five times a day, only one of those being at night. Sometimes I would sleep through the night without emptying,...
B'Dereh- I don't know about everyone else, but in my case it is exactly the same drug. My prescription bottle says "prednisone" on it, same as it did when I was taking it for UC. It only goes by a...
I had sex once in between my two surgeries, while I had the ileostomy... (two rounds, one occasion, missionary position). I had no pain at all - everything functioned perfectly normally. It was even...
Hm, that is interesting ddd. I've never had surgery before this, so I just assumed it was standard practice to put patients on steroids after major surgery since they just automatically did it both...
LOL, I know. I was just sad that I don't see you very often anymore, now that we're on different boards. I will probably stop even frequenting the ostomy board now that I don't have an ostomy. I...
What happened to you SomeDude? I have to come back to the UC board to find you and say hello.......
Glad to hear things went well. Fingers crossed for bowel noises and gas! (First signs of intestines waking up.) Keep us posted!!...
Different strategies work for different people. ddd45's strategy works well for her, but personally I had to apply the seal directly to my skin to make sure the seal adhesion was perfectly aligned...
LOL, the noise will quiet down significantly after a few weeks when the swelling goes down. It also may be a bit more difficult than an end ileo to manage leaks and output seeping under the wafer...
Yes, a small amount of blood right after surgery is normal. If the amount of blood increases very much or if it continues daily for too long, give your WOC nurse a call. Different people also pass...
Yes - everything that UC wife said: walking, chewing, and staying ahead of the pain with your meds. You want to be pain-free enough to be able to DO the walking. And when they introduce you to food,...
Belly bands ($12 at Target in the maternity section - brand names Bella or BeBand) work really well also, the same way you are using your tank tops but are a little more versatile if you don't want...
Was it actual Eakin (ConvaTec) brand? I know the different brands of seals react differently. Some brands hold up better and do not dissolve as easily under the influence of the high acidity of an...
As others have already said, yes, it's completely normal. Don't worry about the nutrition end of it. As long as you are not having diarrhea, your small intestine is fully capable of absorbing all the...
After the swelling has gone all the way down (six weeks post-op), you should be able to eat whatever you want with an ostomy. Just introduce things slowly at first, so if you do encounter trouble or...
Thank you for the support, Ladies. I actually feel great aside from the air still trapped in my abdomen, which is quite uncomfortable 24/7, so kind of a contradictory answer I guess. I will get to...
Thank you for this reminder, Christine. Unfortunately I am one of the ones with current complications, but I don't regret my decision for a minute and am looking forward to life as a healthy, happy...
x5800- I had complications in the hospital which required a 24-day stay, discharged a week ago. None of it was actually related to my j-pouch; just general post-op complications that could have...
Wait, does that mean you have another cyst or that the doctor just didn't know what the hell he was looking at? I'm confused... Either way, I agree with Pancakes - have your primary care physician...
...still having complications. So to recap for anyone not following the story, recently in the hospital after takedown: 1) Paralytic ileus, a.k.a. intestinal blockage from bowels not waking up...
I totally know how you feel when you say once that decision is made it's like a weight off your shoulders. I felt the exact same way. If I were you I'd do as much research as possible and start...
Finally home and resting in my own bed. Already loving the bidet!...
After twenty-four days in the hospital, I will finally be going home tomorrow morning!! WOO-HOO! I can't wait....
UPDATE: I finally got detached from the IV cart this morning. Woo-hoo! They stopped the antibiotics and want to make sure my white blood count stays stable for 24-hours before they send me off, so I...