I've felt improvement after the first loading dose, but my prednisone weening is under 40 mg now and as that goes down my gut begins to complain more offsetting I guess anything the Simponi is doing....
Sounds like you're close to or at needing to be admitted. If I were at that point (as I was just a couple of months ago), I would have shown up at the ER likely with breathing issues (because that...
I was on Humira for a year after Remicade, it didn't really work. I usually always had pain injecting it and it didn't seem to matter what I did. Leaving it out for so long or anything. I ended up...
How about this... when I'm admitted to a hospital for my colitis and they put me on ball and chain! They kinda wonder why I ask for one of those portable toilets next to my bed. I can't unplug the IV...
I came out of the hospital the beginning of last month on high dose steroids. After talking to my doctor he's allowed me to control my tapering and given me as many tablets as I need. He wouldn't do...
I hope it works for you! Humira did not for me and I'm not a big fan of their injection pens unless they've changed them since earlier this year. It's so much easier though when you can take these...
Sounds like my story, except for the c-diff and the flare I am currently in started in 2010. I've been through them all too (drugs) and steroids only have a limited effect on me and only in high...
I seem to do well on regular Activia yogurts. Greek yogurt is not really much different other than a missing component that Activia has (or much lesser, whey). I also don't handle Chobani well! I...
About 20 oz of Powerade 4 eggs beaten with Basil, Finely Ground Black Pepper, Parsley Sliced Green Onion, Chopped Green Bell Pepper (skinned), both cooked very soft Polks Smoked Sausage (Original)...
Well you wouldn't be helping the issue with 6MP by going to Imuran, its very similar and I think has the same problems. I'm not a Doctor but you sound like a good candidtate for Simponi, Humira, etc....
I started Simponi and have gone through all of this already. Yes Remicade gave me joint pain , some of it was from the Colitis actually (but Remicade came with more severe joint pain). It was never...
Well with the corticosteroids you want to wait until you really have to use those (symptoms are out of control or headed that way). Corticosteroids are like Prednisone, unless you get bad enough to...
So this is the morning after the first loading dose (2 pens, 200 mg total) of Simponi. I feel absolutely incredible. Last night I slept very well even though I got up to use the bathroom maybe 2 - 3...
So lets make this story short . I was diagnosed in 2008 and was in and out of remission. A bad flare started in 2010 and led to two hospital stays. To be clear - it's 2014 and I am still in that...
This is true, and why I love her so much....
You can't be inducted into the UC hall of fame until you poo your pants. Find a good place in public and just let it rip, make those funny faces, yes, you must. All I have to say is I am kind of...
Humira will reduce your immune response but it won't totally destroy it. If you truly are sick and you take the injection your infection could be worse than it would normally be. Your GI might even...
I get that on occasion. For me it really means I need to get my eating back up and drink more. Skipping a meal or not drinking just slightly not enough makes me fragile. For me it's more likely to...
Do you think I could teach my girl friend these tricks? I'll marry her first if I have to - she's been great with understanding my UC....
I've had liquid diarrhea since 2010. Try that :-) Keeps me thin! I do have to drink all the dang time though and make sure I eat even when I don't want to. Thats life for UC. I would do anything to...
I've been on Humira for a couple of months now. Some exhaustion after taking it, and I had a short fever yesterday after taking it. Other then that nothing. I'm so used to these type of symptoms...
I love animals and I think I found a good excuse to always have a dog with me. If I were to train a dog to always carry a change of clothes, wipes, etc. on his back and to sniff out bathrooms for me....
Digested juices tend to be reddish brown or at least a certain brown that can be confused with red. If the blood is truly brownish, then that means you have a problem much further up in the digestive...
Does it matter what's in mushrooms? They do not digest in my gut at all, they come out the other end the same way they went in. It's a problem when you can say some food has something beneficial -...
The thigh has less nerve endings, but it's often easier for people to get enough skin and fat to pinch around the stomach which is why many report that being less painful. It's easier to do it...
You didn't pinch flesh at all? Well that would hurt the most. The point was, no pun intended, to inject into tissue above muscle into the skin and fat....
Everyone says it hurts, it gets burned into your mind before starting it. So before even feeling any pain you hesitate. Now the pain is worse because you were expecting it and.... likely doing it...
So someone in my family moved my Humira box to the top back of the refrigerator. It's been known to freeze things back there sometimes. I took my box out and the liquid is still moving so it doesn't...
I think it would be nicer if I could inject somewhere else, like the side of my arm... that way I can be in a much better position to take it and brace myself for it. It's hard to brace yourself in a...
I think I can handle one every 2 weeks. My left leg seems to be less painful for some reason. I just can't get myself to do it in my stomach, I don't know why. I guess I find my stomach a more...
So I'm on my second loading dose today. 2 pens. Wowzer! That hurt more than the first four. One thing that is different is I premedicated with Tylenol that first time and I didn't this time, that...
I started Humira almost 2 weeks ago. I had a small good response from it immediately, but not much. I'm not expecting much from it until later. I have my 2nd loading dose Saturday and then on the...
Sems counterintuitive to take something to reduce the immune system then something to increase it. Vitamin C that is. If I take what I know of these meds and what vitamin C does, then it seems...
Just so you know before you choose Remicade just because of RemiStart, it only goes so far then you're back with the huge expense! It lasts for up to 12 months or eight infusions, for a maximum...
I was on Remicade for almost 2 years. It cost me way too much. It got to the point that I decided I couldn't keep letting those medical bills pile up. The problem on my side was that the only place I...
I've got my Humira starter pack yesterday! I have to use 4 pens on the first day, but I am wondering if I should start this on the weekend? I'm told flu like symptoms are common on that loading dose?...
I do too! I have a disney world trip in October and moving off to be on my own again around the same time. I would love to be in remission for all those exciting times coming....
The starter pack is coming to my home and I am fully capable of doing it myself. I've seen so many videos, researched this medication so much in the past few years I feel confident I can do it...
You only have a few sick days used this year and they're already asking for you to use FMLA? I didn't use that until I needed weeks out of work. What's a few? FMLA is really only to prevent you from...
My disease also started on a milder note and that first flare didn't last long. It seemed horrible to me at the time though, yet was I to know what bad was. Often we do get worse, but that is mostly...
A few years ago I started this horrible flare, unending it seems. I'm still in this flare. I've had some success with Remicade (just not remission) and then went into a study for a new drug (with...
Why would you think discontinuing Asacol would result of no generic? A generic is made by a different company than the original manufacturer when the patents have run out. Someone can still make a...
Now to overcome my nervousness of flying with colitis -- hopefully better than traveling, the chance to find a stop before I can't hold it anymore is slim if by highway....
I do plan to just enjoy mostly the resort, but there are not bathrooms show on the resort maps, just the parks. One nice thing is Epcot is just a short walk from the resort so I feel more in control...
For me it's not how often I go but the urgency. I cannot hold it longer than 30 seconds to a few minutes depending on the day. I just read about the GAC "Guest Assistance Card." I wonder if this...
Well this is great news, my company has decided to celebrate our 10th anniversary by sending all it's employees to Disney World at a deluxe hotel in October. It scares the crap out of me (pun...
Your body doesn't develop a tolerance to 6MP like other drugs, stopping immediately shouldn't be an issue. I have before. I got tired of the symptoms and was going through a bad financial time and...
A white tongue can be normal for a lot of reasons. Usually if I get thrush I have more symptoms than just color. They'l be more like patches or sores rather than just coloration. Also you may feel...
I erased and sold that laptop before I could save what I had done....
Back when I was in the hospital they always asked me all this stuff, so one evening I made a program that i could just press a button to log various things. When the doc asked me the next day and I...