It's been years since I had been on prednisone until a very recent flare. I am on 40 mg and just tapered to 30. In the last 30 days I have packed on 20 pounds, my heart is constantly racing and feels...
I did nutrisystem awhile and was able to drop 45 pounds. Really I have learned it truly comes down to excersize. UGH. Even a little walk a few times a week seems to help. The prednisone weight though...
I do not seem to have a problem holding it in all night. Never have had any leakage. I wouldn't stress too much about it. Helk I can almost do mine while getting dressed into my pj's. The few times I...
I too am not a skinny UC sufferer. I do not consider myself lazy and workout 5 times a week when healthy. The latest round of prednisone put a whopping 20 pounds on me. I am a size 14/16. Wished I...
Yay Bootstrap! So happy for you...
I have pretty much made up my mind that I will be having the surgery. I can't be on these drugs anymore. They are destroying me. I feel it. I have a surgery consult on the 18th. Trying to decide now...
That's where I am. Second week of 40 mg pred. A month of 20 mg before that. I hate it and want off it so bad....
ActiveUCer, I do try to keep that in mind that generally people must be happy with it. They are out busy with their lives and not posting on forums. I scuba dive and like to hike. It's good to know I...
Marianne yes you have helped a lot. Spent the night reading over at j pouch org and saw many posts from you. Thank you thank you to all of you...
I guess I've been very lucky that in the 31 years I've had this, I've never had an accident. The most stools I've had in a day is 14 and that's only a very heavy flare. Hmmmm I'm not sure if I'm...
I'm new here Marianne, and thanks so much. I do have some questions that might be best asked privately if I can figure it out. I've read that so many people have problems with pouchitis and...
Thank you Activeuc, I'm finding comfort already from you and bootstrap. I will check out your blog...
Bootstrap, ah we seem so much alike. I've had the disease for so long and really I've been so lucky with not many flares. I can't seem to shake this latest one. Colon cancer scares me. No colon........
I am glad you started this thread. I am very new to this forum and am contemplating the surgery and have a surgeon consult on the 18th. I'm scared. Wondering if I should pursue it. I'm tired of the...
Food never affected my UC. I could eat anything with no restrictions. After educating myself on this forum of the different diets out there I decided what the helk I should go gluten free, dairy free...
Same here... After 15 years of asacol and Lialda I switched back to sulfasalizine yesterday. The side effects of the Lialda sure crept up on me over the years....
I have been able to get scuba dive certified, get elected twice to Mayor, hike mountains and raise two great kids..... It's seems I'm flaring more as I get older though. The scuba thing was just last...
I am taking biotin, vitamin d and calcium. I will definitely find some of that shampoo. Thank you Old Hat! I do miss my hair...
Thank you both for your responses. I've decided back to the meds it is... :( I was hoping somehow my body would be strong enough that I wouldn't need them. I was also hoping one med made hair...
For me it was just plain bad luck. First showed up in me at the age if 13......maybe puberty brought it on? I think stress caused it for me. No one in my family has it and I am one of four children....
Had this horrible disease for 30 years now. Very few flares over the years but currently in the middle of a pretty bad one. It was caused by me discontinuing my meds because of major hair thinning in...
This weekend I was in a medical office getting some cosmetic stuff done and the nurse checking me in told me I should boost my immune system and UC is tied to not enough vitamin K in my diet. She was...
My doctor explained to me that over time with this disease your body absorbs less of the vitamin D as it passes through your system. Makes sense because I have had this 31 years and only recently...
I am a 43 year old female. The short answer is 31 years. At age 12 I had a a bout of mucus and blood stools. Doctor didn't know what it was and ordered me to drink buttermilk which I could only...
I think it is a coincidence. I have been through 10 removal sessions and flare ups did not coincide. For me, the laser is very painful and I have to grit my teeth just to make it through a session...