rogo66 - I'll check it out, thanks...
The fatigue is something I wasn't expecting, and didn't really link the two until recently. It's seemes to have gotten worse since my third infusion, and it seems to be a struggle. I was always quick...
Hi guys, I've been on Entyvio for about 12 weeks, and it's still not put me in remission, and some days are worst than others, but I was able to come off of the pred. so that is a plus. Also, my...
I'm not sure on how much, but I go every 8 weeks. After my failed attempt with the remi and enticort, my GI thought it wouldn't help going any higher on the remi. My thinking here is this new drug is...
And actually the only thing that has ever stopped the blood completely for more than a few hours is predisone. I was onyl ever on it for three months when i was first diagnosed, and I think I went a...
Lol, well I am sure they work for a lot of people. Hell I've read that remicade was a godsend for tons of people, or a simple diet change, or 6mp, but I am just the lucky one where my body just...
I haven't posted on here in quite some time. I was on here off and on over a year ago, but things got busy. In the past year I've still been struggling with my current flare, and nothing seems to be...
I've only had two so far, my premeds, from what I understand, are in the IV. The first appt the checked my bp at he beginning then after 30 minutes, and checked the drip constantly. My last appt...
Weight fluctuations are very common for everyone. Day to day, and throughout the day. It depends on water retention, and what you ate. Out of curiosity, what are you eating, perhaps something you ate...
Pathogenkiller - good to see you lost weight the right way, so many people, me included, always go the starvation route to lose weight, but really its better to eat a lot of healthy foods....
I am slightly over weight, although at my worst I weighed 305 lbs, I'm down around 210 now, after three years of eatign right and working out. My UC was dx 10 months ago, but I don't believe it has...
It does sound like your under eating to me, which could be the cause of your binging, in fact I'd almost garantee it, especially with your workouts too. Right now I eat 6 meals a day, breakfast,...
How much are you eating during the day, and how often. Yes this is an addiction, and is one that will take effort to kick. First things, you have to make a point to not do it, yes I know that doesn't...
Regardless how quickly everything goes through you, eating and drinking is key, I watched my brother end up in the hopitol because he was flaring so bad he wouldn't eat or drink, sure that still...
I think it's fine, just listen to your body. I've found that nothing makes me feel better when flaring then a good workout. I lift heavy, and go hard, but I listen to my body. This may mean an extra...
Just curious those that said they were going 30x a day, was it just a case of you going for a few minutes, and then going right back in. I've always wondered this, even at my worse I was only around...
How often are you getting them, is it dailyor just every once in awhile? IF its just on occasions, the stomach aches may not even be connected to UC, just a general upset stomache...
Glad to hear you had the blood work. For me the pain would come, and then die down. It was real bad Friday, Sat I was going to take my 6MP at night so I could enjoy the day without feeling like crap,...
Sometimes Ginger Ale can mess with me, but it really depends. If I feeling particularly nauseous then for me there is nothing better, probably more of a comfort thing, because I drank it when I was...
Supps seem to work well for me, everytime I forget them for a few days I notice a lot of swelling and soreness, but once I start using them that clears right up. For me I guess you don't realize...
There is a few things for me outside of meds or food. First, the best thing I've found is a good workout, no lie. The best I feel most days is when I am working out. Whatever pain or cramping or...
I was also going to ask about Prednisone, I remeber having random hot flashes when I was taking that....
2-3x most days, I seem to be in and out of remission, well I guess not full remission, but I go a few weeks where its 2-3, then it will jump up to 5-6. but even at my worse it was less then 10x. I...
Water, water and more water. I very rarely drink anything else. I will drink the occasional Gatoraid or ginger ale, otherwise its just water/...
Although there isn't a conclusive connection between food and UC, I have learned that some foods just don't work for me. Unfortunately, those same foods may be fine for you. Everyone handles this...
I was recently put on 6MP, I had the nauseous feeling as well, then last week I developed some upper abdominal pain, but no weakness. It ended up being pancreatitis which apparently can happen to 3%...
iPoop - I don't have anything set up yet, I have to do two blood tests first, and wait for my insurance to except the remicade treatments. I'm thinking next week I'll have something set up. Let me...
The one thing I will add is, be careful coming to forums, they are a great place to get advice, I know I ask a lot of questions, but usually those who are most active are those that are currently...
Levi - Thanks, I don't smoke, quit that almost 10 years ago. Good to know that there isn't much to change. Glad 6MP is working for you, like i said only 3% have this issue with 6MP, so I am majorly...
Oh and I think my GI is starting to lean towards me having Chrons. Through all the initial testing my results have always straddled the line. He said the look of my colon had all the signs of UC, but...
Hey guys, about three weeks ago I started on 6MP after starting to flare again. In that time I was having some side effects, mostly just an uneasy feeling, like I was always on the verge of getting...
I've been in the Bentyl since August. As high as 3x a day, currently trying to keep it a just 1 or as needed, and I've noticed plenty of dizzyness from that. But the uneasy feeling is all new, only...
I've been on 6MP now for over two weeks, it seems to have calmed down my flare, no more blood, but I've noticed that instead of intense sickness every now and then, I feel uneasy all the time. Like...
Already took the test, and I know my GI said I would need to get more blood tests because of it,...
That is good to hear, when I was initailly diagnosed I was put on pred which cleared me up pretty quick. I was a good remission since November, but like I said that ended earlier this month. He only...
Oh, and I finally got a better description on the extent on my UC. My other GI wasn't in when I went last week, so I seen someone different, and they went in a lot more detail then my other guy. He...
Hey everyone, I haven't been around for the last few months, as my UC had become a lot more manageable, to the point where I was only taking my Asocol. Well a few weeks back I started flaring, and...
Fantastic...
I agree with the above poster, a lot of time I will say stomach, when actualyl its probably more to do with my colon, guess growing up I got so use to feeling pain there and refering it to my...
Mine UC isn't nearly as bad as a lot of people here, but it still can be a pain from time to time. What always motivated me was first my family, I have a 2 year old son, and would do anything for...
I also agree that it does come down to jealouse people. Someone isn't happy with their looks, and see's someone that is doing something about it, so instead of trying to help themselves, they put...
Nicecupoftea - see that is what the OP is talking about. You say that thin people don't see all the torment an overweight person goes through, and how their bullied and it just isn't right. Then you...
I think both get their fair share of being picked on, here is the difference, when someone is commenting on a person being skinny, they don't see it as a negative comment, telling someone their too...
Well here is the weird thing, last week I talked to the nurse, and she looked at the results and said I had rectal inflammation, but when the doctor called me on Monday, he never said anything about...
I think stress may have been a factor in my flare, things have really calmed down over the last few weeks, and it seems like since then, most of my issues have gone away....
Ya, mostly bright red, and not much just usually on the tissue, although one day last week the tolit water was red. I've never been told I had a hemmie, wouldn't the colonscopy or the ct-scan show...
A few weeks back I had a CT-scan to check my small intestines to see if perhaps I may be dealing with chrons. Thankfully the results showed no active signs of chrons. My GI also said that it also...
I never had a cyst until a recent ct-scan showed one in my kidney, going Friday to see what needs to be done, but that has been my only one so far....
It really depends, if candy makes you sick, then I would imagine chewing it would also have an effect, but if it doesn't make you sick, then it probably doesn't matter one way or another. Not...
Not always, and not even a lot of the time. Be careful on what you read online, usually those that are most active with posting about a particular disease are usually extreme cases, since those that...