I went in for step 1 of a two part J-Pouch surgery back in December. My takedown surgery is coming up in around 3 weeks yet I've been having a lot of pain around the area where the incision was made...
I had a similar issue and posted recently if you want to see some of the replies... http://www.healingwell.com/community/default.aspx?f=33&m=2629511 I'll be completely honest, I'm up right now at 7am...
Thanks, to give a quick update the wafer with the paste lasted through the night yesterday yet I'm obviously still weary how long it'll last. I tried to stop eating 2-3 hours before bed and drank...
I took everyones advice and ordered the items nascarron suggested today. Woke up to another leak at 8am and didn't have the new supplies yet I changed my routine. I immediately jumped in the shower &...
Wow ok this is all new information. The ostomy nurse closed my case and refuses to come back to my apartment now that my case is "officially closed". They had me using baby wipes with dial anti...
I had my operation back on 12/7/2012, for the first few weeks outside of errors made by a nurse in the hospital I did not have any leaks with bags I put on at home until several days of use. Recently...
I'm right now a little over a month away from step 2 of a 2 step j pouch operation. My 2nd step (takedown surgery) will be taking place in early March. For anyone who has been through the 2 step...
Wanted to give an update on what's been happening so far. I got a 2nd opinion earlier today from another GI who also said I need surgery. So between my main GI, this GI and the surgeon that's 3/3...
My GI feels the probiotics mixed with the current meds I'm on will do more harm then good. I didn't get into the scientific breakdown with him yet I will ask when I call the office this week. I'm...
Spoke to my GI who stated probiotics such as vsl3 would be harmful given my current condition. Should I just ignore this and try them anyway?...
All great suggestions, I really can't thank everyone enough for posting. Going to look into all of these options this week & see if anything makes an impact....
Wanted to start with VSL 3 yet I'm not sure which type to take or how much to begin with http://shop.vsl3.com/vsl3-c2.aspx I don't have an issue taking pills, I just want to know how people...
Seems to be sold here... http://shop.vsl3.com/vsl3-c2.aspx I just don't know which one to buy or how much to take My GI is not very helpful, anytime I bring this stuff up he says it's a scam and a...
Thanks I appreciate all the input from everyone. I've setup a consultation with a surgeon for next week yet I'm still very much on the fence about having this operation. Someone had mentioned vsl3 &...
Thanks for all the support. You're right, the diet probably needs more then 30 days yet the fact is I had an extremely difficult time staying on a diet as disciplined as the SCD diet. When I had a...
Hey so earlier today I spoke with my GI who informed me I am a candidate for surgery for my UC. I have been on asacol, tacrolimus, 6mp, remicade, cortifoam, enemas, the list goes on and on. My...
I am currently on 100mg of 6mp, 3mg of tacrolimus and will be starting remicade next week. The day after my 2nd infusion I have a trip to California planned and I will be there for close to two...
I read through everything and definitely need to make some changes. I would love to start a food journal and keep track of everything. My issue right now is that given the high amount of prednisone...
I have not tried the SCD diet or probiotics. I brought up both of those methods to everyone of my GI's and they all immediately dismissed them as a possible method for treatment. I read through books...
We spoke about remicade yet I'm 24 years old. My doctor claims there is an increased risk of developing cancer when following 6mp with remicade with patients in my age group. Can you explain more...
I've been dealing with a severe UC flare since January 2010. I've been through 3 different GI's and it seems the only medication that keeps me functioning is prednisone. I've been through asacol,...