I've been on Remicade now for almost two years. I have been in complete remission since about the third infusion. Admittedly I have to have infusions every 6 weeks and I get 1000ml (which is the max...
Personally I avoid caffeine always as it is a stimulate and can activate my flares like that. I also avoid beer like the plague. I also just think its a good healthy thing to eliminate those from...
Often times the bills are based on what the hospital might charge an insurance company because the billing department is trained for that. The reality is you have the power to negotiate your own...
Any suggestions on how to do that properly? I tired it twice, once inside of cookies and another time inside of a cake. I did not feel the effects either time and didn't feel like it had quite the...
I have never smoked cigarettes a day in my life. I haven't read the smoking thing before but I have always believed stress to be a major trigger of the disease, so that might lend credence to your...
Cassidy I have had UC for 16 years now. developed in my early twenties. It's no picinic but if there is something I wcould tell my younger self it would be to not drink alcohol ever, and to cut out...
It might be but with so many states legalizing it for medical purposes maybe they will recognize that. I am not advocating recreational useage here. it is a very real medical thing with medical...
Hello all, haven't been on here in a long time. I have been in full blown remission for a year and a half now and can't believe how much better life is. I have had severe UC for 16 years now. Up...
NiceCupOfTea said... What i'm against is the propagation that is the vaccine industry pushing so many parents to get themselves and their children vaccinated, when really, we all have a choice to be...
JJ-3 said... @ Butte1 - In my opinion, it would be more devastating to lose a child to a sickness that is preventable by a simple vaccine. Just knowing it could have been prevented would be horrible...
JJ-3 said... @ Judy2 - I spoke with my dr about why my first child needed a chickenpox vaccine.... It seems like such a harmless virus. He told me about one of his patients (a 2-year-old) who died...
I have remicade infusions every 6 weeks. I have benedryl before every treatment and I am fine afterwards every time. The bendryl makes me a little sleepy while there but I just go with it and take a...
Halo, I was on the same road as you, my doc had basically given up and wanted to slice me open but I wam not ready for it despite how bad I was.... well they increased my remicade from 5 to 10 and am...
I am for vaccinations that have a long history of success and proven to have little long term side affects. Measles, mumps, rubella etc..... I peronally find certain vaccinations unecessary. I...
I've had stomach pain, left side pain, lower intestinal pain. Alot of the pain comes and goes, sometimes it's a dull ache, sometimes it's a stabbing pain, sometimes it's cramps. After a while and...
Are you on any other meds for any other things, like for instance high blood pressure. I ask because there are alot of meds that can lead to a chronic dry cough and if you do develop these...
Max, I have been taking slippery elm recently. I buy it in powder form from my local natural foods co-op, a place called "Basics". Anyway am I not buying "pure" slippery elm as I don't think it...
Boy tough to say, honestly those can be symptoms of your flare, symptoms of the flu, or even side effects of literally any of your meds. Either way I'd be calling your doctor asap.... I know that...
ipoop, literally none of the stats were lost on me that you mentioned in fact none of them have to do with quality of CARE one receives in our healthcare system. They do point to the fact we are a...
The life expectancy stat is beyond moronic is not even remotely a useable statistic in quality of care in the healthcare system. My goodness gracious, you'd think people would know by now that there...
Health insurance is vastly misunderstood by most everyone. In fact insurance is vastly misunderstood by most everyone. #1 and this is first and foremost the biggest reason behind the...
At 10billion you aren't close IMHO but let's remember drinking too much water can kill you as well. Technically EVERYTHING is toxic at some point but as mentioned above I don't think your close to...
Honestly, Thanksgiving is my favorite holiday. Tradintionally it is also a day that I "take a holiday from my UC" and eat mostly anything I want. I won't be drinking soda or alcohol but other than...
I've had one, it's no big deal. I was a negative, most people are.... My wife is a hosptial nurse and has to have them once a year. Truly not a big deal, wouldn't worry about it one bit...
The cost of those Humira pens and the purposeful destruction of them would likely warrant a felony in most states. I agree, call police. I also agree with the other poster that you should call the...
anyone?...
Apparently there are some new treatments they are doing/trying whereby using donated umbilical cords and using stem cells to regenerate the intestines and stomach. They are using it for Crohns...
I agree with kletter, but then again I was diagnosed after I was already married and I am still married so my wife has been with me in this journey from day one. I wonder how I'd feel if I had to...
Somedude said... Let the daughter drink Coke. If she likes it, all the best. SO far none of my kids have any health issues except my one son has fall hayfever, other than that healthy (knock on...
fruitgirl said... I don't really think Remicade is like that, nor any other UC medication. Sure, if you have underlying food issues, then you should still probably avoid those foods when on Remicade....
Somedude said... yeah that is annoying, not being completely normal. At my infusion place, there's people on remicade for UC and they said that for them it works so well, they can eat anything no...
garylouisville said... I wouldn't split the daily dosage at all. All of the doctors I have ever had say it is best to take the whole dosage at once and that the morning was the best time to take it....
My poop is almost permanently coffee ground like anymore. You should talk to your GI BUT chances are it's just the way you are processing food, it's probably flare related. Alot of us have flares...
The satchets have 900billion in them whereas the pills I think are only 225 billion but also the satchets work a tiny bit differently too as I understood it. So I think you are taking too much too...
I only ever had tylenol and benedryl with my infusions. Not sure why the corticosteroids??? I wonder if it is the steroids making your heart race? I never suffered any side effects from Remicade...
Usually get the urge to go around 5:30am and it's usually brown sludge. Then go back to sleep til around 6:30am when I get up for work. Usually go twice more over the course of the next hour. Go to...
While nothing is absolute and every is different I honestly think there nothing to be scared of and it is HIGHLY likely you will feel great within a day of your first infusion and you'll wonder what...
I was on Azothioprine and it started making me feel like a 90 year old man. My joints ached terribly, felt nausea etc... doc said to get off them immediately. I felt fien within two days of being off...
So I went out and bought some slippery elm powder last night. I also bought some B12 5000mg vitamin supplement. I am starting by taking 1 teaspoon of the slippery elm powder at night before bed. I...
So regardless of what I end up doing surgery wise I really need to get off the prednisone. It's starting to eff me up. My normal BP is 110/70 and the last two have been around 126/94 and we did labs...
notsosicklygirl said... How have you been getting steriods if you haven't been tot he GI in 15 years? I personally would prefer a j-pouch over long-term steroid use but it's a personal decision you...
I do need steroids on a more frequent basis to keep me in remission and the biologics have been failing me and we've tried everything else. His reasons are that he is starting to become very...
Went to teh GI today. For the first time in 15 years he was pushing me hard to get my colon removed and egt a jpouch. I'm highly discouraged with this news. I actually thought I might be on the road...
I tried Aziothioprine and had some sever immediate side effects, the main one was within days of taking the medication my joints began hurting immensly and I started feeling like a 90 year old man,...
I take the VSL#3DS in the powder satchet form (I think the DS only comes this way and is not available in any other form).... ANyway I mix it with a small glass of lemonade and actually find it to...
As pink said it's another variation of a biologic. It's more like Humira than Remicade though. Injected at home with plunger syringes in either your stomach or thigh. It is not technically approved...
Everyone is different. Back when 20 is all I needed to get things under control I had to taper slowly by 1 mg so as not to have things flare again. If I went right from 20 to 15 boom symptoms return,...
SOmetimes when I am flaring I can feel my some pain under my left ribs. My GI told me it was part of my colon on that side and that it was because of the inflmmation etc.......
Humira is really a "pen" not a syringe style needle, you don't even see it when it's injected. The humira pen shots don't hurt at all in the thigh and just a bit of a pinch if you do it in the...
Evry once in a while I succumb to some libations. It's fun, it's social and I pay for it everytime..... it always activates things whenever I am feeling good. I should know better but gosh darn it...