Glad "pb4" that you're doing okay. I do feel VERY blessed that I'm doing well. I'm able to have wine each evening and able to eat well....which is terrific while you're away.....and as a result, I've...
Thanks, again, pb4. We're leaving to go on a long trip this week-end. I need to take 2 pens with me as I'll need to inject while away. I do have the "to go" bag....but, those ice packs are only good...
THANKS "pb4" for all your help in telling me what to expect and what to do. I am doing fine and have received the package, etc. that you wrote about. I inject on my thigh and put ice on before...
Whathe66.......I sure hope you're feeling better. I have been the Humira for a few weeks now and have been good....no reactions. I feel VERY blessed. I get calls from my "ambassador" to see how I'm...
Okay.........I am going to start Monday with Humira. I'll do the initial 4 injections...ouch!! Going to the doctor's office. I wonder if I'll have any reaction Monday?? My husband will be with me...I...
I am still waiting for everything to get approved. Seems to be a bit of confusion. I'm doing fine with 10mg of prednisone. Actually, not looking forward to the 4 initial shots and the routine to...
AGAIN, Thanks "pb4" for your quick response. When I go to my GI next week I will ask about some package and more info. I will see if I can get contact info for Humira. I'd like to know about travel....
Thanks, "pb4". I have an appt. next week with the GI to receive my first doses (4). I will see if I get a package like you described....or even get a package. How do I get in touch with Humira to get...
Thank you "pb4" for taking the time to write me the details. I really appreciate it. I've heard that putting ice on the area prior to injecting is a good idea. I believe I will have my husband give...
Thanks, "Cactuar" for your honest response. So, the initial dose is 4 at the SAME time...gads!!! Was it awful and painful and what were you like afterwards? When did you "just start"? I read about...
Has anyone been on Humira and not have any problems? I'm going to start it next week and am so nervous after reading what I just read on this site. Thanks Nanaone...
I am now going to start with Humira. Not looking forward to injections! Can anyone give me some hints, insights, results with this?? Thanks lots. Nanaone...
So very happy to know you've had no problems!! I am now down to 10mg of prednisone....off of everything else (Apriso, Ucersis). I feel terrific and am so concerned about starting Entyvio. But, dr....
I have not had any side effects from the prednisone. I've gone from 30mg-20mg-10mg-5mg and then off. I AM VERY worried about the side effects from entyvio. Can't afford weight gain...or any of the...
All the blood work, etc. are now finished and the next step is to start. YES, I am very nervous........ Certainly not looking forward to any side effects...don't want to gain any weight...or any of...
Thanks everyone for getting back to me regarding entyvio. I am in process of taking ALL the MANY tests and shots before starting. Needless to say, I am very nervous about starting. I have been VERY,...
Although I have been fortunate in that I haven't had major flare ups....just blood on the tissue. Been onApriso, Uceris, canasa, and prednisone. When blood occurs, the pred is the only thing that...
I'm going to ask about Pentasa. It has mesalamine as does Apriso. No fun taking Canasa....been there, done that, too!! Prednisone always works....but, can't be long term! We are taking a long trip...
I've been on Apriso with good success. I may change now to Colazal...insurance purposes. Can anyone who has been on it tell me anything I should know. Thanks Nanaone...
I've been on pred and have lost a lot of weight. I am now tapering off and will be off of it as of Saturday. The weight has stayed low all this time. The dr. said it's the pred and it may increase my...
I've been on Apriso, with good success, and now I may change to Colazal. Insurance reasons. Has anyone been on Colazal and what can you tell me about it. Thanks Nanaone (I added a subject)...
Having had a slight flare up a few weeks ago, the dr. put me back on pred (20mg). I was also on Uceris (which did not work). I take Apriso everyday and have been on it for a while. The pred did work...
Goodness! I sure hope you're feeling better! When and if I do have some wine after I'm off the pred.....I'll start with just one glass! 4 glasses is certainly too much! I haven't had any alcohol...
Thanks for all the info. I see there are many opinions. I will not have any wine/vodka until I'm finished with the pred. Then, I will have an appt. with my Doctor and I'll ask his opinion. I sure...
I'm not in a bad flare and it seems to be easing.....no running to the bathroom and little blood. The pred seems to be working....also taking Apriso. Having read all these comments I see mixed...
Good to know that you all have not had a problem with alcohol. I heard that when taking pred you should stay off it. Anyone on pred and have alcohol? MAYBE I will try it. I miss my "cocktail hour"...
I have UC and am taking Apriso and pred. I was diagososed in June. I was told that I should not drink wine and/or alcoholic beverages. Has anyone with UC and on meds enjoyed "cocktail hour" and if...
Thanks..I will look it up. I had to do a stool sample yesterday. I wonder if that was it....
Can someone explain what this is about. How it's done and what does it show?? I have UC and am wondering about it. Thanks NanaOne...
JUst now took my first dose of pred...30mg. I've a call into the GI office and want to know when I can lower the dosage. Still on Apriso and will stay on it. Don't know about Entyvio...I'll ask him...
Yikes! I'm not encouraged now about returning to pred after reading what you said. It worked well after I came home from the hospital. This is my 2nd flare and it isn't too, too bad. Just seeing...
PLease tell me what the fecal calprotectin test is and how and why it's done....and what the results tell. Thanks NANAONE...
I was seeing more than blood on the tissue this morning. Called the doctor and he's putting me back on pred...which I'm not happy about. The Uceris didn't seem to be helping. Brought stool samples n...
Well, it's back to pred...30mg. The Uceris didn't seem to work and there was more blood this morning. My GI now wants me back on Pred. I dread the side effects.....I'll start tomorrow AM. NANAONE...
I was diagnosed with UC last June. After leaving the hospital I was put on prednisone...going from 30mg down to 5 and then off. Now, I'm on and will always be on APRISO. All was good until recently....
I have blood on the tissue after I go. not in the bowl. I am bringing stool samples tomorrow. I've been on Uceris about 9 days and see no improvement. I was diagnosed with UC last June. Been on...
I was diagnosed with UC in June. I was in the hospital to get it under control. Then I was on prednisone...went from 30mg down to 5 and then off. All was well, until recently. I am on APRISO and was...
thanks....good advice. will do. avoiding many high histamine will be HARD....especially wines!!! right now, I have started to eat more foods and bigger portions. The weight gain will return! But, as...
I am taking a probiotic as well as multivitamins. I have no idea as to histamine intolerance, DAO digestive enzyme, etc. Is this something I should ask the dr. about? How does one buy DAO...is it a...
went for my follow up visit yesterday...I'm out of the hospital about 10 days. Easing off the pred..now on 20 and easing down 5mg per week until I'm off. Of course, will always be on Apriso. Starting...
Thanks for the info about Remicade. I'm nervous as to what will occur when I'm off the prednisone....and YES....I WILL be taking the Apriso forever...no problem. Have you been in remission....any...
THANKS. I am having a follow up visit with my dr. today and I will CERTAINLY mention Remicade. Are you taking BOTH...Apriso and Remicade both everyday? I will take the Apriso everyday for the rest of...
Has Apriso kept you in remission....have you had many flare ups? I've not been on Remicade....just Apriso and predisone. Have you had to avoid alcohol altogether? We like to travel and now I am so...
YES, I have been on APRISO for about 3 weeks. I am also on prednison..starting with 30 mg and weaning down to 5-10mg. This is all brand new to me....having been recently diagnosed with UC and was in...
what is AZA? I am new to this. Been on pred and am weaning off from 40 and aiming to stop at 10. Also taking APRISO. REALLY FRIGHTENED about what lies ahead. Been in the hospital to get it all under...