Db, I did not get a GI who works on referral as I made the appointment not my primary. He is not just diagnostic either. He is part of a group of GI's that is nationally recognized. As for implying I...
Cita, Sorry to hear about that, I know how discouraged you feel. Hang in there. I am surprised you are off of your orals. I was under the understanding orals were for a long period as they keep the...
quincy, yep, this is the doc that originally diagnosed me. I met with him for a initial appt. then scheduled the c scope. He told me the findings while still foggy from the scope and I do not...
So finally got my letter to summarize the results of my c scope. Biopsies confirm ulcerative proctitis do not know where. The original findings I was given the day of my c scope said ulcerative...
thank you all for the great ideas. I believe I am done calling the gi for help. First thing they said was miralax. As they do not want me straining to go. seriously!!!!! Even called it in to the...
kazbern, you were right just hung up with the nurse and the doc said to use miralax. Kind of nervous about using for long term if need be. Would really like natural so I think I will try one of the...
I called my doc to let him know about the constipation(in my earlier post) but got the nurse. She started reading my chart only to figure out it was a note for a different patient from another doc....
just hung up the docs nurse. To discover that the ulcerative procto sigmoiditis was in the rectum 25cm. She does not feel I am flaring but has a note to the doc to see about something to get things...
Hi everyone, I have been off of my rectal meds for 6 days. No blood but I am constipated. Not to the point of not going, but really hard stools. Any suggestions to get this to end? I thought I had...
Thanks, Like I said I will give him a call first thing Monday. I was hoping it was the additional fiber I had added to my diet per doctors instructions. I think I should have added more gradually....
Well I have been off of the suppositories since thursday night. The only difference has been constipation. so lots of water and more fruit(apples). My doc is the one who took me off after 14 days....
I am guessing I would need my doc to prescribe? Or would staying on my cort suppositories and tapering be ok? I do have a refill on those....
Thank you, Wonder why my doc did not say anything? Of course I have not heard from him since the c scope. Justing wondering why most are on enemas and not suppositories? Does one work better than the...
I have finished 14 days of hemril cort suppositories. Will be staying on sulfasalazine 2/day and folic acid, probiotics. My stools are formed but pale and today no blood. I do feel as if I am...
Hi Cita, I am only on 1 suppository at bedtime. and taking sulfasalazine 2/day with folic acid. I feel so much better. My bleeding as far as on the paper is gone but still see red on stool. Stools...
Cita, Thanks for the update, I was wondering how it went. Glad to here you are trying something else. I say you know your body best. Sorry to hear the doc is retiring, hope you are able to find...
Just wanted to say that as newly diagnosed with UC I have not changed my diet at all. And I do take my meds oral and at this time rectal. As well as probiotics. It is working for me!...
Thank you both for your help. I will definitely continue all meds until I meet with the doc. I am hoping a face to face will eliminate most doubt and questions. I really feel he is not a bad doctor...
My doc sounds a lot like yours. Maybe it is protocol not to let us know.LOL! Mine too gave me meds and told to eat fiber. It was all in the handout given to me. I can not help but wonder if meds is...
bananagirl, Just wondering if you were doing ok why did they put you on mesalamines? It appears you are not on prescription right now. Is this correct? I do not want my symptoms to get worse. And...
I have been reading through alot of the threads and this has made me wonder about mu uc diagnosis. I did have bleeding and urgency to go about 7 times a day. And was afraid to be away from home or...
InSoFla, My "doctor" did not do any blood work at all. I brought in a copy of blood work that had been done 6 months ago. He thanked me. the only test he has done is the colonoscopy and biopsy. Which...
soystud, I am currently on proctocort supositories, sulfasalzine and folic acid and probiotics.I had a colonoscopy on oct 2. was told it is in the lower 1/3 of my colon. still bleeding with bowel...
I noticed i was feeling less flu like and achey within 2 weeks of taking. I was told if I did not feel any better by the end of the bottle then it was not strong enough. But it has definitely helped....
just want to let everyone know about a supplement my chiropractor gave me for all the inflammation going on with this. It is called pro-enz by anabolic laboratories. It has alot of the ingredients...
Great! So how do you go about finding a doc that is right for you? and how do you know if he/she is good?...
Cita, Good luck! I will be praying for you. I live in wisconsin and you would think it would be easy to find a great doc. but seeing as i know no one from here with this I am finding my way through...
I was told that antibiotics can cause UC by my doc. But I am seeing people post that they are given antibiotics to get them over a flare. I am confused as I was on 900 milligrams of augmentin for...
Just a thought but I have noticed that in all the threads each person has a specific diagnosis. Not just generic UC. I remember when the nurse and the doc spoke to me in the after fog of my c scope....
Thank you so much Cita, You have helped me alot. I was thinking I needed a second opinion even though this group is suppose to be tops. I did not know if I could go somewhere else without the...
Thanks cita. I feel like i am missing something here. My Dr. has not told me much at all. in fact when I called the office after picking up my meds to ask questions. The nurse answered for him. I...
Thank you, I will put a call out to the Dr. tomorrow. this forum has been a God send. I have no one to talk with about any of this. Seems alot of you are on the VSL#3 is this probiotic better than...
I thought it could be the colonoscopy.if it is from that how long before symptoms subside usually?...
So, started these meds ,proctocort supositories, sulfasalzine and folic acid on October 4. And honestly my stools are worse than before the colonoscopy and meds. How long before I should see any...
It is tetracycline and levaquin I am allergic too I called to double check. And had to apologize for my senior moment!!!! I do thank you for your concern. All is good....
started meds yesterday. Just waiting and praying for the best....
just found out the meds I have been given. proctocort supositories, sulfasalzine( which scares me and am not sure about taking.) Folic acid. I have a sulfa allergy and am concerned that sulfazalzine...
It is so helpful to hear that someone else was diagnosed without the normal symptoms. Have you found it easier to control having found it early? I hear about flare ups and am wondering do you just...
Fruitgirl, Wow congratulations. I thought he would want a follow up visit. I did ask if I needed to schedule and was told no. I guess it is time to call the office and make him answer questions. Not...
Adam, Thanks it helps alot to hear from someone with a positive outlook. I have had to put my life on hold everyday and just want to not have to wait til I know I have a window of time to run to the...
one more thing. I keep reading that the main symptom for UC is diarrhea which I have not had. I actually have small round solid stools several times a day. And within 20 minutes of eating usually....
Well thought I had a good Dr. But some nurse I have never meet gave me a call this morning to see if I had any questions before 7:30 am! Was just hoping to hear direct from my doc as explaining to me...
thanks for the quick response. When you say remission does that mean you do not have to plan your day around finding a toilet? That would be great as I have already not made it to one in time more...
Hi everyone, I am new and really confused. I was told after colonoscopy i have colitis or as the nurse said "we are calling it ulceritive colitis as well as one divericular pocket. the strange thing...