I had a partial blockage on Thursday. The blockage passed with some pushing on the stoma. Now I am dealing with my whole small intestine tract being so sore and painful that I cannot even ride in my...
Last night I ended up at the er with a blockage. I had not had any output for six hours, was nauseated and in severe pain. They gave me. A bag of fluids and pain meds. My stoma was triple the size...
My heart goes out to him, his family and friends. So very sorry! May he rest in peace....
I also had the bladder problem. Even went to the doctor because I thought I was getting a bladder infection. Drink plenty of water and take the time to empty out. It did get better with time....
I eat salad a lot also. I do take the seeds out of the cucumber and don't eat the carrots. But have not had any problems with anything else. Like all foods try just a little and see how it works....
I have a question that I am not sure is related to my surgery or not. I am eight weeks and a few days post op. I have a permanent ileostomy. Everything seems to be going good, but about four weeks...
Hi Liz, I am so glad to hear you are doing well. I hope everything goes well at work....
Hi, I am six week post-op this Monday. I to had an anal closure. My stitches did sort of come apart according to my doctor. It was leaving me with some discharge on my back end that created a pretty...
Hi, I just had my surgery June 17th. I am doing great now. I don't even remember I have the bag sometimes. Don't get me wrong the first few days were hell, but if I had to tell you anything I would...
I am almost four weeks post op. I pretty much eat anything I want. I have not had trouble with anything I have eaten. Just remember to chew, chew, chew. I was staying away from salads and tomatoes,...
Hello Everyone, I just wanted to tell everyone that wished me well that things are going pretty good. I went in the hospital June 17, and was released June 20th. I thought is was a little soon as I...
Liz, I have to say I just love your posts. I like the way something goes wrong and you just pick yourself up and go with it. You are truly inspire me. My surgery is Monday and everytime I start to...
They said I have to call the Friday before. She said it is scheduled for 11:30 and have to be there at 9:30 a.m. What time was yours scheduled for? Are you glad you did the surgery. I mean is the...
Thank you so much for your replies. I am having the permanent Ileostomy with everything removed and butt swen shut. How many days were both of you in the hospital? I do not return to work until...
I am in the home stretch. I had the appt. with the Ostomy Nurse the day before yesterday. The stoma is marked and in place. Kind of freaking out at this point. I keep reading all of the posts...
I reached my end with this also. I am scheduled for June 17, permanent ileostomy. I hope to be one of the lucky ones that wake up feeling better then when I went in. This disease plays on your mind,...
Permanent Ileostomy in 23 days. I don't know what to do? I am having severe stomach pain right below my ribcage in the center of my adomin. It does go into my lower abdomin on the right side...
Thank you guys. I am having a permanent ileostomy. Remicade has worked for about two in a half years, but I am maxed out and my symptoms show up about five week out. I have been dealing with UC for...
Well today is my last Remicade infusion before surgery. My surgery is June 17th. Starting to move into the home stretch. Not sure what to think? I am in a way excited, but really scared at the same...
Sara, If you don't mind me asking, where did you have your surgery done? Did you have to go into the hospital the night before surgery?...
I was wondering the same thing. I am having my permanent ileostomy done on June 17th. I have been reading a mix of people having to do it and not having to do it. I did read one post that said you...
Probiotic, It is a very lonely decision. The crazy thing is you know there comes a time when the decision has to be made and then you start second guessing yourself like crazy. I had my remicade...
I just wanted to say thank you to all of you for your encouragement. This is a very hard decision even when your quality of life is not the best. My doctor called me back on Friday and told me my...
/community/emoticons/shocked.gif I put a call in today to schedule my Perm Ileostomy Surgery. At first I talked about it like it was no big deal, went and seen the surgeon and now called to make the...
I have my blood drawn once a month. I do take 6000 ml of vitamin D3. I was just worring because I don't want them to tell me I cannot take the Remicade anymore. I am speaking to a surgeon on Feb. 14...
I viewed my CBC on my hospital's website. My hemoglobin is a little low but my platelet count dropped to 72 from 94. If it was concerning, I am sure my doctor would have called. Anyone have this...
When I am having a flare like that I like to eat chicken, rice, mashed potatoes. They seem to help. If I am feeling sick to my stomach, I will eat salt it seems to help the nausea subside. Everyone...
Lmao! I love the ex-lax idea....
1) How do you prepare to hike / walk if you don't know where the bathroom (if any) are? I also drink pop in the morning to make me use the bathroom. I would take TP and wipes just in case. Have...
Thanks guys I appreciate. Sorry scum1, I did not mean to rain on your parade!...
It was two years August 28, 2010....
I could not agree with you more. Can't do that stuff in the US anymore. I work for a school here in the US and we have an officer on site. Even when the kids are 16, they press charges against them...
After my 1st infusion, I felt great the following day. Not so much the symptoms, but just more energy. Remicade does take down your immune system, so you might have picked something up. I would give...
THank you Fruitgirl. It means a lot....
We are in the process, but whatever no amount of money is ever gonna fix it as as far as getting the doctor up on charges is pretty much non-exsistant. Long story short my son was a wrestler. Another...
He took his own life do to the misdiagnosis of a doctor. Ran out in front of a Semi on 75 in the middle of the night....
I have never really been against tattoos, always thought they looked better on a man as opposed to a woman. I did let my 17 year old son get a tattoo. Before I knew it, he had two. They could both be...
Had the flex yesterday morning. Doctor says in a pretty bad flare. Keeping me on 40 ml of prednisone. Says he will probably increase the remicade when he gets back the biopsies. Went on to say some...
Yes, Canasa. They called me in a script for those as well. Hope to know more tomorrow and get to the bottom of this mess. Gosh, this stuff can really make you depressed....
I am on 40 ml. I am having the flex done tomorrow morning. They are also testing me for c-diff and this other fecal test that shows inflamation in the bowel. Have not had that one before. Ususally...
Hello Everyone, Just looking for a few answers where to go from here. It seems my remicade has stopped working. I have been having blood and mucus between infusions. I thought my doctor would just...
It sounds like hand, foot mouth to me. I work in the schools and we seem to have a lot of that going around. You might want to go to the doctor and possibily need antibiotics....
I am so sorry for your loss. Your story brings me to tears. I would seek the advice of an attorney. This was not your fault. We take our loved ones to professionals for a reason, because they are...
Sue, I see you had the J-pouch surgery. Is that something that your doctor said you must have or did you decide that on your own. Are you glad you had it done?...
No, I have not had any tests for Crohn's. I was always told UC does not turn into Crohn's. I am waiting to hear from my doctor today. They are scheduling me for the colonscopy. I do think the...
Here I am again asking for help. Long story short, have been on remicade for over a year. Between infusions I start to see signs of uc returning. (bloody-mucus ect.) I have also been experiencing...
I have been on remicade for a year. Worked pretty good up until about 8 months and then I started to show symptoms. I informed the doctor and he checked my remicade levels before my just past...
My infusions are every 8 weeks. Do you think it is going to take a few days and the remicade will start working? That is what I am hoping. Since I just had the infusion, do you think they will put me...
Long story short. Almost a year on remicade. Started having some weird side effects a few weeks before my infusion was due. Sick to my stomach, abdominal pain some blood and mucus. Had my infusion on...
Today is the day to feeling better. I am making an appointment with my GI as soon as I get done with work for the summer. Today had blood and feeling horrible. I know there is a light at the end of...