I had to practically beg my doc for him to prescript me some enema. Told me enemas weren't necessary because of the oral med. He really wants me on remicade because imuran and lialda are not putting...
So, no one else has tried or is trying ccherbal? I'm skeptical about this kind of stuff, even more skeptical because the few successes seem suspicious....
About 2 weeks ago I had my first accident. It was at work. The urge came. I quickly went to the bathroom but the cleaner was busy cleaning it. Minor panic mode began as I sped to the elevator for a...
I was on pred for 2 weeks back in December. I started at 40mg. I regret not taking pred sooner because my symptoms (urgency, blood, diarrhea) have mostly gone away. While on pred, I had a hard time...
Oh god, I've had those dreams. You people are funny about not going without your smartphone. I use my phone as a flashlight, but I would not dare to search for the phone when the urge is very strong....
I, too, have proctitis. I started pred at 40mg and the blood/cramps/etc. reduced significantly in a couple of days on pred. I remember people saying pred loses its effect after a while, I hope that...
Congrats! Always feels good hearing stuff like this....
Pink1- what made you stop azathioprine if it was working for you? For those who has/had azathioprine working at a certain dosage (ex. 100mg), could you tell the drug worked even ever slightly at a...
Somedude- before I took prednisone for 2 weeks in December, I was seeing blood every freaking day for more than a year, but this is not a race to see who has it worst in life. You have it worst. I...
So, I've been off prednisone close to 2 weeks and in the last couple of days the symptoms are gradually coming back... leading to the dreaded blood this morning :( It wasn't a lot, and by no means...
Serenity Now, same here. I'm not a football fan (actually, not a sports fan is more accurate), but it's nice when the local teams win because of the excitement I see in friends/colleagues....
I take ibuprofen for back pain but that's about it. I'm curious about this, too. Usually, with cramps, I just endure the pain....
The first time I applied for free Lialda, there were some issues which delayed the whole process to longer than a month before I received the pills. When I had to renew the next year for free Lialda,...
Mattcs- thank you so much for the info; I feel a little reassured now. I think I will report my new income once I'm at the job and hopefully Shire will still assist me....
I forget how the savings card work. I have been getting free Lialda through ShireCares, but I will start a full-time job in the next week or so with a not so great health insurance plan. I will be...
Strange, I just finished my first course of pred the other day, starting at 40mg. I didn't notice any side effects. Zero. I was/am very surprised by this fact considering most of the stuff I hear...
Gavriel- I understand what you mean. Although, I'm not on any specific diet at the moment, I do consciously stay away from certain foods... but now on the pred, I'm like eating whatever is in front...
Geez, I'm sorry to hear this. This sucks for your daughter and it sucks for you. I hope something will work for her soon....
Haha, soystud- you are right. It's my personal goal to post more here and in other forums that I lurk a lot more than post. Yesterday was my 1st 40mg pred. Last night, I had to wake up to pee (which...
garylouisville, yeah, I guess you are right. I try not to doubt my doc too much, after all he is the one who went to medical school. I do feel, however, I should get more from my visits than what I'm...
Sir garylouisville, thank you for responding. I just came back from the doc. He wants to increase my Imuran from 75 mg (1.5 pills) to 100 mg (2 pills) a day. He also wants me on a 2-week course of...
I'm confused about something. Is pred only taken to get a quick relief from a flare before the effect of new drugs kick in? Is it logical for me to start pred with the hope my stubborn flare will go...
I can see soystud's posts fine. congrats on being in remission!...
it feels weird seeing a post celebrating being off pred, while I'm exciting to be put on pred soon to stop my flare....
So, it looks like I should stock up on healthy snacks for the pred munching sessions. I have back pain and some joint pain. I hope pred will not make it noticeable worse :( It's funny, many of the...
Seattle Kevin, how does it ruin your body? Your bones got weak and brittle? Do you recover after you are off the pred? Btw, where in Seattle are you from? I'm from the Beacon Hill area....
this is off-topic... I learned recently that a guy I work with has a J-pouch because of UC. And another day, I was stuffing envelopes as a volunteer at a hospital with 2-3 people. One of them, an...
I'm seeing my doc next week about going on prednisone (he had suggested it in the past). This will be my first time on it. What should I anticipate from pred? One thing I like for sure about pred is...
I also have 3 bathrooms in my house. Man, recently I stayed in a cabin with 8 people. We had one bathroom (with a shower). I don't think I need to say it, but I was sure anxious about needing to go...
Yeah, I don't mean this to be a "I'm thankful I have UC" thread. Who in their right mind would want to wake up with cramps, always scouting for bathrooms, having to get up at 3am to go the toilet,...
So, I think about UC a lot. Usually it's about how crappy it is. Recently I was thinking from a different perspective. I was notoriously late every time for every appointment/meeting/etc. Now I'm...
Speaking as a guy, us guys can be sympathetic, too :yeah: I have guy friends and acquaintance in their early 20's, and although I don't think they really fully grasp how much UC makes me feel...
That's great for you. Here is to hoping pom and walking are the tickets to a better life for you. UC is a strange beast. The other week, out of nowhere, I was having constipation... after months and...
I say there should be a policy to never believe anyone who says 'it tastes like chicken.' If I was saying this to someone, I'm pretty sure it's because I'm making a joke or I can't think of what to...
I've been taking Azathioprine since May and I don't notice any side effects. I say be aware of the side effects, but don't freak out about them... this mentality is something I'm working on atm. I'm...
Man, Somedude, you make your ordeals sound so entertaining. I'm so sorry. UC sucks....
Thank you, Katie, for the quick reply. I've decided I won't try this until tomorrow after my class exam (don't want any surprise symptoms before the exam). Okay, I will do this and keep everyone...
In the last months, the moment I moved my body to get up, I would need to dash to the toilet asap. There was always this fear that I would need to go again right when I was heading to the car....
So, I spent some time last night reading about the spinach/sunflower seeds on this board. I'm cautiously interested in the diet, going by the success stories. Has anyone given this diet a try and saw...
Thoreau, hang in there. We are around the same age and I also don't have an SO. We'll find our lovely ladies one day. Or she'll find us....
I started azathioprine last November. My most recent cold started 2 weeks ago. For 2 days I was so weak I stayed in bed all day. Now I feel body is getting better. I don't remember feeling so...
Thank you for all your responses. I feel bad for not responding more, I'm more of a lurker. In fact, I visit this site everyday but I prefer to just read others' posts. I still feel hopeless about my...
That's interesting. Do you think he realizes it? If he does know, you think help might be uncomfortable having you as a patient. I would think not, considering he is a professional, but you never...
I am feeling hopeless and I'm very afraid of my future because of UC. I am taking classes to get into nursing school and my grades should be competitive enough, but I fear this career choice is not...
I'm sorry to hear. This disease sucks. Symptoms feel so random. Today was the first day of class and instead of worrying about school load, I was busy imagining and planning my bathroom routes :(...
Thank you for the replies. Xeekk, it's good to know the pain travels to different places. I was thinking hard on possible physical activities that may have triggered the wrist and leg pain. Kazbern,...
Hi. This morning I woke up with severe lower back pain :( I started noticing the pain since July. And now I'm noticing pain in my right wrist, legs, and neck. Does anyone have suggestions to reduce...
Thanks, bootstrap. I feel tempted to use my expired Proctofoam now. It's funny because I gave up Proctofoam after a few tries because I didn't find it comfortable and it gave me a hot sensation, and...
Thank you so much for the tips. I'm seeing my GI tomorrow and I'm planning to request an enema, so it's great to come to this forums and read about someone trying out an enema for the first time :)...
Thank you, Sherry. I will make mention of this when I see my doc. Is there a PAP for this?...