Thanks for the replies! I haven't gone to the bathroom since the last post...so hopefully I am giving it time to heal?. I know it's probably normal,,,but boy did it freak me out! Hoping for some...
Hi everyone, Just had a sigmoidoscopy this morning. New GI was checking on inflammation progress and also question of a polyp vs stool, that was found on a ct scan in December. Anyway, no polyp,...
Thank you so much Quincy!! Yes, it was stressful without power, internet, tv, phone heat etc...for 3 weeks...But nothing compared to what others have and continue to endure due to the storm. I...
Thanks Fruitgirl!! I don't think I have an intolerance...I've never had an issue witht he rectals, so I should be ok!!! B!, Thanks...I'm so excited to start...I know it's no guarantee, but it just...
So, after 2 months of new GI's, dealing with weeks of power outages from the storm, I am finally about to start Apriso!! I think it's 4 tablets in the morning...I'm picking it up today. My GI said if...
So I'm finally seeing GI#2 this week...can't wait ! In the meantime, I have tapered cortenema to every 4 days now..did it slowly as suggested here. The nights that I don't do it, I do rowasa. During...
I'm far from any sort of expert here, i can just say that the same thing happened to me in the beginning of August. So i went back on Cortenema for 2 weeks, plus twice a day Canasa. Just started to...
Perfect!! Started the half and half last night...felt pretty good today...so let's see how long this lasts!! Yes, it really is like a scientist...everything is trial and error with this disease. One...
oh yeah...that's right. I remember that. Thanks !! I forgot about that. That's what I'll do. Then after the 2 weeks you were at all rowasa? And no issues right?...
Been using cortenema for 16 days, the started alternating one night cortenema , one night rowasa. I'm starting the second week of that. During the day I am using Canasa twice. Seems like at first,...
So I started cortenema on 8/31 bleeding stopped almost immediately...did them every night except last wednesday night when I had to take medrol 32 mg at night and 32 mg in am Thursday to prepare for...
I know!! I don't know why I'm obsessing over the actual name of the diagnosis? I realize that I have to change that mindset and quickly...You're right, it's IBD...and at this point does it really...
Oh thank you for the hugs!!! It is so frustrating...not knowing, and knowing...not knowing what it is, but knowing that I need something other than what they are giving me!! How do you take the...
Not yet dx officially, still waiting for second opinion and changin doctors. Quick history:( 47 year old female) Had colonoscopy in 2096 ulcerative proc, but found 2-3 ulcers on ileum. Only gave me...
Wow, I can't beleive how many of us have this? So happy it was brought up!! Worth checking in to......
Interesting....im going to look in to this... its just very strange..i'm glad someone brought this up...started me thinking. Diagnosed July 2006 Flare August 2010 Flare August 2012 hmmmmmm...... I...
Agree with Quincy, You need liver AND pancreatic enzymes done. I would call your doctor....
I started cortenemas last month, did it for about 10 days but still was seeing blood... Even though I started rowasa and canasa... Started them up again, I am on day 13 and have not seen blood -...
That's three year in a " row". :) not Ron........
Same exact thing with me. Three years in a Ron, almost to the day. Starts every August.... I was thinking allergies or stress?...
Great update! Wishes for continued quick healing!...
Having left side pain with this flare, never had it before. It almost feels like pinching, burning upper left side underneath rib cage. Actually notice it more when bleeding and bloated. Having CT...
I agree with MaxMilian, Stay busy, relax, maybe some exercise, massage or meditation to get you through the week. And definetly prepare a list of questions for the doctor, this way when you do see...
MaxMilian, For some reason none of my information came through on my signature? But I wanted to add that I have ulcers on my ileum , too... 4 were found in 2006, last scope they only saw 1-2. Being...
Popping to to give my Metamucil plug! Quincy advised me for a week before I actually started...all I can say is I wish I had started sooner! Started with one pill twice a day, the upped every 2-3...
Quincy... 18 year old cat? Wow..I thought having my German Shepard dog for 15 years was good! Holy mackerel! Must be so stressful...I understand completely...my dog was 15 all good health until one...
Hateuc, Totally! You have no idea how informative some of the people are on this forum! The support is amazing..what a great place to throw out ideas! Thanks again for your continued support...I...
Quincy, Not training for the marathon this year...did it to raise money for a dear friend who died of brain cancer 2 years ago...however, it was too much on my body and the flare...switched to an...
I'm well aware of the side effects of prednisone, as I'm sure anyone who can use an Internet is as well. However, as Gary said, the issue is that since I took it for 2 weeks 2 years ago and it seemed...
Quincy, Not a PITA by any means!! Thank you for your concern!! Yes, he did quite a but of biopsies and I know from all over the colon. He gives that informationt to my husbands oncologist at Sloan,...
I went from not necessarily " liquid" but very very loose. Started Metamucil after finally listening to Quincy on this board. Stools, went to formed in about 3 days. Start slowly...I started with 1...
Fruitgirl, Thanks for your advice... The reason I saw the colorectal surgeon was because my GI was out for a month ( his wife had a child) The CR surgeon was the one who saw the proctitis when I had...
Why am asking is because I have been here before, with some of these members and have gotten sound advice. The people on here have experience and knowledge, which to me, in addition to the...
OK... update Rectal surgeon said to stop canasa and rowasa and start Cortenema for 3 weeks. If no response, then an oral med. so frustrating....
Thanks for your replies... I agree, I should be on an oral med...not steroid... When I asked both my GI and primary doctors they just said that because I have very few flare, they didn't think it was...
I figured out why this fare is bothering me more than the last one... 2 years ago, with my ad flare, I took prednisone for I beleive 10 or 14 days. Granted, that flare was " severe" proctitis. Scope...
That's a great question! I don't know the answer but I can tell you that I take my canasa supp in the am, VSL and Metamucil in the am . I take the VSL and Metamucil again in the evening, then the...
Qunicy! Thank you for the bump! So the appointment went well...he still sees inflammation , but said that is was improved. Still inflamed, but better, about 70% better. He said 2 weeks ago when he...
I'm seeing the rectal surgeon tomorrow for a follow up from 2 weeks ago. I will ask him for sure... Thank you! J...
Thanks for the advice... It's just so disturbing when I see blood. Doesnt matter if I know exactly why, it's just disturbing.... So I can't wait to see him tomorrow. I hope there is some improvement....
Quincy: No not worse on the rowasa...last night was the first night of no cortenema , just full rowasa. Had a couple of squirts of the enema then three times going, but formed each time. It's at the...
I am sure this has been exhausted and I apologize in advance.. I had a mild flare, mod proctitis seen by MD on 8/8. Started cortenema at night continued w my canasa twice daily. Ten days later, half...
Mornings for sure but only in a flare...some days afternoon ish ...and of course during flare right after the bathroom with horrible rectal pain and pressure....
Just started Metamucil....so far 2 caps in am 2 caps in afternoon Only had a day of grassiness and bloating...on 2week of flare ...no d since week 1 . Have afternoon squirts that have been starting...
Yeah..I know what's ahead of me with the period...can't belevie you had endo AND fibroids...you really haven't had it easy with the lower half?? I felt pretty good this morning, formed and brown, and...
The cancer was right sided...stage 1-2. He had 7 inches of his colon removed. They did it open, not lap, because they saw lesions on his liver so they needed to open him up. Yes every year ...he just...
Wait! I literally LOL when I read about the fart and and squirt...those weird connections for sure! But really the more I think about how much I'm putting in there the more I realize that it has to...
Hahahaha...why do I feel better knowing you " guide" your GI too? I wonder why that is? But I'm glad you started yourself on cortifoam! I'm sure though, that if we were way off they would say...
Hey guys! So I saw my original GI..had tons of questions...and this is the recap So I told him what has been happening since the colonoscopy...he knew about the bout of diarrhea and stomach pain a...
by the way that was " scabbing" not scanning!!!!...