Cupcakespinkgal, How did they find out you had PSC. What were your symptoms? I have had other symptoms that I have not mentioned. That is why I am so nervous about enzymes. Thanks!!!!...
Thank you Adrina! What do you do for a liver detox? This liver stuff is new to me! One of my ankles is a little swollen recently and I am praying it has nothing to do with my liver. Maybe a varicose...
I was only taking 50mgs and then he upped me to 75 alternating with 50. So 75 one day and 50 the next. My enzymes started going up when we went higher but did not go down when we went back to 50. It...
Hi Songlady, Thank you for your response. I am happy to hear your numbers are going down! I really hope mine do as well. I just hate they climbed a little. My ALT had been normal when AST was...
Thanks John, That is what I thought..I am just concerned that my liver enzymes went up a bit after discontinuing 6mp. I would assume they would go down. It makes me think it is something other than...
Hi all, I was wondering if anyone can ease my stress. I was on Imuran for 10 years and then WBC dropped to low and it was not keeping me under control. I started 6mp about 6 mos ago. My liver enzymes...
Old Hat and Sherry!, You guys have always been so helpful and you continue to help so many on this forum, including me. Old Hat..after the colonoscopy, it did get better and I did not need anything...
Hi Guys! Its been a long time since I have been here but I have always got the best answers here. I have had UC for 19 years and lots of ups and downs with flare us.. Originally diagnosed with Crohns...
Quincy, I will def. do that. I know it is not mucous and yes once or twice a day, that part is wonderful but i am not in a flare right now..whew. My doc needs to do something! He gets back from...
Sherry, no..I don't take prilosec. This has been going on since the beginning of the year. I got an ultrasound in Feb and it looked fine but it is more consistent and lighter in color. Maybe its my...
Quincy is was super light tan color almost white in some places on the worst day. Today it was a very light tan color. It is formed. I have read tons of scary stuff....
Well, the aza was just bumped up to 125 2 mos ago. My liver enzymes were sightly elevated a month ago and my GI had me take another blood test last week and my enzymes were normal. I have been taking...
Hey guys, I have had pale poop the last week. My Aza has been increased from 100mg to 125 and I am taking Asacol HD. Wondering if that could be the case..I am not in a flare at the moment and poo is...
I was diagnosed at 30yrs old and now 48. No surgeries but it sure has been quite the roller coaster....
Curl, Are you pretty true to your diet? Can you remind me how long you have had this disease? I have to admit, when I was feeling well while doing FT's I ate anything I wanted..drank wine, coffee,...
Hey Curl! So glad you are still doing well..I remember you were pretty skeptical at the beginning. We started around the same time but I am not doing as well as you:(. I lasted a good 7 mos. I had a...
I did not take antibiotics beforehand....
My sypmtoms got better after 2 FT's. I did have a couple minor ups and downs after the second month. Then after 7 mos I had a huge flare up. Still on pred for the flare and going to start FT's in a...
Edbar, I am so glad to hear your son is doing better. I am also on Pred and took Flagyl. I am also on Imuran(Aza) I have been on it a long time now and it does not seem to be helping at all. We were...
Soystud, I am not sure if pred has anything to do with anything..I thought maybe it would interfere with Flora of gut somehow. I am on 50 mgs and tapering..As long as I have had this Disease, I am...
Hi Lodi, My husband is my donor and has been tested. I am on Imuran and Asacol which I had decreased significantly since I started the FTs but I am now back on these meds including Pred. Before...
Hi all, Wanted to give you and update on my FT. Having quite the flare up at the moment. I did FT's for quite sometime everyday in March 2012 and felt better right away. I then went to doing an FT...
Well, thought I would give an update. I have been doing FT's off an on for 7 mos. My GI doc was excited eventhough I was doing an FT every week or 2. He said it was great as my flares have been very...
I am still here as well and my UC seems to be in remission as well. I totally agree with Curl and I would not hesitate to continue with FT's when flaring again. Good Luck to all!Donna...
Thank you both Weary and Diann...I'm just pretty nervous its still a couple of weeks till my appt.....
Hi, My name is Donna and I usually frequent the UC board as I have had UC for close to 18 years. I have been doing much better this last 6 mos with no UC flares which in itself is a miracle. I have...
Hi Rami! So happy to hear you feel well and that FT's are helping! I have been doing ft's since March and do a transplant every 2 weeks..I could probably go longer now but I love feeling so well, so...
Hi Allswell, FT's are working for me but I am on maintenance so far. I have been doing it since Mar 11th and my UC has been better than its ever been.Prior to that I was on flaring up quite a bit and...
Conquer UC..You are right "a series of unfortunate events". The doc that took those tests years ago had said that since I had no lupus or RA syptoms that he would not bombard me with tests eventhough...
I have had UC for 17 years with no real remission until after doing FTs..I tapered my Asacol to 2 pills a day..have not done a steroid enema for 5 mos after doing them off and on for almost 2 years(I...
Hi Loli, My stools are pretty much normal. I think I did about 30 days..I still have to do 1 every 10 days or so because symptoms return. However, I am going to it again at the end of Sept with abx....
Loli,My DH could not go everyday, but he did do most days so it worked. He eats a lot of veggies but if he is having trouble performing:), he will take magnesium, prunes and drink lots of...
Hey Loli, My GI doc is in Dallas..would that be the same? I actually have 2..I mentioned the protocol to one of my GI docs and he knew about it and knew the doc that was more involved with it. So, he...
Hi Edbar, thank you for thinking of me:). I did not do any ABX at all before doing FT's. My GI thinks that if I tried this way that it would give my donors good bacteria a better chance to take over....
Hi Loli, I am doing FT's as well and also use my husband as a donor. I have been doing it since Mar 11. I did not however use anitbotics or even clean myself out..I have to do an FT once a week or I...
Hi Curl, Actually..I have been really lazy about my meds since doing FT's and I was never lazy about meds. I am supposed to be taking 12 Asacol a day and have so for 15 years..I stopped taking those...
Thank you Curl.. I was really, really wanting it to be a "cure". But so far, I have to completely agree with you. I also did about 30 FT's in a row and have been doing 1 FT a week for the last couple...
Hi Curl! So happy this is working for you...I was wondering if you still do a deposit here and there or are you completely done? You may have already posted this, but are you on any meds at all? I...
Such a nice thread..I am doing very well...I have had UC for over 17 years and I my Doc wanted me on Remicade which I declined and tried FT's instead. I have been doing FT's since March and have...
DB, that is a good idea..Don't know why I haven't even thought of that:)...
Well, I did 3 FT's in a row and back to normal bm's. Guess this is something I may have to use as maintenance. It seems to keep me in remission if I continue at least twice a week..but if it goes...
Trojen, I think you are correct..FT's will probably have to be used with other meds. I really wanted to get off Aza. I did decrease to much to soon. Edbar, no pain and frequency has not increased....
Well, Its been since Mar 11 since starting FT's and have had no symptoms...until today. Well, actually it started yesterday..I had a normal BM but it had globs of mucous. Did not think to much about...
Well, good news..I woke up this am and so far it hasn't gotten worse so I am thinking all is ok..Whew! A bullet..diverted:) Somedude..This is a cat I rescued out of a grocery store parking lot about...
Thanks guys..I have not started the antibiotics yet. It is red and a little raised. It does not hurt. I am going to see what it looks like in the am. The Dr. said if it was the hand and if I did not...
Hey Guys, I am on 3 mos of my FT's. I have been doing very well as I have no UC symptoms and I still can't even believe it. I still do FT's once or twice a week as the few times I tried to spread it...
Not sure why I'm having such a problem getting it from the doc..I did not see any at our drug store except for the small ones for contact lenses but it had all of this other stuff in it. Trojen, I am...
Thank you Edbar..I do have one more question..Do you use Sodium Chloride as well or just distilled water when mixing? The doctor is taking forever to get back with a refill for me on Sodium Choride....
Wow Edbar..how long do you think you guys will do it? I have been doing it about 3 mos now...I actually feel great but I have tried doing it once every 7 days and there was a change in my bms. So,...
Edbar, are you still doing FT's on our little one?...