I was thinking it did matter when just because I had heard that they would be the expensive digestive enzyme :) Yes, they are very expensive but with them discontinuing asacol I want to try something...
Thank you. I think I will start him on Vitalzym because they have the liquid capsule that says it will not digest until the intestines... I wonder how long until I see results. ?? How long did it...
Has anyone tried systemic enzymes for UC? So like a Vitalzym claims to help with inflamation and auto immune... just check if anyone has tried it....
He is on 1200mg of calcium per day (600 in the morning 600 at dinner). I will ask about getting his blood work checked this Thursday. Anything else they should check as long as they are sticking him?...
I have to say it is frustrating. The school is still not meeting with me. The doctor didn't get the fax to them so they will not meet without the fax. It would seem like they could at least sit down...
My 10 year old son is on Asacol (3 - 3 x day so 9 total) down to 35mg/day prednisone, multivitamin, calcium, VSL3, prescription Prilosec... He is super tired especially after he takes his meds, he is...
Thanks Susan, Just found a great hand out on that site for schools. http://www.ccfa.org/assets/pdfs/teachers_guide_brochure_final.pdf...
Thanks Susan 451, is mesalamine enema a steroid still?...
IBDISTHEPITS, or anyone else, what do you suggest for school? What should we expect the school to do for him besides give him meds at lunch? The doctor said that he should not need at 504 plan (in AZ...
Thanks, IBDISTHEPITS, I agree it is the pits. Maybe because they are already specialize in kids vs. adults they would not specialize more. That makes sense in that I don't know if you could have a...
Thank you everyone! When he was first bleeding the doctor that he has now (who is very caring) got him in when no other doctor would and then scoped him 3 days later no problem. They have been really...
I am in the U.S. in Arizona in the Phoenix/Scottsdale area. My son (age 10) was just diagnosed and my son's doctor is very kind and caring and seems good. But, he is just a pediatric GI specialist...
So... my son is super crazy sad and tired. He is gaining a ton and it has only been a few weeks. I talked to the doctor and he said we can start stepping down the prednisone by 5mg per week. (So we...
My son is 10 and he was just diagnosed. He had joint pain over the spring and had gas issues for years... BUT until your daughter has clear signs enjoy her and the fact that right now she does not...
Sorry one other question, he has started getting joint pain again. He had really bad joint pain this summer that we had x-rays, blood work, the works and nothing came up. Now we are thinking that was...
Thank you again everyone. He is doing well. He seems to finally be healing. The doctor has talked about starting to step him down off the prednisone in a few more weeks 5mg lower per week. Any...
THANK YOU again, I am loving all this information! It gives me tons to look into and think about. If we can get the hurting and bleeding to stop that will be a great first step. Then it seems like...
THANK YOU AGAIN EVERYONE! Today the doctor was good. Did I mention that he gave us his cell phone number when he did the colonoscopy and told us again today to use it even in the middle of the night...
Thank you so much! It just made me cry, and I am NOT a crier. The fact that 4 people could take a minute to help right now when it feels so helpless means so much! Thank you and I will keep learning....
Was your son checked for h.pylori or other bacteria or virus or reasons for the stomach ulcerations? I will check, we didn't know about the stomach uncerations until the scope, but the pediatrition...
We recieved it in a pill form for $40 for a month but my Costco said they can order it and it will be around $15 -$20 for the month. FYI Thanks!...
ok, I loved reading the back and forth. My son is 10 and he was diagnosed last week. I don't know anyone with this at all let alone any kids. But, it does seem like there is no information out there...
melatonin works great for our family when we need to sleep - all natural...
After 2 weeks of bleeding (lots) and 4 stool sample negative tests, blood work, losing 8 pounds we finally got in to see a specialist and he did an upper and lower scope. He says that my baby (he is...