Reviving from the dead. I completely forgot I posted here. Anyway. After 6 rounds if chemo I am cancer free last chemo being end of March. Have been working a few months full time. Was having 3-5 bms...
Thanks guys. I was told it was diffuse B cell lymphoma. It's located behind my eye. Was also told there's high chances I'll make it. Starting chemo Monday....
I was on these forums when I had a crazy flare 3 years back. I started Remicade which got me under control. Now I have recently been diagnosed with lymphoma (the cancer which Remicade increase your...
Odd. I've never had this problem. Everyone is kind of just like oh. Okay. And then they don't ask anything else. :/...
All beers are the same for me. I have to go for a BM but then it gets better afterward. I luckily do not flare from beer....
Glad your life is back on track. I remember you were ready to give up a year back. Way to go!...
If you have the time for Remicade then it's my recommendation because it helped me. Haven't tried Humira. But again cost (insurance) is probably the first question, then convenience....
Agreed. Just because Remi wont work doesn't mean surgery time. I'm almost 1.5 years on Remi, works great!...
Welcome to Healingwell Allison! It looks like the pred is working which is a good sign. Hope the Humira works for you so you can get off the pred soon. We'll help you through this!...
Cats ftw!...
Neither med has had any considerable side effect that would hamper the active lifestyle on me. The only one is maybe the Imuran nausea which only lasts 30min an hour after I take it, and its almost...
Is this the theory? UC is autoimmune so a fever or flu would get the immune system to fight the flu then after reset itself and not attack the bowel? My experience is a flu makes it worse or can even...
Have you talked/researched about Remicade/Humira?...
Welcome to the forum!...
Hey we're here for ya! Remember you've got a wife that's there for you and is doing everything she can to help you out. That alone should make you feel on top of the world. Just think about things...
Oh boy I can relate to your troubles. Thank god I was in remission first year of university, because finding the crappers was impossible. By the time I was done there were so many hidden crappers...
Would require automatic bum cleaner too.... with lotion! :)...
Doctor's put you on the pred because without it, things would be a million times worse (theory). Until the Remicade is doing the job then the pred can be mitigated. I am wondering why they dont have...
Stool looks fine but sometimes I do get some blood on TP. Almost like my rectum strained too hard and cut. Its not bad though so I don't pay too much attention....
Welcome to Healingwell! Salofalk did nothing for me. If you're not improving then get new meds. Theres always a chance of it getting worse....
Are you on pred or have taken it? In University I barely slept lol. Just cuz of the HW...
Yay! Let's keep it that way. If you have a diet/some other maybe exercise plan keep it up!...
Would like to remove the 25 from my username. I have another which I love and use everywhere but one google search of it and everyone will know all my details. I like to keep this site here...
GRATS RED!!!...
Bacteroidetes: 30.62% 3.13% way off there. what does that mean?...
All meds have side effects but point is the benefits outweigh them. And you should be fine because luckily you are on some weak meds (UC wise). There are worse meds out there....
Have well just having the colon removed doesn't include the rectum. I think just the rectum is possible. Try a Google search see what comes up....
#1 never happened to me. #2 never happened to me. #3 Had the thoughts, but have a wonderful partner now. #4 A hell of a ride. Missed half a semester of 4th year engineering... barely got out of the...
Are you on any iron supplements?...
Where does it say you can't?/...
Sorry to say from my quick research there are no "simple" ways to rule out MAP. http://en.wikipedia.org/wiki/Mycobacterium_avium_subspecies_paratuberculosis ...
If you can have a break financially then do so! Especially if you are flaring/not your best. Just make sure that you can get back to work after your break because unless you won the lottery you can't...
I guess if you have the side effect however long you take high doses of pred (20+ mg IMO) that's how long you have it. Don't know why its called moon face though my face just got fat :p....
This site is a support and help forum. If you're in remission and you feel this makes it worse or makes you stressed take a break! Though remember you're welcome back anytime :)...
IMO as useful as it is to inspect I want all those cool chemicals hiding everything in case co-workers see!...
Usually my primary doc always knew of everything that happened with my GI. They communicated somehow. (I'm in Canada). Might not be as useless as you think....
I'm not a fan of statistics. Most people don't know how to use them, including the people publishing the studies. I also have doubts we're all going to start getting prescriptions any time soon....
I have doubts its cancer. I suggest you see your GI. The burping is a normal side effect its probably heartburn....
I like it occasionally, but yes it does make me poop and fast!...
Must have been a scary situation hope you're all right! For protection I wear a condom...... But in all seriousness here in Canada a door is pretty much fine, crime rate is low. Although back in...
Thanks for the update! Stop by more often!...
UC would be more diarrhea and bloody stool. Have you seen a GI? I'm sure he/she had more to offer than just a colonoscopy in a month....
Im on Remicade and I can pretty much sleep for hours upon end. Its crazy....
Welcome to the forum! Could it be you're drinking too much but the more likely guess is too fast? Is it on an empty stomach?...
I would recommend not taking any "flu prevention meds". They don't really do anything IMO. That being said unless you're taking it because you actually have a flu that would be a question for the...
Great to hear. Vit D is usually low for everyone....
Usually going down below 10 mg caused problems for me and I had to stay on 10 longer than other doses before tapering till the end. As for alcohol I suggest to not have any if you're on lower...
I could feel the Remicade working right away but to finally get into the good of things it took about 4 infusions. If the trips have gone down that is very good sign!...
I would try stay on the Remi. if it works it works....
Grats on your new job!...