Didn't mean to worry you. :) The thing is...his UC may not even be that bad, or managed by some of the safer maintanance meds., but if the C Diff is tearing his guts up the GI may fail to see that...
Just wanted to chime in on this one. I tested positive for c diff last December. First time i've had c diff, in my 20 years of UC. At first, I couldn't decifer the suttle differences between the two....
The pharmacist told me that the certificate basically is for persons that have a co-pay of $100 or less for Uceris, then the drug company would reduce the cost to $25. Even with prescription coverage...
So...I have been in a flare since early November. Pretty much been on prednisone since then. I'm down to 10mg, but still having symptoms. My GI wanted me to go on Humira, but I sudgested trying...
Haha...very good somedude :) ^^^ If I would've listened to my GI's over the past years, I would've had my colon removed long ago. And evertime I've managed to get back into remission...and been very...
Thanks everyone. That was my thinking as well. Just nice to get some other opinions :)...
Hello all. I wanted to run this past my fellow UCers before making any decisions, as I trust your opinions equally, if not more, than my GI. I've been in a flare since November. Been taking...
If you've just been diagnosed...only time will tell. Remission is different for everyone. It may be weeks, months, or years until your next flare. Over time you will get a feel for your disease. What...
I use the aloe vera juice. Just make sure you get 100%. Probably don't want any unwanted ingredients. I haven't used them during my current flare, only because i'm waiting for my health insurance to...
I have to admit...I've done this. I mix my hydrocort enemas with aloe vera and it works great. My original thinking behind this was, with additional liquid it would cover more of the effected area....
Same problem here. Been trying to taper off 50mg prednisone. Still get a little blood from time to time....
Thanks canadagal. I do have a scope coming up soon. Will be sure to run it past my GI. Seems the worst after eating and while lying down. No pain involved, but it gets a little irritating after a...
So i've had UC for 18 years or so. Every flare and change in meds. seem to come with changes in symptoms and side effect. Nothing new there. One thing that i've really noticed during this flare is a...
I have used the enimas. When i'm having really bad urgency and lots of blood, they really help reduce the symptoms and heal the lower colon. Most UCers will always say, "heal from both ends." It will...
Ya...if your doctor is being proactive and helping you figure this out, better shop for a new one. Finding the right GI doctor is a huge piece of the puzzle. Having the wrong one could cost years of...
I was on various doses of prednisone. 30, 40, and it wasn't til I bumped it up to 50mgs that the symptoms cleared up. Took 2 days. Like others have said...maybe a good combo. Maybe it was crossing...
Hmmm...that is strange. Although, technically UC is inflammation of the colon. Most of us share some pretty characteristic symptoms, but I suppose you could have a very mild case of inflammation...
I read in a Crohns magazine, while waiting to see my GI, that there are some great new apps out there for us with GI issues. Some of these are: gps bathroom locators, stool trackers, diet trackers,...
That's great news!! I just started my taper from 50mgs. Got a long way to go, but it sure helps to read successful pred. tapers. :) TJ...
On a lighter note...don't you just love when you get past that first embarrassing toot in a relationship. Smooth sailing after that. Haha :) TJ...
You should've got at least a diagnosis as to whether you have UC, Chrohns, IBS..what ever the cause of the inflammation. If you had polyps removed, they will certainly test these for cancer. The...
Hey Canada26...sorry to hear about your recent symptoms. I've had UC for a long time. The last five years without health insurance. It's been horrible to manage this disease without it. Lots of trips...
I went through the worst flare of my life just after taking a big dose of antibiotics. That stuff can reap havoc on UCers. Really hope you get thing under control. TJ...
Your welcome dan :) When you were describing your symptoms, I thought...omg! That's what happened to me. In the long run I think the 6-mp helped get me into remission, but I'd rather skip the anemia...
Dan, welcome to the forum. Sorry for your recent problems. I recently submitted a post about 6-mp and bone marrow suppression. Like you, i've been hospitalized many times for blood transfusions. Some...
I've been diagnosed with Raynauld's syndrome. My fingers get white as a ghost, numbness, cold, etc. I was on 6-mp when these symptoms started. Could this have been the cause? Rrrrrr!!...seems like I...
Thanks for the book suggestion bananagirl :) I went years with this disease feeling self contious, ashamed, confused, alone...etc. Now that i'm older, and finding out just how many people this...
Lemonhead: " Maybe you should leave the bloody D in the toilet for them to find." Lol...I did that too :) I don't like anyone feeling sorry for me, but I got a whole new level of respect when I left...
I think you'll be ok on 60mg for a short period. It's a high dose, but if you can get symptoms under control quickly and start to taper you should be fine. It's not a dose you want to be on for a...
I can't seem to get a good muscle pump at all. I just feel like i'm going through the motions at the gym. Definately less strength. I have an awful time maintaining a good diet, cuz the prednisone...
Hey Rage. Sorry to hear about your recent flare. I am a body builder as well. When I came down with my most recent flare, I very much hesitated to use prednisone. I hate the side effects, and it...
Well...for what it's worth, sounds like it's good you found this out before you invested too much in the relationship. Ie. marriage, kids, investments, etc. I was married five years and had a son,...
Welcome to the forum. Sorry for your wife's unfortunate diagnosis. Really glad the Canasa worked so well. A lot of GI's swear by Asacol for maintenance. I never had any side effects or issues while...
Ditto on the rectal meds. One thing that i've found is, even if it doesn't hit the entire inflamed area it really helped lessen the symptoms. Especially with my urgency. They really work great for a...
Welcome You-see Sorry to hear about your diagnosis. I was the same age when I was diagnosed. It's very overwhelming and a big change in life. First, let me say this is a GREAT place to get info. and...
I took 6-mp while bodybuilding. Didn't notice any negative effects on muscle mass. Only thing I noticed, was horrible acne. You won't see the side effects like prednisone in your workout. I can't...
I was med. free for 2 years. No diet restrictions. I knew sooner or later it would probably flare, but putting the disease out of mind for two years has been great. Whould I have had longer remission...
Oops..hit the submit button. Haha. Anyway...at $400 I think i'll just wait a couple of weeks. Think I'm gonna try the LDN and for sure add probiotics. This forum has given me a new arsenal to throw...
I just wonder how many people out there this happens to. I went through ten years of flares without a trace of anemia. Then all of a sudden every flare I would get anemic a couple of weeks into my...
I've been faced with surgery many times. Been told that I would kill myself if I didn't have it. Thankfully I found a GI that gave me the inspiration and strength to get back into remission. I have...
I was taking 6-mp over a three year period. Lower doses when in remission. I should mention that this side effect is fairly rare. Has a lot to due with how each of us matabolize the drug. I may have...
Hello fellow UC'ers. New guy here. Let me start by saying, I wish I would've joined this forum years ago. Reading through these posts i've found it very inspirational, very informative, and very...