Zantac has never worked for me (or my kids for that matter). I only get relief from PPIs (as do my children LOL). Luckily my reflux calmed down when the flare calmed down so that was one med I was...
Ok he's starting me on topamax. But he said if that doesn't work, we may need to go to a different med and drop the remicade. We did decide to stretch them out to every 6 weeks instead of every 4...
I gained weight crazy fast on prednisone. Like 5 lbs a week. Obviously I wasn't consuming enough to gain that much, but I WAS hungrier than normal so that didn't help. I'm sitting here almost 6...
So I guess they want to see me in the office tomorrow. We'll see......
Gluten free didn't work for me either. Sorry. :-/ I did it twice for several weeks each time... SUPER strict. Just didn't help. I swear one of those times I got worse. I seem to have no problems with...
Ok, just waiting for a call back. I'm not opposed to medicating to control side effects. I was a hot mess with that flare and I thought it would NEVER get under control. I would hate to give up the...
Will my GI doctor prescribe something? I remember my ex husband had success with topamax for his frequent migraines. But I think it's primarily used as an anti-seizure med isn't it? Not sure if I...
I got so desperate I drank nothing but elemental formula for like 2 months. Then started on some baby food. Eventually I got better and I'm eating mostly normally again (which for me is a vegan...
I've been getting these horrible headaches that last 1-2 days every week or so. My mom asked me yesterday if she thought it might be the Remicade since I just had my infusion last wed and had the...
I didn't have medical insurance when I first started having symptoms so the first thing I tried was diet stuff. I think gluten free was the first thing I tried. I was already eating a vegan diet at...
For the record, I stopped eating hours ago because I could feel everything heading south (haha) and I've been crazy thirsty and so I've been drinking a lot of water, but not peeing and now I'm...
It's good to know that I can be on both meds at the same time. I just want to knock this out of my system so I can get back to a normal life! My doctor seems to think TPN would be a BAD idea. I feel...
To be fair, I don't "need" an NG tube. I can stay hydrated fine. I have extra weight from my prednisone treatment. I'm not going to starve. But I can't live like this. I can barely get out of bed...
I've already tried everything I can think of with regards to diet. Gluten, dairy, sugar, etc. I did the liquid/puree diet. It made me worse. I'm willing to try drugs because it's been 18 months and I...
I'm still waiting on a reply from the doctor. And I told them I wanted an NG tube. The lady who I talked to first (receptionist I guess) seemed to think it was a perfectly reasonable request when I...
I feel like my doctor isn't giving me enough time on one med before moving me to another. The only med I took for a decent length of time (3 months) was prednisone and that didn't work, go figure....
Is that the same as rowasa? If so, I tried those last time, along side the hydrocortisone. They did virtually nothing for me. I did notice SOME improvement with the hydro, which is why we went with...
I've never been on a cruise, but if I could pick one to go on, it would be an Alaskan cruise! Have fun!...
The first time I tried these I didn't have any luck, but I was also having difficulty retaining them. I would maybe be able to wait it out 30 minutes before I'd have to run to the bathroom. This time...
I was sooo looped after mine I don't even remember most of what happened. I know I was starving and my boyfriend took me to eat. Turns out later I ordered spicy chicken and rice. Picked out the...
I'm improving on elemental formula. The pros are its easy, you don't have to constantly figure out what you can and can't eat, and it's handy on the go. Cons are it gets boring fast and it can be...
I wish I still had milk! No more babies in my future though. :-( I do have one friend who is nursing though....hmmm.......
I have pretty severe generalized anxiety and probably a little bit of depression too. I'm not "sad" though. But my doctor said depression doesn't always equal sadness. I do have issues with...
We had strain A in december. I won't lie, it was the sickest we'd all been in years. Horrid, horrid aches and chills. I practically lived in the bathtub. The fever only lasted 36 hours and I only...
I'm feeling a little better since I got up and puttered around a bit. Thank goodness for the dogs needing to poop. I don't think I would have left my bed otherwise. I think I will forgive them for...
Ok thanks, I will call. My blood pressure has been higher than normal ever since taking steroids. Last Friday it was actually in the normal range and I was SO stoked. Then yesterday it was sort of...
I just had my third infusion yesterday and since all the meds I've tried aren't working, my doctor increased my dose by 50%. Almost immediately after I got home I felt like I just couldn't get warm....
I have pretty bad general anxiety and have my whole life. I didn't notice a difference on the asacol. Or maybe I'd just already hit my peak? Lol I'm on 1600 mg 3 times a day of asacol. I take Prozac...
I'm still on a liquid diet. 5 cans of peptamen jr a day and plenty of water. I'm also doing remicade, asacol, and hydrocortisone enemas. The blood finally FINALLY seems to be slowing down. But my...
I'll make up a Sig later when I'm at a real computer. Its peptamen Jr, which is only slightly different than regular Peptamen, which is for adults. I know it probably doesn't have everything I need,...
And had my GI appointment today. He said if I'm doing well on the formula to keep drinking it. He said there's no harm to it if I can stand it. LOL I did break down and have some food today though....
My daughter is tolerating real blended food now, so her formula is going unused, thank goodness. She has a workhorse GI system lately. If I decide to do the fecal transplant, I'm taking her poo. Lol...
I used to eat lentils all the time and never had an issue! This is so frustrating! I have preferences about where my food comes from. I believe strongly in animal rights and the vegan lifestyle and...
Drinking all my food did not work. In fact I got worse. A LOT worse. I don't think it's the delivery method. I think something I'm eating is causing the issue. I was putting things in my blends I...
Ugh. My boyfriend told me he wants to go on a vacation in the next couple of months while its still cold. The only thing I could say to him is it'll have to wait until I'm feeling better....we don't...
My mom's must have been deficient then. Lol My sister and I both nursed for 2+ years and we both ended up with UC. Bah!...
I have not been counting calories....I'm more concerned about keeping my diet balanced and getting enough protein. I figure if I'm not starving and have energy I'm ok. It's not like I don't have 50...
My chiro had some good ideas...unfortunately they didn't work for me. My GI has only suggested standard treatment. I'm only just now learning about alternative treatments, so I guess I'll have a lot...
Just a quick update: Only 2 full days on blended food and I'm already seeing some improvement! I really hope it's not a coincidence. I have noticeably less gas (started noticing that yesterday) and...
I wasn't off dairy the entire time I took the enzymes but I did do about 2 weeks dairy free during that time with no change. At that point I started the steroids because I got desperate. Ugh. Worst...
I do believe I have upper GI issues as well. They did an upper endoscopy and said I had bleeding in my esophagus. I have reflux and I feel I don't empty my stomach in a normal time frame. I can't eat...
My daughter has a GJ and it's possible to blend it thin enough to go through the J port! We were just using the G for a couple of months but I couldn't get her to gain so I got brave and tried the J....
Do you know if there's any benefit to using a ready made formula vs. puréed food? In my googling, it seemed more common to use formula, but I don't know if it's because it's convenient or what. I...
Hi, my name is Shauna and I was diagnosed with UC not quite a year ago. I've been having symptoms since October 2011. I've done several treatments and meds, but so far nothing has really helped. The...