Thanks. To my knowledge I've been checked for everything, including strep B. I have a dr appt this week so will ask to be sure....
I'm in my third trimester and due in six weeks. Had some minor flaring during the first trimester, second trimester was GREAT w/ normal daily BMs for the first time in years (LOVE that pregnancy...
I think it's great that you're going to Vegas. And I completely understand that alcohol can make symptoms worse, but you cannot let this disease cannot take over your life. I think it's fine to have...
Thanks fruitgirl! I'm only 12 weeks so I still have a ways to go. Talked with the doc yesterday and she said the same thing you reported above: the mesalamine levels in breast milk are so low that...
Thanks for the replies. Friends who don't have UC say things like "can't you just stop taking medication for the good of the baby?" so it's nice to hear that other folks continued (or plan to...
Hi folks, I'm heading into my fourth month of pregnancy and starting to plan for everything baby :) (Really thankful to have made it this far!) Flare-wise I had a mini flare at the beginning of my...
I am hepatitis C positive with genotype 1a, and newly pregnant. I stopped taking birth control after my hepatologist cleared me to wait 2-3 years for new treatment options (after determining via...
I started taking rowasa with Lialda and it took 8 weeks to fully recover. Toward the end the blood, mucas, and urgency were better but I still had diahrrea - and then finally after 8 weeks I produced...
Subseromambo - do either of your children have UC?...
I was completely opposed to using my enemas, but in the end (for me) they are the only thing that helps. Every time I feel a flare coming on I start using rowasa and I'm usually back to "normal"...
It took my body about six weeks to get used to Lialda. That could be causing the flatulence. I also found that Lialda on its own helped, but I couldn't get to full remission. Lialda + Rowasa enemas...
Everyone is very different, but this may have less to do with your diet and more to do with medication (at least, that is how things have been for me). Once your inflamation is under control you will...
Hello, My husband and I are planning to start trying for a baby in January, however I always seem to flare when not sticking to my Lialda/Rowasa regimen. I saw everyone's responses to the recent...
I was in a similar situation just recently. Hadn't had any urgency (aka not flaring) since last March, and then towards the end of December I started getting urgency. Seemed I was back into full...
I don't know that I healed 100% (although I felt great from last spring until just recently - and even now my new mini flare seems to be under control), but it took me 8 weeks of nightly enemas and...
Hi Sweetpea. I am no expert (and have never been pregnant) - but I'd heard you can still use mesalamine enemas while pregnant. I know for me enemas usually help quite a bit. Congratulations!! Hope...
Have most of you had worse flares over time, or do you learn how to control your UC? I've read a number of posts saying that certain medications (e.g. enemas) worked for some flares, then stopped...
Thanks for the responses. UC gives so many of us a helpless feeling and it's great to receive feedback from others who've been in the same position. Will try upping my Lialda to 4x nightly and...
Hello (again), It's been quite some time since I've posted as I went into remission last spring. Between now and then I was promoted at work and got engaged. Things have been great, but my new job is...
Congratulations! Hope you stay in remission for a long, long time....
I haven't yet had treatment for my hepatitis, but I did have a biopsy and I can tell you that (for me) it was much less painful than anticipated. The needle looks intimidating, however I didn't feel...
David/hep93 - Thanks for replying. I do tend to keep the attitude that I don't know how long I've had hepatitis and my liver has managed to stay healthy so far, so therefore I continue to drink in...
I'm 31 and was diagnosed with hep c, genotype 1a last year. The only time I've ever used needles in my life was at the doctor's office, and when I got my ears pierced, so it was definitely a...
I've been in remission since mid-March and lately have only been using a Rowasa enema once a week. (Still taking 2 Lialda nightly). Do those of you who've been in remission for 6+ months still take...
It helped me over time, but for the first few months it definitely made my symptoms worse. Try taking Lialda at night (always with food!). I found I could sleep through most of the side effects and...
When my left-sided colitis was at the moderate to severe stage I started using Lialda and felt a number of side effects including anxiety, (more) urgency due to a full feeling in my stomach, and...
My doctor mentioned that sometimes he prescribes nicoderm patches - but only if nothing else is helping. Seems like the info is out there but yes, it may be beneficial to explore further since...
Agreed! (Currently eating tootsie rolls...our secretary's candy bowl is the devil). You guys couldn't have posted at a better time. Just today I really started to question why I can't seem to control...
Thanks quincy. When I tapered the Rowasa I hadn't had any loose stool or D in about two weeks, however the latter hit me yesterday afternoon. Panic! So far no blood today but I have that slightly ill...
Hi kweeks. I'm so sorry you have to go through this! What was your original diagnosis? Is the pain in your abdomen on the left or right?...
Not sure about UC and tanning beds, however (I've thrown this in before) self-tanner has come a long way! I went to my first dermatologist appt at 27 and the doctor immediately removed skin from my...
After being in remission for a month I forgot to take my nightly Lialda a few times last week. Plus I've been tapering my Rowasa doses. Both times I forgot to take Lialda I had already taken my...
Same as Krissy. I've been tapering my Rowasa but still take two Lialda daily. Now that I've been feeling better for a month or so, I forgot to take my Lialda a couple of nights last week. This...
Have you considered switching to Lialda? I've had good results, and they can be taken once a day. 3 Asacol = 1 Lialda. While I was flaring I would take 4 at night (with food, otherwise the high...
I started using self tanners a few years back (after having fear struck into me by my dermatologist) and have found a few brands I can't live without. So nice to have a little color! If there's an...
Toughkicker, are you still flaring? If not, perhaps your doc just wants to see you since it's been a few years. I sound like a broken record in my posts lately, but I'm newly in remission after...
1 Lialda = 3 Asacol. For me they've finally worked in combination with the enemas, but it took some time for my body adjust. Lialda makes me feel very nauseous, anxious, and (I think) increases the...
I also have urgency issues when taking mesalamine (which is why I now take my Lialda at night), but I haven't had any issues with Rowasa as long as I use it at bedtime. I missed a dose one night so...
Does taking pepto bismol or immodium work for you? I was in two weddings this past summer and REALLY nervous about accidents. I had to make speeches at both which made my anxiety worse. Taking two...
I had a colonoscopy in Jan, and even after having used Lialda since November, I had moderate left-sided colitis. Even though it's taken 6 weeks of Rowasa enemas to get my flare under control, I felt...
I'm totally with you, I was scared to use an enema after having terrible experiences using saline enemas while prepping for GI appts. Those burn, and give me terrible cramping. Though I have a...
Forgot to answer the question about how you'll know when you've expelled the full bottle of solution. Once inserted, I usually squeeze the bottle until the sides touch (my hand is then in a closed...
I'm not condoning *not* following the directions, however I've been fine putting my enema in while standing up - I just lean forward while expelling. Afterwards I get into bed and lie on my left side...
I had the same issues w/ Lialda (nausea, anxiety, increased amount of BMs). I started taking it at night and was eventually able to sleep through the side effects. I've been using Lialda since...
The Go-Lite wasn't so bad. I was given a pill to take with it and I seemed to be prepared enough to proceed with the colonoscopy....
I was also nervous about using Rowasa enemas - so much so that they sat in my room for over a month unused. That's when I joined this forum and asked for feedback. FruitGirl gave me great advice -...
I am 5'4 and currently weigh 120. Before my flare I was at 135, and went down to 115 before recently starting to feel better. The weight seemst to come right back! It's tough to maintain a healthy...
Rowasa update. It's been almost 3 weeks since I started using Rowasa enemas and it's helping, but I'm still flaring. I currently have about 3 morning BMs daily, and sometimes another BM after...
May as well share here since everyone seems to be in the same boat. I've noticed an increase in gas lately - throughout the day, not just in the morning. I've upped my meds over the past 3 weeks and...
Hi Katkat. I'm so sorry to hear about everything you've been going through. I've had similar anxiety symptoms from Lialda (which is the same as Asacol, except 1 Lialda = 3 Asacol). It's taken me a...