Hi! I had my jpouch surgery just over 2 years ago. I have held onto my ostomy supplies just in case, but at this point, I think I am ready to part with them. The items are free to you, although I...
I made the choice to go with a jpouch because I was tired of the different meds not working. I spent 2 years trying to find something to put me in remission and I know this isn't nearly as long as...
I am now over a year from my take-down date and am thrilled! Would I rather a healthy colon? Yes, but not a possibility. This is so much better than UC. Stools are not formed and vary depending on...
I have had my jpouch now for just about 6 weeks. While there have been some adjustments, it has been wonderful! I just got back from a weekend at the beach and loved being able to do what I want. I...
Glad to hear things went well!...
Glad to hear things are going well!...
Glad it went well! I never had much butt burn, but lots of the itching! The calmoseptine works wonders for that. I have only gotten butt burn if something I ate was too spicy....
I had 2 step done laparoscopically. Step 1, I was in the hospital for 5 days. Step 2, I only stayed over 1 night....
Best of luck! I am 4 weeks out from takedown and things have been much better than I was expecting. For me, this step was a piece of cake!...
Best of luck with recovery! It can be a bumpy road, but worth it!...
I struggled with the decision because the UC symptoms I was having were not as bad as others (based on what I read) who opt not to have surgery. Remicade did ease up the symptoms, but I still wasn't...
I am at the opposite end of the spectrum. I was not able to achieve a full remission with meds except on high doses of prednisone, so I don't count it as remission. However, Remicade did lessen my...
I taught throughout my whole time with UC. Fortunately, my symptoms were usually calm at school and all @%*? would break lose when I got home. If I wasn't feeling too great in the am, I would keep...
Best of luck! I had UC, but I have to say that as soon as I woke up after the surgery, I felt better UC wise (Obviously, the surgery pain was there) As time went on and the pain went away, it was so...
My 3 year old called it "tomato." Good luck with the naming! Maybe you should wait until you see it and then a name might just pop into mind. :-)...
Thanks Marianne. That does make me feel better. I have read about other people's experiences and have been worried that I am just in a honeymoon period or something. Right now, it has been about 4...
Hi Nancy, I just had my takedown a little less than a week ago. My BMs have ranged from 3 per day to 6-8 per day so far. Last night I was up 3 times. I have had some butt burn, but using lots of...
I can't say much about the mucus. I did pass mucus, but not a huge amount. What ai am wondering about about is if you are hydrated enough. Dizziness is a sign of dehydration and when the two numbers...
I had a lot of back pain after my surgery. It came on more towards the end of the day as I had been moving around a lot. They said it was a combination of the position I was in during surgery and how...
Glad to hear surgery went well! I also used the Convatec wafers and bag with the velcro closure (invisi-tec?). I usually changed the appliance every 3-4 days, but more when my skin was a bit...
For me, they gave me Benedryl prior to the infusion. The infusion itself was nothing. I actually enjoyed having to go because I got to sit for a few hours, read a book, watch movies, etc... I have 2...
I have no advice to give, but just wanted to say I am happy you are home. It must have been really tough being in the hospital that long away from your kids and going through what are. I hope things...
As far as the water goes, I empty the bag first and then I have a squirt bottle that I use to squirt water into the bag after most emptying times (depends on where and when). The water comes out just...
NSAIDs can cause intestinal bleeding and ulcers. They are also considered to be blood thinners so those with UC should not be taking medication with them. We have enough bleeding problems as it is!...
Nothing different when Remicade, except if a fever. Sinus washes can sometimes be very helpful....
Glad to hear you are supposed to be going home. Hope it happened and things go well....
Glad to hear things went well! I have been wondering about cuffitis as I have a small amount of discomfort in my rectum. No blood though. We shall see!...
Good for you! Somehow i need to get on the exercise track. I have walked 2 miles a few times in the past couple of weeks. I'm not not just sitting sround, but it is so hard to get motivated to go...
Sorry to hear things are so bad. Glad to hear that they are taking care of you!...
I always got worse symptoms during my period as well. I was not on Asacol for very long. I think it is UC related rather than meds as many others seem to experience this....
I wish I had some advice to offer. I do know the convex worked much better for me so hopefully that will be helpful when you can use them. But in the meantime.... Are you using powder and barrier...
Best of luck on your surgery! I am six weeks out from my first step and just under 3 weeks away from my second step. Thinking about what surprised me most after surgery was the output from the stoma...
Sorry to hear about the leak, but great job dealing with it!...
You have every right to whine, yell, kick things, whatever.... How horrible! That waiting is so emotionally challenging. Did they say why and when?...
I was in the hospital for 5 days and was also ready to go home. I started driving about 2 weeks after. It was when I was done with the pain meds. I agree that your body will tell you that you are...
What are you having done? I am now almost 6 weeks out from my surgery. I had my large intestine removed and a jpouch created with a temporary illeostomy. It was done partially laparoscopically. With...
Hope things are getting better! I have been obsessed with watching Armywives on Netflix when not up for doing much. I do suggest it if you are looking for something to watch....
The holes I order are 1", but I know they have other sizes. They are also the convex so I don't know if that makes a difference....
I also change the wafers every 3 to 4 days, but probably could go longer if I wanted....
I am very new to this so may not be of much help, but I use the Convatec 2 piece system. The wafers I get already have the hole ordered to size and the adhesive on them. I use some paste to fill in...
Chickens are fun! We have one who is an escape artist... As soon as the coop is opened, she takes off out of the run. The others just stay there....
I lost a bit of weight with my surgery. I went down about 10 lbs, but not for long. Everything was going through me really fast so I think that had to do with it. I am down about 5 lbs now and will...
I have also been dealing with itchiness and hsve little red bumps. I am waiting on to see my ostomy nurses today and hoping she has some suggestions. I will let you know if she does!...
Oh no! Feel better! Hope the fever isn't long lasting....
Sorry to hear. Sounds like a tough change. Hope the next ones are easier. Not that this has to do with changing, but when emptying my bag the other day into my measuring container (have to measure...
Best of luck with your surgery! Hope you wake up and find Blossom still there (I love the names people give to their stomas!). Keep us posted....
I had my surgery done at the Lahey Clinic outside of Boston with Dr. Marcello. He was recommended to me. As my jpouch is not being used yet, I can't talk about the final outcome, but I really liked...
You have been given lots of great advice. I am only 3 weeks out so have nothing to add. Good luck! Keep us posted....
Going home today! Things are looking normal, now but will still spend a week on oral antibiotics. Thanks for the support! I, too, am hoping this will be just a blip and it is over now. I was crying...
Thanks for the well wishes. Things seem to be going in the right direction here - certain markersin the blood have all gone down. @speech - kidney functions are fine. Is there a reason for asking? Is...