sorry it's a bit long but it's worth it. it's from a show called Everwood. "The more things change, the more they stay the same.' I'm not sure who the first person was who said that. Probably...
I was recommended to talk to and consider Vikram Reddy from Yale if/when I am ready. As for your questions gary here's what I can remember from the meeting. LDN in the few patients he tried it with...
So I honestly can't remember my last update, probably a few months back. Same old story though, back on prednisone, with a double dose of remicade and 6mp 100mg. Back off predisone as finally...
frequency is down (2-4 times a day), urgency is better but not great. but it still hurts to go which I think is a combination between the fissure and the UC affecting my lower parts.... the...
ok the medicine he called in and I picked up is called HC Pramoxine. i don't know if I should give that a few days before i incorporate the colocort or not......
yeah when he went over my last colonoscopy results (from march) he said the only part of my colon that seemed to have been spared was the ascending colon. but that was then and this is now and my...
i'm picking up the rx today when i start feeling a little better. i don't remember the specific name, but he said there was a numbing agent and a topical steroid that I apply with an applicator. oh...
So the last two days I've seen little to no blood etc and formed movements but I still have questions and concerns. When I go, it's still very uncomfortable/painful and the results are very narrow...
yeah i asked today, and he didn't want to do it yet. oddly enough he was the one that suggested it two weeks ago. it's on the table but he thinks it'll come into play in the event i need to go on...
i'm giving my GI a couple more months, but if increased remicade doesn't work, and 6mp doesn't work, then i'm probably heading to Yale for a surgical consult. I want my life back....
:(. It sucks that this disease can just show up out of nowhere at times. I am glad to hear you managed it well and that things improved quickly and it was more of a mini flare than a prolonged...
so in another interesting turn, my GI determined I have a fissure. He said it might be causing some of the symptoms I have been complaining about more recently. i wish my stupid digestive track / bum...
so GI appt today @ 330. and of course this is the first day I see a more than marginal improvement. usually when I wake up it's accompanied with discomfort, urgency and blood/mucous. well today i...
heh, see my thread a few pages down. :( this was short lived. by july i stated to get sick which transitioned into an all out flare a couple weeks ago. got an infusion this past tuesday and while...
lol bowl of icing eh. have you gotten into paleo baking? i found a ton of great websites I can dig up if you're interested....
still struggling, but i have seen solid stool the last couple days, although during the sessions where it's solid it hurts alot to pass :(. sadly i am still seeing some blood and other "stuff". i see...
i'm impressed, i only made it a month when I did paleo... wish it helped your UC though :(...
i haven't been but twice my GI advised that I consider it....
i actually was put on humira first, and it didn't really help. i was on it for around 10 months when we ended decided to make the switch to remicade. remicade was remarkable and am holding out hope...
infusion 1: 3/25 then i had infusions 2 weeks later, then 6 weeks later then 8 weeks later... so i got through the loading phase and seemed alright up until the july infusion. some blips on the...
bentyl is one of those things where it won't work if you're cramping already but if you take it every 4-6 hours it will reduce cramps to some degree. it eventually lost effect for me though and I was...
pretty sure it's another delayed release mesalamine....
i actually started remi back in march and within days the symptoms really improved rapidly. 3 days after and I was basically going twice a day with no blood/mucous etc and this was coming off a very...
i'm stubborn, i refuse to go back on prednisone. but uceris doesn't seem to be cutting it fully but we'll see. ideally if i could use uceris as a maintenance drug i would try. history has shown i...
i would attribute it to food related as well. beans are high in fiber and can be tough on the system, combine that with veggies (which can also be tough to break down) and spices and i'd be shocked...
couldn't agree more. i want the infusion to work so badly that i'm over analyzing every little thing....
frequency has decreased slightly but i'm still definitely experiencing some discomfort, urgency etc. still seeing some blood and other 'stuff', but did notice my last BM was solid narrow formed and...
i don't think i've ever met a mesalamine that didn't make me worse. :(...
sigh i can't tell if the infusion has helped. i've had to go 6 times today, i've seen some blood although it looked more faint... i know one day isn't enough to go by but i'm trying to lean on any...
yep biopsies confirmed the obvious for me as well. both GI's that i've used knew exactly what I was dealing with via colonoscopy but were thorough and confirmed it via biopsies. meh....
depending on where your inflammation is, this stuff can give some great relief. It's simply another weapon against infammation and I would at least try it out and see how you do....
well i can't really tell if this infusion has helped or not, obviously have to give it a few more days to see... prior to the infusion @ 1:15 I went 7 times in the morning, and from 4pm to 4am i went...
Making it mandatory would clearly be a mistake, but giving users the option wouldn't necessarily be a bad thing....
When you talk about what you've tried can you be more specific? Oral meds could mean tons of stuff, same goes for diet changes as well as pretty much everything else you brought up. The more detailed...
yeah, as banangirl has said, there's no real way of telling. i know mine went away pretty quickly during my last prednisone episode but it really varies from case to case. glad to hear you're feeling...
while it's far too early to tell i really don't understand how Remicade can work so quickly... to go from such a poor health state to a rapid recovery, i just don't understand how it's possible. i...
The side effects will go away with time. I can't be sure it'll go away by the 27th but I also wouldn't be surprised if they do. The important thing is you're feeling better...
oooooh. i'm sorry, i was reading/posting while i was getting my infusion primarily and didn't realize it was actually effective again after the layoff... hm, well remi sometime just stops working, my...
the reason it's not working now is you created antibodies after going off the drug.... it's not the kind of drug where you can go on and off and have it remain effective. when you started it, your...
Made it through the infusion without having to run to the bathroom... Went home, had a snack and so far so good . If this was yesterday, pretty sure the action of eating something would trigger a bm....
I'm not on it, but my doctor is thinking of putting me back on 6mp. Yes from what I understand the chances increase, but the difference is negligible as they are so remote. Apparently the work in...
Maybe, I personally didn't have luck with it but others have. It's surely worth trying...
Infusion started at 140, and I'm already bored to death. I'm trying not to stress, trying not to think about antibodies or anything for that matter but my brain just won't shut up. They put a damn...
Yes, from what I gather if you discontinue Remicade for a prolonged period of time, the body is more likely to create antibodies. I got this information directly from the resistant program hotline...
this is my mindset completely. i feel like a stupid guinea pig trying all these different drugs, responding initially to only get worse after. is surgery easy? nope but to me it's starting to become...
infusion @ 1:15 and i'm really struggling this morning. i got hungry last night and had chicken noodle soup and a bunch of oyster crackers. kinda regretting that right now. i guess the silver lining...
today has been rough to say the least. hopefully tomorrow will be better since I really don't want to get sick during the infusion. i've eaten a cliff bar and two piece of string cheese all day, and...
it's pretty much the same, considerable pain, bleeding and urgency. tomorrow is remicade and i hope helps get me out of a flare. i think if apriso was truly making me worse it'll be a few more days...
i've been eating clif bars. super calorie dense and was tying to eat 1 or 2 a day to prevent further weight loss during this flare. even so, still losing the weight but they sure are tasty...
didn't take it today, wondering how long it will take to get out of my system... i assume a few days as I think that's how long it took me to start noticing some differences when i was on other...