Hi everyone, I've been on the UC site since February, that's when I was Dx with that. I went to my Dr. today, he thinks I have IBS-C (with UC). He prescribed Amitza for me. I just did some research,...
He did (for the 2nd sigmoid) the first one I was fully awake and in pain. Results said "non-specific colitis"?...
I am so confused and so done! Dx on February 18 after sigmoid showed a great amount of inflammation, (my 2 [2]nd [3] Dr.) said, without a doubt you have UC, put me on Lialda, Pred, donnatol, and...
Thank you all so much. I took 2, headache went away...now its back. I'm wondering if this is from tapering pred? I am on 5 mg every other day (just started) this is first day with NO pred in me. Yes...
I'm wondering why now. When my first flare started I was taking 12-14 Advil a day for a month (to help back pain), after he did my first sigmoidoscopy he said he didn't want any medicines (other than...
Hi, So, I "coming out of my flare" - 3.5 pretty good days. However I have a massive headache (for 2 days now) - My Dr. is on vacation this week. 2 weeks ago (when I was really flaring) he told me no...
An Executive Assistant for 2 VP's and team of 12 for large company. Most times very high stress, not so easy to call in sick (only missed 2.5 days)...they have been pretty patient so far with me the...
Coffee???? Yummy...why did my Dr. tell me to not drink coffee anymore? I've had 1 cup since Feb. 18, miss it.......
Thanks for the head's-up...I just called Dr's. office to ask them to please call into my pharmacy, he goes on vacation tomorrow so hopefully I'll get it. Thanks again....
I asked the Dr. if I needed a prescription and he said no, that I can order online or check health food/drug stores.... UGH!...
Hi, So my Dr. wants me off the Align and start taking VSL #3 DS 2x a day....I just ordered some from Amazon, but it won't get here until March 26. Do any drug stores, health food stores carry this?...
Yes, I have ankylosing spondylitis, tested positive in 2011 for the HLA-B27 Autoimmune gene. It was actually an AS flare that kicked my first “real” UC flare (although small flares since 2010). I...
I had a Hysterectomy (still have ovaries) in May 2010, issues with my stomach started in July 2010....when I asked my GYN, she looked at me like I was crazy? My GI said "anything is possible" ...
The first he did awake (feb 18) - I came to him through my GP (he had a wait of about 6 months) and my last GI would not give me any meds, just lots and lots of tests, and wouldn't call it UC (even...
I was supposed to go to the Dr. tomorrow for the results of sigmoid biopsies, but since I was in urgent care on Saturday and the Dr. there had given me Maalox (which made me go the bathroom 15 times...
I'm so happy to have read this...today I cleaned 2 bathrooms, collected garbage around the house and dumped in, when I got back inside I was completely exhausted...cried first (Its been a rough...
Should I take 5 (now) to add to the 10 I took and take 15 tomorrow until I get to my dr. On Monday?...
Thanks, long history with BP, in before -2009 I was extremely overweight and had high BP, on meds, I lost 88 lbs. BP normal (around 120-70...until now with pred....its around 155ish over 95 ish......
Thanks all, I just spoke to the "on-call" gastro Dr. He said he doesn't think its taper, maybe B12 shot? And to NOT take the mylanta, that could give me D again...and to follow up with my dr on...
Are these symptoms of tapering too fast? I've never been on pred before......
I don't think its a panic attack. But who knows? I was on 40 mgs for 9 days, then 20 for 9, 10 gs (starting yesterday for 5, then 5 for 8 days?...
I started tapering pred from 20 to 10 yesterday. I also got my first B-we shot. I woke up this morming feeling like an elephan was sitting on my chest, pain, pressure into my chest, neck area. Waited...
I know I'm new here, so...I actually ate nothing but toast for breakfast, applesauce between, 1/2 cup white rice and 1/2 grilled chick breast with 99.3% fat free broth for lunch and dinner, and jello...
I'm still going (soft, not d and no b) 5-7 times a day, and pain that moves around - from my belly button to right to left, moving down. BUT...compared to where I was on Feb. 18 and for almost 2...
I'm hoping since so many of you have experience with pred you can help me, this is my first time. I was on 40 mg. for 9 days, tapered to 20 for 9 days - tomorrow Dr. wants me to go to 10 mg for 4...
He did take biopsies, and funny enough - I had a colonoscopy on December 6 - they took out 3 polyps, he took another 2 today....rectum was inflamed and I took Canasa and Hydrocort. supp. for a month....
On February 18 I had a non-sedated sigmoid (was bleeding and going D about 12-15 a day) and he said without a doubt UC....??...
the little bit is in the colon? and no - he didn't want me to do prep - he said since I'm going so often and eating so little, he didn't want to irratate me further and that it wasn't necessary....
So I had my Sigmoid today….craziest thing I ever heard. Before he started he said he’s (at this point) labeling “non-specified” Colitis, that it may be Crohns/Colitis? When I was done, he said there...
Thanks everyone, I spoke to Dr.'s office yesterday, since I'm going in this morning for a sigmod, Dr. said "leave meds as is for now, based on what I see, we may change all anyway".... Any...
Thanks so much everyone. I'm on Align (once a day, not sure if that's enough or "right" pribiotic), I start B-12 shots today!!! I will look into L-glutamine. I have a call into the Dr. the nurse...
oh that's a good idea....I'll try. Thanks so much!...
The Lialda copay (coupon) - still costs me $110.00...Canasa was $130.00......
thank you all for your suggestions. As far as VSL being expensive, I have insurance, but for some reason all of these meds have been so extremely expensive - it's crazy! but if it works, I'll try it....
He hasn't given me another taper day, I was thinking he would tell me more Wednesday, based on how I was feeling. I'm not sure if the rectal meds worked, I was on them for 3 weeks and nothing, he...
Hi, So, I'm the one that the Dr. started tapering my pred only after 9 days, from 40 to 20 on Wednesday (last week) and finally started the Vancomycin that he had prescribed 2 weeks earlier (I hate...
I too drink a lot of peppermint tea either hot or cold, with a little bit of honey in it....
I've had IBS issues for as long as I can remember. Symptoms became worse and worse after May 2010, not diagnosed with UC until Feb 18 of this year...so very new to all of this. Thanks all for your...
Thanks Q I had a hysterectomy almost 3 years ago (which is I swear what kicked my UC into gear...only diaganosed this Feb., but symptoms since then). I'm having pain, bloating - just uncomfortable....
So, I was stupid and thought since I felt better for 2 days I could eat pizza (it's called grandma's, very little sauce, very little sprinkled cheese). I was fine last night EXCEPT (and this has...
When I went to my new Dr. a couple on Feb. 18, he ordered all my meds + vancomycin. I hate antibiotics, they always bother my stomach - so I didn't take them (filled rx, but didn't take) - he asked...
I’ve always had a troubled stomach and had to be careful of what I ate, but in 2010 I had a hysterectomy (kept ovaries) – 2 weeks after that my eating changed completely. I suddenly became allergic...
Thank you all...I really do appreciate all the comments! Teddtlove, did it work, or did you symptoms get worse. I don't know if it's my imagination (I doubt it), but I'm having more pain this morning...
So at this point what do I do? Should I do it on my own and take 30 mg? do what he says and see what happens or call him and disagree with him? I had to move heaven and earth to get an appointment...
(I had blood work done Monday night, after I had a gatorade) he walked in today telling me my sugar level was 380...I explainned about the Gatorade, his nurse took a finger prick and it was 89, he...
Thank you all. I've been on for 9 days. I even asked him "are you sure you don't want to go to 30 mg"... :) he just smirked at me, he is a very good Dr., just concerned that I'm not even 75% better...
I went to the Dr. this morning for a follow-up - explainned that while there is no more blood - and I've gone from 10-15 D a day to 4-6 soft a day, still pain...dr. wants me to taper from 40 mg. pred...
Maybe, although it was normal? I will tell Dr. tomorrow when I go, thanks again so much Madcat25. This is all very confusing and scary at first. Helps to know I have this forum to come to....
worse when getting up, but I type all day -- so sometimes when I look-up fast too, almost like I can't catch my breath (sounds crazy I know)... It's better this afternoon then this morning. I take my...