No issues for me after the 1st Moderna vaccine, other than a tender arm....
Agreed - I've had them melt and re-harden after they cool....
I'm a vegan and eat a lot of nut butters. Peanut, sunflower, almond. One of my favorite snacks is a mix of really creamy peanut butter, unsweetened apple sauce and cinnamon....
Dairy - might be an allergy though....
Diagnosed at 29, now 30, no surgeries yet....
I use dicyclomine from time to time as well. That seems to help....
That is one way to look at. But I'm not worried about people taking it for other diseases. I would imagine the odds would be similar, small as they are. All the best to them but I have enough on my...
I exercise all the time while flaring - one of the few things that take my mind off of it! I'm lucky to have a gym with conveniently placed bathrooms :)...
I'm on Azathioprine in addition to Canasa and Lialda. Been on it for 9 months at 125 mg with no side effects. It seems to be working (knock on wood). I've been off pred for 3 months. 1-2 BMs per day,...
I noticed mine on my temple/forehead area. Oddly, I only noticed it the first time I was on it at 40 mg. The second time, at 60, I didn't have any. It cleared up within a few weeks once I tapered off....
I eat salad almost daily with no problems. I do try to avoid raw veggies when flaring at my doctor's suggestion though....
I just told my GI that I was having cramps and constant stomach aches and he prescribed Dicyclomine. He said he prescribes it to several patients. It really seems to help....
Once for 6 weeks and once for 6 months. Been off of it for 2 months or so. As my GI says, everyday off Pred is a good day. I gained 5-10 pounds, night sweats on higher doses, anxiety, some acne. I'm...
I've both checked and carried on enemas. I saw it as hedging my bets in a way - in case luggage was lost or carry-on ones were confiscated. One of the TSA agents took a look but let me right through...
I'm a vegan - well at least 95% of the time. I do have meat on occasion. Maybe once a week at most. I can't tolerate dairy so avoid that pretty much completely. I wouldn't say that I do it because of...
Did you try lube? I initially would lay on my left side similar to how I did the enemas....
I had issues too at first - more so with enemas. I had been using those for a few months before starting on Canasa so I would imagine that I would have had a similar experience as you. My first few...
125 mg Azathioprine here for about 7-8 months. It seems to be helping but tough to say. I have had no side-effects....
I have the same from time to time. No recent c-scope....
I would call your doctor. I weened off it much more slowly than you. My GI also bumped it up to 60 as I didn't react to 40 at first. It took a few days (even on 60) for it to "kick in."...
Similar experience here. I'm hyper-aware of any digestive pain/discomfort to the point that it's all-consuming. Not all the time but enough that it became a huge distraction at work and drove my...
CPA in the investment management industry....
Have you thought about an anti-anxiety drug? I know some are hesitant to add more drugs to the mix but I've found that it really helps to keep my mind "in line." I don't spend nearly as much time...
I don't think it would be dangerous or futile. I was on canasa (suppositories) and Cort enemas at the same time. Same day, different times. My doctor suggested taking them at different times as...
Also on Azathioprine at the moment (125 mg). I started taking after flaring again while on just Lialda. So far so good. No side effects. I'm off Prednisone and doing well. I'll be much happier if I...
I eat them just about every day and have no difficulty other than the occasional gas mentioned by others. I do avoid when flaring as they seem to cause an inordinate amount of pain....
Sorry to hear that - hope you are better soon....
Any update on this? Curious to see how the first week or so went. Thanks....
Agreed - if I'm not feeling well, not taking any chances!...
I take them more because I don't eat much in terms of animal products. I don't really think it affects my UC one way or the other....
Ha well it's much easier said than done. But something I try to remember when I start to rack (sp?) my brain because of this crazy disease. :smile:...
I use a less potent variety of Renew Life (80 Billion I believe) and it seems to help. I upped it to two pills daily (inadvertently) and felt better than I have in a long time. So now I take two...
Great post ItsAlwaysSomething... Those are really good rules to live by for anyone with UC regardless of age....
I eat a "green" smoothie every morning for breakfast. Consisting of some combo of kale, spinach, romaine lettuce, bananas, mixed berries...really any fruit with some almond milk, cinnamon and flax...
I did the same yesterday...had processed sugar for the first time in 6 weeks or so. I figure it's a roll of the dice but seem fine today. I'm still skeptical on the one to one correlation of any...
Diagnosed at 29...30 now....
Two per day for me but currently on Prednisone. 6-8 on my worst days of a flare so not too terrible....
I have not noticed that side-effect (currently on 125 mg daily). Sorry not much help....
I do too. I attribute it to either the azathioprine or prednisone as I have never noticed when I was not on those drugs....
Definitely see if you can get some more hydrocortisone enemas. I was in a similar situation as you a month ago (not quite as bad) and they seemed to help greatly. For me, no enema at night = blood in...
I'm leaving for a 10 day trip to Ireland a week for Saturday....so hopefully will have a happy, "incident" free post to report back. Luckily, feeling a lot better than I was a month ago so hoping...
My GI has told me several times to avoid alcohol. In fact, he said no food will cause a flare but, in his opinion, alcohol can. I know this isn't necessarily the case with all. However, I've drank 3...
No dairy here! Almond milk is another good option according to my girlfriend. I can attest that the dairy free/almond milk ice cream is fantastic. Although still loaded with sugar which I'm trying to...
Best of luck!...
I also say it's similar to Crohn's Disease. That name sounds less foreign/obscure it seems to a lot of people. People are a lot more familiar with the name from my experience for whatever reason....
It's really not bad at all for me. A little weird figuring out how best to "maneuver" (for lack of a better word) at first but it gets easier. I'm a pretty heavy sleeper so I use it right before...
Have you tried hydrocortisone enemas? I had a similar experience and that's what my GI suggested. Tough to know if it was the enemas that helped but they didn't seem to hurt....
I usually feel great first thing in the morning... A little sore shortly after BMs and then poor from lunch til I leave work. Probably stress! Seems to improve as soon as I get home....
Great - thanks for passing along. Here's an older one (you all may have already seen) from the NY Times:...
I had absolutely no luck keeping those things in either! Came right out within an hour EVERY time, melted bits just as you said. I've had much better luck with cortenemas and hoping my doctor will...