I just had my 3rd colonoscopy, and my first under a new "CDHP" high-deductible health plan. I learned that once you're diagnosed, your procedure is a "surveillance" procedure that is...
I got my American Gut results as well! At the time of sample, I was feeling great and taking VSL#3 DS. Evidently I'm in the over-abundance of Firmicutes camp, and I'm missing some of the more common...
For years, I have been a huge doubter of the gluten-free craze. When my sister went GF, I totally thought she was crazy and was not at all supportive. I developed UC 4 years ago and have tried...
I soooo hate Medco / Express Scripts. It has gotten much worse over the past year since they merged (or whatever). The website is terrible - it doesn't show all of your history. They have randomly...
Beer....
I go to a plastic surgeon who has a cosmetic aestetician in his office, they offer Botox (and restalyne and latisse, facials, etc) for cosmetic purposes. My migraines are always triggered by outdoor...
You Tube (but only audio) interview with Dr. Gunn about Site Specific Immunomodulator (SSI) treatment http://www.youtube.com/watch?v=JC6U83EgYAI Around 3:55 he talks about results of the small study...
I have been getting Botox injections into my forehead for 2+ years to treat ocular migraines. It works great, my headaches / nausea / misery of migraines is basically gone although I still get the...
If you really have mild inflammation, you might not feel anything as it goes in, especially if you are lying on your left side. When I use them with high inflammation, it really hurts -- you can feel...
How much do you take every day?...
Yesterday I saw an episode of Dr Oz where they show a spit test for candida overgrowth (you spit into a cup of water first thing in the morning and if it grows legs downward, you have too much...
I was 35....
This was such a great read with new info. I always thought of maintenance meds just as oral ASAs (meaning I have accepted that Ill be taking Lialda or some other kind of pill forever). This article...
So what you're saying is that I should give up the dream of medicinal marshmallows (Best. Medicine. Ever.). Sad, but one less thing to worry about. Thanks!...
I guess I am not sure either. The very first posting of the "Resistant Starch Diet Improves UC" thread was an article called "Abnormal fibre utilisation and gut transit in ulcerative colitis in...
Thanks for all of the responses! It's usually formed (sometimes soft-ish), more now that I started SB. It's never been orange. Dark brown when I eat blueberries, but not all of the time; mostly I...
Psyllium husk (Metamucil), Citrucel, and later Benefiber is what (I believe) started this flare in the first place. Started these in January in sequence over a month until I descended into chaos....
I forgot to mention that I also started the Key-E Suppositories during the day (as adjunct to Rowasa at night and instead of dropping $ on Canasa). I can't say they're helping much - maybe they...
I have been taking BodyBio Sodium Butyrate 600mg caps X 2 or 3 per day. In the beginning, I noticed some immediate improvement. Over time the pain has migrated down my colon (I interpret this to mean...
Before I was diagnosed, it was always, everyday one time. I really wish I had appreciated it more at the time! Now, depending on how bad I'm feeling - 3-4 times in a mild flare, the worst was 7 or 8,...
What a great article - one of the most interesting things was the link to the American Gut project. It's an open-sourced crowd-funded effort to study learn about the microflora in the body....
I have been wondering about this myself. It's also related to a statement I see on the board a lot, "Future flares are always harder to treat". Is this true? Or is it just that any flare has the...
I took it for 4.5 weeks as well, but couldn't handle the relentless D, gas and bloating, and lack of improvement in my flare symptoms....
I am quitting Uceris today. It is giving me relentless D, to the point of not being able to sleep or leave the house. I am really disappointed, I wanted this to be my go-to flare drug. I made it 4.5...
Yes I have been taking 2.4g per day. Maybe that's too much? What dose is everyone using?...
Thanks so much for the quick response! It's not something I'm Really worried about, I just thought I'd canvas the crowd to see if I was the only one. I have read a lot of the research papers on this...
I started taking sodium butyrate (600mg x 2, twice a day) about 3 days ago. I am pleasantly surprised by how much better I feel! Much less pain and blood, although the D persists. The downside is the...
Today is the half-way point (4 weeks) on Uceris. I am still feeling pretty awful, but marginally better than when I started it. Lots of bloating / gas, which impedes the retention of Rowasa at night,...
Fiber, she is a fickle mistress. Fiber has caused me a lot of trouble this year. I started Metamucil in January and it caused me agony, I switched to citrucel and then to benefiber, but I think I...
I agree that getting up earlier is a good strategy. I don't work from home, so now that I'm in a flare I get up quite a bit earlier and do a quick, gentle workout to get things going (I have some 10...
Today is day 21 of Uceris. I don't know that I've seen any big improvement, but I think that is my fault. I have been making major diet changes - adding in a lot of Resistant Starches over the past 2...
This press release came out 4/10/13:...
I have a thought about why the Spinach / Sunflower seed diet might help, and it relates to some other threads/news I've seen recently. First, Zinc. Deficiency seems increase gut barrier permeability...
I am on day 14 and seeing small improvements. Like Eva Lou, my RX only cost like $65, so it was worth the gamble. I still have symptoms (urgency, blood, pain, M, on-and-off D), but they are gradually...
Thought I would post an update. Today is day 12 on Uceris, I totally turned a corner this weekend. Is it the Uceris, the Rowasa or the resistant starches? I don't know, but I have less pain, urgency...
Today is day 8. Generally, I'm feeling good (really energetic, not much pain) but I am still having major symptoms - blood, urgency, M, D, etc. I'm on Rowasa too, hoping that will help, but today I'm...
I'm on my second week of Uceris. My RX says to take one (1) 9mg pill every day. When I was on Entacort I took three (3) 3mg pills a day. I took this off the Uceris website: "Because of the way UCERIS...
I'm only on day 7 of Uceris, my RX took forever to get approved and processed. I can't tell if there is an improvement - things are getting better, but I've also been loading up on spinach, resistant...
I'm on day 3 of Uceris. No nausea or any side effects, really hard to tell if it's improving symptoms because I re-started Rowasa at the same time, but I am feeling better - less urgency, blood, etc....
I have been following this thread with great interest and plan on getting some Navy Beans ASAP. I'm also expecting my RX for Uceris to show up today, and I'm wondering if a diet high in resistant...
Cipro is what I take for a UTI. After my diagnosis, I talked to my GI about antibiotics that don't cause more UC symptoms just in case of a UTI and he wrote me a preemptive RX. I would advise you to...
Back from the GI today. When I told him about fiber causing me issues (which have continued to my dismay) he asked, why are you taking fiber? Because you suggested it! He said to stop and gave me an...
http://www.sciencedaily.com/releases/2013/03/130304105658.htm News about leafy greens came out today. It turns out eating a lot of greens turns on some good inflammation-suppressing genes in your...
Thanks for all of the replies, I love knowing I can come to this forum when I have questions or angst. It feels great to have such support and dialogue. PB4, I had been taking fiber since the new...
I suppose that is the other possibility, that its not the fiber but a flare. I guess I'll find out when I stop the pills. The awful pain and blood has been very different this time, happens only...
Has anyone tried this new formulation of topical steroids? I think it is just coming out in the US now....
Hello Forum Peeps! For the past -2+ years I have been in remission, which I attribute to my daily devotion to spinach and olive oil. I eat olive oil every day (usually 1-3 tbs depending on how I...
Love being in remission, but I am really not looking forward to my upcoming colonoscopy (and the dreaded prep) in November. My GI insists that as a UC'er I need to have one every 3 years (so this is...
I just wanted to post to thank the universe again for this site. It seems like at every low point of my UC, I have come here and found information and comfort that was badly needed. After a 2+ year...
Thanks for both replies to my pity-party-post yesterday, I really appreciate the virtual support -- I am feeling both (MYUC's) positive vibes and (Bowiestar's) kinsmanship of fatigue at UC's...