ks1905...excellent suggestion. I do that with my lialda.He had me on 4 pills and I went down to 2 but didn't change the rx, so it lasts longer. Still don't have it. My pharmacist sent out a search to...
When I was in a bad flare two years ago I had bladder issues as well. I took an over the counter medicine from the drugstore for bladder infections. It really helped. My theory is that when your UC...
ks1905...good point about the people who need aza for organ transplants. It is totally unacceptable that this is happening. What was also bizarre was that my nurse said I was the first patient to...
GOOD NEWS! My doctor's nurse was able to locate some Imuran (the name brand for aza). Walgreens is getting it in tomorrow. I'm hoping my insurance company doesn't give me a hard time about not using...
Thanks! I will call around to other pharmacies. It's just odd and no real reason is give. Soystud, thanks for the link. I've never seen that site before. You're kind to take the time to post that....
Hi All, I haven't posted in ages. I went back to work full time this summer as I sent my second child off to college. I just had my colonoscopy last week and I am fully in remission! No inflammation...
I have GERD too. I take the generic prevacid from Costco. I have taken it every day for 5 years and it works great. If I forget to take it, my body reminds me after my first cup of coffee!...
Yes, I did take pred. I was on it for 5 months! It stopped the bleeding and really helped, but was obviously not a long term solution. I gained 25 lbs, didn't sleep I was up to 60mg a day. Once I...
I've been on Imuran for a little over a year now. It's similar to 6mp. I'm on 175 mg and am in remission! The imuran starting working after about 6 weeks. We played with the dosage a lot. My doc put...
Not boastful! It's nice to hear some good news on the forum. Thanks for reminding me to take my Vitamin D! Congratulations. Stay well :)...
I'm with Annadee. Popcorn is intolerable for me when I'm flaring. Now that I'm in "almost remssion" I have tried it. If I eat just a little, I'm fine. Too much will give me blood. IMO, it's just not...
Thanks everyone! I'm taking them now. I think I'll move my meds to the kitchen again. I didn't forget to take them when they were right in front of me!...
Hi, Well, good for you that you're going back tomorrow. I am curious, however, about the bathroom issue. If you're not supposed to use their bathrooms, what are you supposed to do? It seems...
Lately, I've been forgetting to take my Lialda and Imuran until late morning. I like to eat before I take them, so I don't take them first thing with my prevacid. Today, I totally forgot and it's...
Dizzy, Your apprehension is understandable. However, the fact that you made this post shows that you know you have to get on it and get your colonoscopy. Often our imagined fears are worse than real...
Congrats! I find the suppositories help so much too. Keep up the regime and you should enjoy a nice long remission!...
Thanks everyone! Forewarned is forearmed! Make sure you lay down if you're even a bit squeamish. I forgot to add that the nurse told me I was convulsing too. I'm really lucky that I didn't hurt...
I've had 2 flex sigs with no sedation and it was just fine. Of course, for a colonoscopy, I get sedation....
I have a gorgeous 10 year old purebred collie. He's a blue merle, with exquisite coloring. He's really big...100 lbs. Last year when I was flaring badly, I couldn't walk him much, and that was hard...
Shearbear, I didn't watch, so I thought I would be ok. I think it was hot in the room and I was more stressed than usual because of my son. My doc's making me get another draw next week. I'll have my...
Katie, do you still live in Northern Wisco? We have a place in Phelps, 25 minutes northeast of Eagle River. We were just up there last week. I LOVE the Northwoods!!! My husband is there now..30...
Prednisone did the exact same thing to me. It's really scary. At one point, I thought I was having a heart attack at Target. My 13 year old calmed me down, saying "Mom, it has to be the evil steroids...
Well, friends, I thought I would share a recent UC story. After my checkup with my GI after Christmas, he increased my lialda (I'm also on Imuran) and told me I had to get a blood draw every 2 weeks...
I, too, was in remission and stupidly stopped taking my lialda and cortenemas. It all came back so much worse. Now I'm on Imuran, getting blood draws every 2 weeks. I still take my suppositories...
Eva Lou, You are right. They did take the polyp out and biopsied it. So, I knew when he said yearly scopes I would do it. I just needed support. I have it. Thank you all!!!...
MossPiglet, Yes, you are right! The four days after my scope, I feared my flare was back. Things were not good. I asked the doc if the scope could do that and he said "no", but I know he's wrong. How...
Hi B, Thanks. It's been a long, ugly road but I'm finally doing well! My husband remarked the other day when we were out at a Christmas party and I was dancing like crazy that "you're back!" I really...
Hi All, I just had my 2nd colonoscopy a few weeks ago. My first was 5 years ago (I'm 49) whaen I had GI symptoms. The scope was clean, but a few months later a flex sig showed mild proctitis. Anyway,...
I read your post and would like to share my experience with you. This time last year, I was a complete mess. Last December I was on 60 mg of Prednisone, which finally stopped my bleeding. Obviously,...
Yep, same here. My broker said we had to add it...for all kids under age 20! The joke is that I spend $700/year to have all of my 3 kids teeth cleaned every 6 months( $110/per cleaning/checkup and...
Hi Callah, I too have proctitis. When I was first diagnosed, the doctor put me on canasa, which are rectal suppositories. They are really helpful with proctitis and worked great. Then, I got lazy and...
I just had my colonoscopy last week and did the suprep. My scope was scheduled for 12:00pm but was delayed until 1:45. I did the prep exactly as directed. I was still "going" a few minutes before the...
I just had a colonoscopy yesterday and SO enjoyed me meal afterwards: A Belgian waffle with fresh strawberries and whipped cream with a side of crispy bacon. YUM!...
http://www.everydayhealth.com/columns/ali-lambert-voron-no-colon-no-worries/my-visual-journey-with-ulcerative-colitis/?xid=aol_eh-digest_3_20130311_&aolcat=AHD&icid=maing-grid7%7Cmain5%7Cdl6%7Csec1_ln...
I ALWAYS get the flu shot. My son has Type 1 Diabetes and his doctor instructed the whole family to get the flu shot to protect him. Thanks for the reminder, my daughter still has to get hers! Also,...
Thank you for sharing!...
I agree with iPoop. I experience the same thing. Also, because I take a suppository every night, the first morning BM is not pretty. I usually don't have blood anymore, in fact, if I forget to take...
I too have severe proctitis. I tried canasa, lialda, cortenemas and suppositories and eventually last summer had to go on prednisone. In December I started Imuran and just this July I am almost in...
Hi Machina, I had some joint pain (especially in my fingers) for a few weeks when I started the Imuran. It's now gone. Also, I gained 20 lbs on pred (and I was overweight to begin with). Over the...
I've been on Imuran for 6 months and it is definitely helping. I am not in full remission, but some days I am close. I find that when I get lazy with my rectal meds, symptoms return. I am still...
Nightside, I am glad you posted this. I have been on Imuran for 6 months. It has helped, but I am not in full remission yet. My doc is upping my dose carefully. I take 150 one day and 175 the next. I...
I feel your pain...and your gain! I went off pred at the end of January and I only have lost 6 lbs ( I gained about 20). I am exercising like crazy...spinning or elliptical for 45 minutes a day/6...
I'm on Imuran, at the tail end (LOL) of a flare, I hope, and I just had a nice big glass of wine. One occasional drink doesn't hurt me, but I would not do more than that while flaring. It's just not...
I travelled in February when I was on 40 mg. The doctor knew about it and did not advise me against traveling. I was fine.I have never heard this before....
I am on my 3rd Chicago area GI and he's great. His name is Dr. Joel Retsky. He's in Highland Park with NorthShore University Health System. I am doing so much better with him and am near remission!...
Sorry I signed off as "Coco"...that's my nickname. I'm "Cita" on the forum! Oops....
I started Imuran on December 5. It has helped, but my doctor is still trying to figure out the correct dose. I don't think we've hit maximum efficacy yet. I was terrified of trying it and put it off...
Hi UCwhat I am a voracious reader, and even more so now that I have UC. I am also in a book group, which I love as it really expands my horizons. Reading helps me escape and feel mentally strong. If...
I just went completely OFF pred 3 days ago and am doing pretty well. ( I started at 60 mg in November) I was on a moderate taper...did 5 mg for 5 days, then 2.5 for 3 days, then off. I have to agree...