I'm in remission for about 4 years now. First time I think the remission was about 7 years. Ive stopped eating asacol but still use pentasa occasionally when I feel that my colon is giving me a bit...
Hi there I know this topic (Vagus nerve stimulation) has been raised by old Mike before but there's some emerging research in this area so wanted to check if anyone on the forum has tried this novel...
Just a bump from me; doing well have not done a FT in around 2 weeks now I think and the lingering blood is either not there or it's been so tiny that I have had to check with a flashlight to notice...
Just an update; that last lingering blood seems completely gone now - not seen any for around 10 days. I'm most likely going to be switching over to using anti-inflammatory diet going forward. My GI...
I would echo and agree with the previous posters. I would look at FMT with similar eyes as you look at probiotics. It most likely helps but doesn't cure the condition. I'm doing pretty good but still...
Another bump - no symptoms at all and still 2bms per day which is what I usually have when I'm not in a flare. I'll make the bumps more rarely (sorry moderators if the bumps bother you!). It's just...
Thanks for the heads up on fish oil - yes I might back off these for a bit. Seems like its the oil itself that can be inflammatory sometimes (not the Omega-3) and that its hard to know if the oils...
Probably worth mentioning: I have added some vitamins to my diet: Fish Oil (Omega-3), Vitamin D and a multi-vitamin tablet that contains calcium, zinc magnesium among other things. The vitamin...
Just a shameless bump. No change in symptoms and feeling good. Feels good to be off prednisone, gonna enjoy it while it lasts....
Possibly a bit early to declare that the flare has ended but have not had any symptoms or traces for around a week and I'm out of prednisone since a few days so I think it would be fair to at least...
Just a quick update. No symptoms and have not seen blood at all for around 4 days now (not even the tiniest traces). Feeling well, still a bit more flatulence in the evenings than I would like to...
Did a good transplant yesterday and have 0 symptoms today. I guess my colon is addicted to my wifes poo. Last day of prednisone today My plan is as follows: Carry on with fmt+pentasa and hope...
Just a small update; there's still inflammation lingering around, unfortunately. I have been skipping doing FMT every other day and I can see traces of blood in the stool. Quite demoralising to be...
I won't be posting updates as frequently as previously unless my conditions change. 3 more days of prednisone. Skipped one day of FMT and didn't see anything different....
@TroubleTurds thanks for hanging around! Hopefully, this thread will keep getting more boring ;-) No changes in symptoms. Still, have a bit more flatulence then I would like. Esp in the evenings. I...
No changes in symptoms had a late and small transplant yesterday but perhaps better than nothing. Its around 8 days now since I saw blood...
No changes and no headache today (yay!) ------------------------------------------------------------------------------------------------------ DAYS SINCE FLARE STARTED: ~66 FMT'S PERFORMED: 30...
No changes today just nasty headache in the morning ------------------------------------------------------------------------------------------------------ DAYS SINCE FLARE STARTED: ~65 FMT'S...
Good find! Here's the full article with all the details: https://www.cell.com/cell-reports/pdf/S2211-1247(19)30181-0.pdf ...
Gas is down today too which is good, got some nasty headaches during evenings probably because of prednisone. Otherwise feeling well in general....
A little bit less gassy yesterday and managed to sleep all night for the first time in a long while, which was nice. Been to the bathroom 4 times today and also yesterday but I have a feeling I get...
Sorry for the boring updates but no symptoms today either. Pretty keen on getting off prednisone soon but will take 10mg tomorrow too and then drop to 5....
Still no symptoms, but quite a bit of flatulence in the night/morning when waking up. I'm pretty confident that I can drop to 5mg prednisone fairly soon. I've eaten 10 for 5 days today so I'll give...
Another good day with 0 symptoms today. BM looks like it did prior to flaring now. Still having more gas than when normal....
@notsosicklygirl Thank you for sticking around! It is a bit comical indeed. Gave my wife a bit of a warning this morning ("I'm feeling grumpy today and I know I don't have a reason for it, just...
So far so good, no symptoms in the morning although quite uncomfortable "hold in" for too long before going to the toilet so pretty sure there's lingering inflammation. Feeling a bit grumpy today...
Pretty nasty headache during evenings at the moment, probably the prednisone/taper. We'll see tomorrow how dropping to 10mg pred goes. Intending to carry on with FMT until at least a week off pred...
yes hard to know, there was serious a study from 2006 that I skimmed through which saw increased remission rates with patches compared to placebo but then other studies have suggested that its the...
Here's a good discussion around vaping vs smoking and how much you're getting: https://www.quora.com/To-how-much-cigarettes-day-is-my-vaping-equal Looks like its around 50% from what you get from a...
It may be worth trying Nicotine patches of 21mg for you since I think (correct me if I'm wrong) that you'll have to vape quite a lot to get up to the same dose of Nicotine as they have used in the...
@MariaMaria I hear you! have you tried combining it with nicotein patches? There seem to be varied results among the studies using nicotein but could be an avenue I try before going down the...
@MariaMaria well if it keeps you in remission then I guess its best just to get a good routine and then keep doing them. How often do you do them now? and do you do them a few times in a row or just...
No symptom today. Did a transplant yesterday. Yesterday was like the third time this flare that I have had symptoms the day after a day where I did not perform FMT. My stomach is quiet and well...
"Funny" how I seem to have more visible blood the day after days I have not done any transplant. ------------------------------------------------------------------------------------------------------...
Ok, so I met my doctor yesterday and discussed the colonoscopy results. Basically, my inflammation is only located in the last part of the colon compared to last time where it was pancolitis, but its...
Hi @letstryit Sorry to hear that you're struggling with your son. I don't think freezing does anything bad to the bacteria, the quality probably gets affected if you freeze it for longer than say 3...
No symptoms today - no idea what yesterday was about. I was feeling really nauseous on the evening before so maybe it was something I ate. Will not be doing any FMT today....
Didn't do any transplant yesterday and had a bit more symptoms last night and when waking up this morning. More gas last night but not a lot of blood in the morning. Still enough to be seen on the TP...
No symptoms today either, will eat 15mg today and step down to 10mg prednisone tomorrow as things look...
No symptoms today when waking up either. Going down to 10 mg prednisone in 2 days (4th of March) unless symptoms re-appear. Good transplant today @ 200ml - two bowel motions and both without symptoms...
Second bowel motion looked really good too. Planning to go down to 10 mg prednisone in 2-3 days if things still look good...
Feeling pretty good today and had no symptoms when waking up. I'm sure there will be symptoms again lingering around though. A lesson I would add to this flare in terms of the transplants is to be...
Trying to get down to 15mg again today - performed a transplant today that went well. Feeling generally quite rubbish from the prednisone taper (mainly heavy headed, tired). We'll see how things look...
No FMT yesterday and went down to 15mg prednisone. Had some symptoms return unfortunately so decided to stay on 20mg until next week when I meet my doctor. It was quite a fast taper (faster than last...
Yes I understood that much, but its still not shown that all monosaccharides would always be completely absorbed in the small intestine before they reach the colon and many of the foods that are in...
Thanks @MariaMaria! I'm thinking to do every other day now for a while - not sure how long but would be good to do it for around a week after bleeding completely stops. Still seeing a tiny trace of...
Good transplant today @ around 200ml ------------------------------------------------------------------------------------------------------ DAYS SINCE FLARE STARTED: ~48 FMT'S PERFORMED: 16 PRED DAY:...
I have been doing pretty easy treatments at 100ml this time around so will be trying to get a couple of days of 250-300 ml next week just to add a few days with a larger, more liquid volume....
I took a break from FMT yesterday. Colon still pretty far from what it used to be (more gassy in the morning and not as solid as I would like it) so I think its good to continue with the FMT for a...
Less uncomfortable today and tiny amounts of blood. Stomach still not behaving like normal though (a bit gassy after eating) so carrying on with my transplants. I'm pretty quick with my transplants...