Very true, the UC itself could have caused the Pancreatitis and there’s no way of knowing if Lialda played a part or not. From what I understand, Imuran takes at least a month to reap some...
We are weighing our options; of course FMT being first choice once the inflammation is under control. We tried FMT when he was flaring and saw no improvement. The only medicine that he’s ever been...
Quick update We have decided not to stop the Prednisone. Today is day 8 and I think more time on prednisone is definitely warranted. There may be a slight improvement as of today being that he only...
I panicked when I saw the Calprotectin result. The biopsy results have me baffled, as I thought he had definitive UC....
Some results from sons recent hospital stay Calprotectin over 5,000!!! ESR 21 CRP 4.2 Sigmoidoscopy: nonuniform chronic active colitis, no granulomas, no dysplasia Prior to hospital admission, he had...
He has been on prednisone once or twice in his life and that’s been 6 years ago....
Thanks for all of the input. I messaged his doctor yesterday and he said we can begin the prednisone taper now since he is not noticing any improvement and has developed a cold on top of everything...
Not an easy thing to see your child in pain, but we’ve been down this road a few times and we know that better days are just around the corner. I’m thinking that by Wednesday he should notice a huge...
He has taken flagyl in the past and it always seem to help pull him out of a flare. He just started on it yesterday so it might be too soon to tell if it’s working...
I’ve been wondering that myself; maybe a higher dose is needed or maybe there is some infection. I did notify his doctor today and he said to basically hang tight until biopsy results come back. He...
My son has been flaring for about a month now and the effects were taking its toll on him, so I took him to the ER 5 days ago. He was admitted and started him on 40 mg of Prednisone…2 days later they...
Can anyone tell me how long it generally takes for Uceris to start working? Doctor gave my son a script and he started on it 3 days ago....no improvement at all...
Once a biologic is started, would it have to be continued forever or is there an endpoint?...
DBwithUC I agree that surgery is a rush decision to make. What would be a good medication to start with? Asacol and Lialda didn’t do anything for him and potentially caused his pancreatitis back in...
Hello and I hope you all have been well. I haven’t posted or even been on this forum in years because my son was doing so well after FMT’s. We did the procedure in 2013 and he was symptom free for...
To make a long story short, my nephew tested positive for Hep C, on two occasions via lab work. He recently had a liver biopsy and his doctor called to say that he doesn't have Hep C. How can this...
Hi Haale, My son also seemed to have worsening symptoms while on Asacol. He stopped the Asacol and his symptoms cleared up for a while. We opted for Fecal Transplants rather than medication and it...
It seems that a course of Flagyl and Cipro helped my son, the very first time that he took it. We thought we were onto something and so I asked for another round; didn't help much at all the second...
Have you researched Vancomyacin? Its an antibiotic, but it is showing good results for UC. A lot of GI docs will try this as a last resort before putting patients on Remicade or Imuran. It not only...
My son's doctor had him take one every other day after being on it for 6 weeks....
I'm sure a HUGE weight has been lifted off of your shoulders!! I know all too well how draining a business can be!!...
Bitterman: What was your ALP? (indicator of inflammation in the bile ducts). There is a very rare disease called PSC-Primary Sclerosing Cholangitis, and about 80% of PSCers also have UC. Not trying...
The University of Chicago is doing a Clinical Trial of FMT for UC. I spoke with Dr. Rubin last summer, and the trial was just in the process of beginning. You may want to follow up with him to get...
I'm sorry you needed this group, but glad you found it. Everyone's experience is completely different as you have been told. You will learn a lot from this group, but also do your own independent...
Oddly enough, my son has had that happen to him many times. He has been to many outdoor events and didn't even need to use the restroom for over 24 hours. As soon as he got home though, he let loose!...
Surgery isn't always a cure. There are plenty of people who develop Pouchitus after surgery. Surgery is just a more aggressive form of treatment....
Good for you jasherlynch; for being your own advocate and not allowing the doctors to dictate your treatment, which didn't seem to be working. My son had a FT via Colonoscopy in July 2013. After...
As you can tell by my user name, I am very much into herbs. The ingredients in the Wise Woman suppositories are more to soothe irritated tissue, and help with circulation, ie...hemrroids. There...
Silver is used to kill viruses and bacteria. Long term use can disrupt the gut flora, so if you use it just replenish your system with Probiotics. Don't worry about turning blue, as long as you use a...
MaxMilian, My son lives with me and so yeah, we do share similar diets (being that I do all of the cooking). He will usually grab some lunch, fast-food, but we primarily eat the same things. I tend...
Hi MaxMilian, I was my son's donor. I went through all of the fecal tests and blood tests just to make sure that I didn't have any communicable diseases or parasites....
Correction to my earlier post: My son had 4 FT's, not 5...
I just wanted to report that my son is still in remission, after having 4 FT's in July. He has never known what "true" remission is until now. He has 1 or 2 formed Bm's per day. No blood, pain or...
I am so happy that research seems to be moving in the right direction. Fecal Transplants were amazing for my son. He had 5 transplants in July 2013 and he has been off all meds and hasn't had...
DBwithUC: He was tested several times for C-diff but always came back negative. As for maintenance, we are doing some probiotics and I hope to keep things in check and also additional FT's as a...
Thank you Quincy! Hoping you are doing well :)...
Yes I do need to update my signature. Yes he is still on the Urso....
No meds...whatsoever!...
Remission!! It has been over 2 months since my son had a series of 5 Fecal Transplants, and he has been in complete remission! He says that he feels completely "Normal". I don't know how long it will...
So glad that you are doing good! !...
There isn't enough information right now on who might benefit from FT's, other than C-Diff patients. The only way to know is to try it and make sure that you get the donor's stool tested before you...
Good luck and please let us know how you are doing....
During our most recent visit to Mayo Clinic, to have my son's PSC diagnosis confirmed, we were told that if the URSO brings the enzymes down, then they urge the patient to stay on it. At last years...
FT has helped my son tremendously. I mentioned FT to his GI 2 years ago and he LAUGHED at me. The doctor who performed my son's FT's is in Florida and I DIDN'T get permission from our local GI before...
You've been misinformed. A Colonoscopy is the only way to determine if one has UC. My son's blood tests were all normal yet his colonoscopy showed Pancolitis....
Liz, Glad I could help you out with the new Gatorade flavor!! I bet you're consuming some of that Cherry Gatorade as I type!! My son is 20, soon to be 21. He really didn't mind this prep at all. He...
I have not been able to get the Vanco prescribed for my son yet...but you can research Dr. Cox and the studies that he has published on Vanco. I would print those out and take them to your doctor and...
ajnepa: No, my son's billirubin, Albumin, INR, and Protein levels have always been normal. His ALT, AST and ALP were elevated but have since normalized after being on URSO. The URSO keeps the bile...
ajnepa: My son's MRCP said basically the same thing.."Minimal irregularities in one of the bile ducts". I would say that your son is probably in the very early stages, just as my son is. Does he have...