Do you have polyps perhaps? I remember I was feeling fine but I had polyps and when they removed them the blood stopped....
I would just like to say that I was apart of an FMT pill based capsule for Colitis back in Jan. The study was called SERES-101. All I can say is comparing sigmoidoscopy pictures there was a huge...
I'd suggest adding a probiotic as well. And prenatal vitamins (the ones for pregnant women) are really good....
I personally had a bad reaction to entyvio the first infusion I had. I had to be put on an anti histamine before and after taking it. I didn't see much improvement from it. Although I only had 4...
Also, thank you everyone who wishes me to remain in remission and to continue feeling better :) highly appreciated...
Perhaps "resetting" is a bit of a strong term to use. I'll just copy what it says from the site of the institute, in their own words. "Among many other things, mesenchymal stem cells from the...
Wut? He had this treatment for autism, or something else? That reminded me of a 60 minutes piece on Stem Cell and some of unethical people scamming people. I'm not saying that Colitis91895 is being...
Wut? He had this treatment for autism, or something else?[/quote] Yes. Autism. They have treatments for multiple conditions. Autism is one of them....
My shot of Stellara costs my insurance exactly $18,000 and it's not nearly as effective and I need it every 2 months. I'm worried about the rogue reaction to the Stem Cells where they don't do as...
Juststud, the way the stem cells work is that they repair the damaged tissues in the colon and they in a way "reset" the immune system so that the immune system doesn't attack the healthy gut which...
Hello healingwell. I haven't posted here in a very long time, but I've come back to share some recent news. I had a stem cell therapy done in Panama for my ulcerative colitis, 2 and a half months...
I believe Vitamin C can cause diarrhea, I would try stopping that for a while and see what happens. Also do you take any anti diarrhea medicine?...
Take prednisone. And sulfasalazine works for me since other medal mines don't work. Also you know what was causing my pain it was a polyp! I had over a year probably. When I got it removed, I felt so...
CBD Oil & Rick Simpson oil are the best things out there in my opinion, never felt better. Helps A LOT....
Yes zantac helps me with the acid. And I'm only going to taper to 20 mg tomorrow, so its not the prednisone that caused this. I've been on 30mg for a week. ...
Hyoscyamine works in my opinion. CBD oil as well....
Personally delizicol didn't help me. I was also pooping out lialda full. Only thing that works for me is sulfasalazine. As for canasa, no it doesn't hurt. For me at least. You can use a lubricant if...
I agree that canasa works better from my own personal experience...
I am on 30 mg of prednisone as of now and tapering 10 mg every 1 week. Doctor wanted to do it by 20 mg and I told him I can't handle that because I know how my body reacts to it. I am taking 30 Mg...
I had an entyvio infusion yesterday and I've had reactions from it that I'm not sure if I should be worried about or not. I called my doctors office and he still wants me to take it but I'm so...
No I haven't why do you ask :O...
I asked my doctor a few weeks back if he could write me a prescription for VSL #3 Double Strength. He did the authorization for it and said it's medically necessary. Today i got a letter in the mail...
Yes I use lomotil now. Maximum dose is 8 pills a day. I take 4-6 depending how bad my diarrhea is. Imodium stopped working for me completely. Lomotil is an amazing medicine...
I had normal headaches from time to time. I get them now too with sulfalazine but im just used to it. Check the side effects of the medicine, and talk to your doctor about it...
Is she taking the prednisone with food? And is she swallowing the pill NOT chewing it? It has to be swallowed full. And as I said before please ask the doctor to put her on a mesalamine. Prednisone...
30 mg isn't a lot when you're have a major flare up is my opinion. When I had the same symptoms as you my doctor put me on 60 mg without hesitation. I started noticing improvement almost immediately....
Did you try Zantac? I get heartburn no matter what medicine or not so I take that....
Also I forgot to add, if she was on prednisone she should've been on a maintenance medicine like asacol. Not sure why the doctor didn't put her on that. Prednisone only works as an immunosuppressive...
Personal opinion: wouldn't suggest methotrexate for her... I know it works for some people but when I took it I completely stopped peeing( not trying to scare you) infliximab is a biologic and that...
I know how you feel... I have the same thing.. Not just on my back but hips.. Stomach... Luckily my gf understands it's not my fault and that's all that matters but either way... I feel you man....
Has anyone taken this combination before? I had a colonoscopy done and my doctor said a little bit of the colon has healed since the whole colon was inflamed, but I still have left sided colitis. The...
If it's a little bit, then yes. There's always mucus, People with UC might have a bit more. If there's mucus with blood however then there is a problem...
Few questions, one did they take biopsies? Second, was there any other symptoms besides constipation? Like bleeding? When I was diagnosed I was bleeding like hell. And it shows inflammation in the...
Not to scare you or anything but when I was prescribed uceris it didn't work for me. Not sure why exactly...
Thanks for the replies guys. Two days after colonoscopy now, still bleeding....
It's not I've been through worse... Not going to remind myself >.> Hopefully it resolves soon. I'm waiting for authorization from my GI doctor for Canasa since he said my rectum is inflamed and I...
Do you take the prednisone in divided doses or do you take 20 in the morning and 20 at night?...
How long should I wait to see if it stops on its own?...
Yes I agree. I didn't mean to say it in that way. There might be limited evidence but why might that be? Money. This MAP future vaccine is going on in the UK. But also I do agree about the genes part...
I had a colonscopy yesterday and I'm bleeding today. I've had colonoscopies in the past and I haven't bleed before. Has this ever happened to anyone? And if so for how long? Should I be freaked out?...
I'm sorry guys but you should do some more research on MAP. I will quote one part of research I found interesting "Different strains found in tissue and different outcomes to antibiotics therapy and...
My mother found this website : http://crohnsmapvaccine.com It describes how a bacteria from milk causes ibd. Future vaccine most likely available for colitis, for now it's only crohns I believe this...
Also I've noticed a weird pattern, I only see the blood in the morning most of the time. Not in the afternoon.... Maybe it's the ibs medicine doing something since I take one at night. I didn't take...
Simponi was not my first biologic, remicade was and I had a different hi doctor at that time, it seemed to work at first and then it seemed to stop. The special remicade test showed it was 100% and...
Sadly my college doesn't offer online classes I think. I've tried the no bread suggestion before, didn't do a thing with me :(...
Also the stool is bright red, so I'm assuming it's coming from a lower area....
I'm not taking the ccherbal anymore. My signature is old from over a year ago, the current meds that I'm taking are in the original post. I've tried Vsl before, just made me gassy. I still take the...
I was able to tolerate it when I didn't have school. I just stayed home all day during summer, that's what I meant by that. Also I forgot to mention my doctor said I have a fatty liver so I don't...
Hello guys, I haven't been on this forum in a while. But I need help. I don't know what to do anymore. I've been on prednisone for too long, but it's the only thing that would help me. I had to stay...
UC gets worse on a lot of things. Stress is one of them. When i was 15 i was also diagnosed with mild colitis. I am turning 18 in two months and up to my descending colon i have severe colitis. the...