I struggled till after Xmas, pred was making me fat and ill and I was waking up every night soaking wet with night sweats. I'm done with pred completely. Don't be so quick to dismiss imuran. I was at...
We just had the Xmas special here in the UK. I do love Downton....
I think it's viral. I have to have a sigmoidoscopy on Wednesday and I had a chest X-ray yesterday so I will know what's happening on Wednesday. No date set yet for the remicade (it's called...
Thank you for the reassurance. I woke up with an eye infection this morning so it's a virus and related to my sore chest, I have drops for my eyes now...
I think I'm flapping abit because its all new to me. Thank you so much...
My doctor laughed at me when I suggested it could be the pred. Said "it's funny that because its usually very good for the chest" I think it could be the pred...
Thanks, feel abit better. One of my biggest fears with immune suppressants is getting a bug. I've suffered very badly with throat infection when I got swine flu and I also got campylobacter virus...
To not spend my life on the bog ;) To eat what I like and not have to run, sweating to the bathroom as soon as I've swallowed my food....
It feels like a chest infection, My chest is very tight at the moment. It's not flu as I have no fever or joint pain.Throat is abit sore. It's really scary thinking of all the meds I'm on. 15 a day...
At the moment I'm having bloods every two week which my new consultant has said is unessesarry. He was nice but abit stern and straight to the point ! He was abit scary going on about risking my life...
So, just got back from my hospital appointment where yet another GI has decided to take over my treatment. I haven't really had the best time of it lately and 5 weeks ago I was changed from asacol...
Prednisolone has done nothing but give me a rash on my face. I don't have more energy, I'm still bleeding everyday and pooping like a poop machine and for the last couple of days my chest has been...
My stomach blew up like a balloon half way through dinner. Very painful.ive been on a very strict diet lately so maybe it was a shock to my body to be eating a proper roast dinner....
Didn't even manage to make it though half of my Xmas dinner before I bloated up in agony and had to rush to the loo. I'm feeling a little better today but haven't eaten anything naughty today. Just...
I'm on lansoprazol aswell, could that he messing with the pred ?...
I've been on 40mg of pred for two weeks and just dropped to 35mg. I'm still bleeding everyday, going less but ad a big flair of bloat yesterday with bad belly, hip and back pain yesterday.have to say...
Hi just an update Went to the hospital and told him exactly what's been happening. He was very concerned and took me to see his colleague who has took over my care and changed my medication...
Thanks. It's night time 23:40pm and have tried unsuccessfully to administer my foam enema. It just wants to one straight out. Last night I managed to keep the second try in and got in bed. Lets see...
Thanks, Sometimes it just helps to talk, to vent....
Well he put me back on the predfoam and some antibiotics called metronidazole ( not sure why but must think I have an infection) I think he's just trying to get me through until my my next hospital...
Can't wait till the 30th, I really can't. Hopefully he will know what to do...
I have tried all times of day and its abit hit and miss. I've never bled this badly and this long before. My first flair lasted about 8 months with only mild to moderate bleeding in about 6 toilet...
Sadly you can't just ring up and go unless you have private care. You have to wait months to get in and see a specialist, I've seen mine twice and he had to give me a note to give my GP with the...
I had an initial sigmoidoscopy which showed moderate ulcerative colitis. I was put on asacol 800mg 3 times daily and a months worth of predfoam enema by my consultant in the colorectal/endoscopy...
I'm in the UK....
My doctor seems terrified of me. I have blood tests every 2 weeks and so far only my electrolytes have been slightly abnormal. I'm praying my consultant can help me. I was hoping someone on here had...
I feel my GP is scared to change anything without the permission of my consultant. That sample was from my second bathroom trip of yesterday morning ( before 8.30am) I had more blood the previous...
I was diagnosed with UC this year after suffering weird stuff for a few years. Started with sudden painful bloating in my belly and right side of my hip, sharp crippling pains in my bum,mucus and...
My doctor does blood tests on me every two weeks. Currently I'm on 800mg of Asacol 4 times daily....