That's great! My advice is not to get too cocky and wind up back at square one....
Ditto red meat for me too but it must be fresh and not aged. Sometimes I just don't believe in this inflammatory/noninflammatory food thing. Either your particular body likes a food or it doesn't....
Do you take probiotics? You need a very high powered one with probably at least 100 billion CFU's, such as VSL#3....
Had some free time this afternoon and tried in vain to find what the heck I was talking about. During the process though I read several things where people got off 6mp while on Remicade and did fine...
The oral mesalamine gets the top part and the suppository gets the bottom part but you need to reach the middle part with an enema. So, I suggest adding a mesalamine enema to the equation. There are...
I don't think it makes any difference. A mesalamine suppository is a mesalamine suppository is a mesalamine suppository....
I always wondered if an ex-smoker who got UC would have ever gotten UC if they had never smoked in the first place. I wonder if there is a way to study this, maybe with twins or something? Probably...
When I was at my worst the more water I drank the more BM's I would have. I was going 20+ times during that time. It was during the summer and whenever I mowed the lawn or something outside I would...
Hmmmmmmmmmmm. Seems like I vaguely remember either posting myself or reading a post on this forum a few months ago about a study which I think stated that after a certain amount of time the immune...
Get your platelet level checked ASAP and I mean ASAP. This could be extremely serious. If your platelet count is low hopefully discontinuing the Nopal is all that is needed. You're better off with UC...
Yeah. I've read this from other posters too from time to time and it really makes me scratch my head. This GI failed UC 101....
Macgyver (old tv show) would be proud of you. I'm putting you in for a Nobel prize. Probably not listed in best practices though....
Chocolate is high in histamines. Might want to try yourself some of that DAO for an experiment. Chocolate candy can make me worse and most of the time I eat it, it is not mealtime so I usually always...
I hate it when a patient finds something that works and then insurance wants you to gamble on doing something different. Sometimes they wind up paying more in the end if what they switch you to...
You should call your doctor's office and see if they can give you two weeks worth of samples....
I say go for it....
Thanks for the post. I was curious if you knew the reason for your suspecting you were on a superhighway to Flarestown....
Yeah. You've got to realize that as with many things, you can find evidence and proof to "prove" whatever you want and it can even make sense. People do that all the time from religious fanatics to...
That's interesting. Sounds like something they could at least try out in IBD patients to see if it was any benefit or not. Administered by an enema?...
Probably talking about Entyvio or Simponi....
http://www.accutane-ulcerative-colitis.org ...
There are class action lawsuits out there regarding Accutane and UC....
I don't think it is much of a practice at all in the States but outside the country they seem to rely more on CRP's and FCP's. It can be a tool in the arsenal but they are not always accurate and...
Your mtnc meds aren't good enough to keep you in remission. So far your progress has only been due to the Prednisone, and that's why you keep getting worse every time you get to the lower doses. I...
When you were working out were you ingesting any workout drinks? We have had a lot of (especially in their early 20's) people here who came down with UC shortly after starting this lifestyle. It is...
Prednisone did the same thing to me the last time I took it. Never gained a pound when I was on it and then gained 10 pounds after being completely off. That was about a year ago and I have never...
The worse your condition is the longer it takes any med to work. Colon damage does not heal overnight. I wouldn't taper yet....
Well, if you are asking us to help you decide between just those two, here are the simple facts: 1. Remicade has a better percentage of success but it is an infusion where you go to an infusion...
Since Imuran can take 2-3 months to start working that would be a bad one to quit taking because you might have to wait 2-3 months again before it starts working and in the meantime you could get a...
I saw in another thread you were taking 2400 mgs of Asacol. You should really up that to 4800mgs while flaring and only go down to 2400 when in remission. You should also take rectal meds since you...
Steroids can mess with your body in many ways. I don't have any advice on the weight thing but it looks to me like your meds aren't good enough to keep you from flaring. How many milligrams are your...
I've got an off the wall suggestion which probably won't help but it might be worth a shot. Hormones and histamines seem to have some kind of a connection so you might want to try taking a 24 hour...
http://qz.com/517706/the-pentagon-is-figuring-out-how-to-make-bodies-heal-themselves/?utm_source=YPL ...
Doesn't sound like you are doing anything to reach the very bottom of the tract where suppositories would be of the most help so I would add them in but not discontinue anything. Also, that round of...
I hate the term "Big Pharma" because it's commonly used to imply that all drug companies are 100% bad, which is not the case. Just like everything else, there are good companies and there are bad...
I would think it would but I have never heard of anyone saying that MAP showed up in their results....
Would MAP show up in Ubiome results?...
When I was at my very worst it was the dead of summer several years ago and I drank lots of water after being outside doing things, like mowing the lawn, etc. Just consuming large amounts of water at...
My gut would love a bacon double cheeseburger (don't forget the fries) more than something labeled as "healthy". My heart is another story. Boy was this drudging up an old thread....
Ditto...
What meds and dosages are you on and what meds and dosages did you discontinue?...
The internet is full of different stories for a reason - everyone is different. One person gets better from a Vegetarian diet while someone else does better on a Paleo diet. Some people aren't...
I also have an off topic question regarding 23andme. My wife and her oldest daughter both carry a mutated gene for Duchenne muscular dystrophy. My wife had a son who passed away with it. We have two...
The last link was interesting in regard to RLS and IBS, which kind of blends in with my topic. That's why I was hoping you would have some input to this thread. It gives more credence to my theory...
I just had a kazillion blood tests done and absolutely everything was in the normal range except the calcium level was like .2 higher than normal. I take a lot of rolaids type things. Tried a bunch...
Symptoms were easy and spontaneous bruising for no apparent reason and long bleeding times. The platelets in your blood are what stops the bleeding. Children can get the disease and sometimes outgrow...
Maybe it would help to give us your UC and UC med history so we don't recommend something you know doesn't work anyway. There is another recent thread going here from China where they say that other...
Yeah, some small part is systemic and can cause some issues. BUT many take oral 4.8 plus rectal mesalamines too. This makes me wonder if the mesalamine max dose is more connected to oral rather than...
25 years ago I came down with ITP (apparently now called ATP). It is an autoimmune disease where your immune system manufactures antibodies to attack and kill the platelets in your blood. While many...
Didn't recognize my symptoms as being med side effects right away. At first I developed a sore throat and thought I was coming down with something. Woke up at 4:30 in the morning sweating profusely...