I bought the yo'gourmet from Lucy's Kitchen and love it. Very easy to use and one full batch lasts our family of 2 adults and 3 kids 1 1/2 weeks. We use it in smoothies, muffins and my husband and I...
The only problem I can see with trying gluten free is that you won't know if it is the dietary change that is helping or if the Remicade is finally working. It would be unfortunate to limit his diet...
The best one I have tried is "Lois Lang's Luscious Bread." It is in the recipe section of the book, Breaking the Vicious Cycle. It uses Farmers Cottage Cheese so that it doesn't have such a strong...
My son was also diagnosed with UC. I recommend the two Facebook groups for parents with children who have IBD. I also check into this forum quite frequently. My experience with this disease is that...
I couldn't live with my own parents or my in-laws. If that ever happens, I'm moving out and getting my own apartment!...
KillColitis, I do have the book and read through it fast. I forgot about the bifidus. I will look into the SCD yahoo group, that could be helpful. You did send me the link to the facebook page with...
yes, I have always thought that the diet is more for people with Crohn's. I have also read about people that have UC that try the diet and get into remission. Then I wonder, did they really have UC...
Do you think the VSL#3DS would be better to use? It would be cheaper for me and I have a lot of it. I'm going to start trying the SCD diet with my son as soon as he is on less prednisone and his...
I have been making my own yogurt using the brand yo'gourmet as the starter. The box states that it is a Freeze-dried yogurt starter that contains bacteria. I thought that probiotics need to be...
I haven't observed that my son's UC gets worse or better depending on what he eats. With that said, we are trying to follow the SCD diet but with the addition of potatoes and rice. I don't use almond...
My family formed a team and did a Crohn's/Colitis walk in Arkansas. Frankly, I couldn't tell who at the event had Crohn's or UC and who didn't. I didn't even notice anyone running towards the...
So what is worse to use on a child for a flare; antibiotics or prednisone? My son responds fast with prednisone but I wonder what it will do to him long term. We might have to try the antibiotics...
Very sorry that your daughter is having trouble. Putting my son on the rectal meds made a big difference in getting him into remission. He has inflammation throughout his entire colon but it seems...
Can you explain what the combo is? Do you rotate between the two or take a round of the first and then a round of the second? My son's doctor mentioned trying Flagyl the next time he has a flare. I...
Did you get on the facebook page for parents of kids with IBD? There is also one for alternative treatments. Definately try the enemas. It was the last thing we added into the mix as far as...
I'm laughing so hard that I'm crying. I also like reading the comments at the end....
That is great news! I really appreciate hearing the success stories because I worry about my son's future. Thanks for letting us know....
So glad to hear your son is doing slightly better; you are headed in the right direction. I have been thinking of you. I have 3 boys, 12, 10 and 9 and homeschool them. My youngest is the one with UC....
My son did a half enema in the morning (10:00 a.m.) and an entire enema (4 g) in the evening before bed. I think the enemas helped him get off the prednisone he was on without relapsing. He has been...
My son was diagnosed at 8 years old....
One other thing I thought of....my son had a sigmoidoscopy last August because he was having more stomach cramps, fatigue, loose stool, etc. After performing the exam, the doctor came in to talk to...
The fact that your colon looks fairly good and you are still having so many symptoms is odd. Maybe there is something else going on besides the UC. Maybe IBS, or a small intestine issue? I can see...
Dawn, Thanks for the tip on where to get less expensive flour. I'm not sure what triggered his UC. He wasn't on a lot of antibiotics and was extremely healthy up until getting the UC. He was in...
Dawn, I was just reading through the posts again and I saw your comment on The Makers Diet. I did read this book and thought that some of it made sense and that is when I started cooking more with...
Yes, I think it probably was the almond flour. The irony is that he has never had a problem eating anything else, not even greasy pizza or fast food although we don't eat that very often. That is why...
I had the same thing happen with my son. For three months straight he was having 2 bm's per day, formed stool (he is in remission). I made him a pizza using almond flour for the crust. His next three...
I just have one question. Did she tell you about her diagnosis AFTER you had sex? If so, I would have a problem with that. I would be careful about staying with her because you are concerned that you...
CanadaMark, Thanks for the tips. I've been slowly trying to incorporate more SCD type meals into our routine. I can also get the books from my library. I did check out the website you listed and...
I would try the steroid enemas first, and then if you see improvement switch to the mesalamine enemas as a maintenance medication. I was also wondering if it could take a month or so for the Remicade...
I'm so sorry that your son is sick. Here are my thoughts on what might help. 1. Your doctor could be wrong about the enemas. My son was diagnosed with UC with ulcers throughout the entire colon as...
Queen - Another One Bites the Dust...
A year ago when my son was extremely sick, they put him on all the meds. The first sign of getting better was going less times per day and night with less cramps. Also, the blood slowly stopped but...
Joanna, I made your recipe for Banana Cake and it turned out great! I used all Almond flour (because I didn't have any coconut flour on hand). I also used eggs because my son doesn't have a problem...
Out of all the meds, the enemas helped my son the most. My husband and I were freaking out the first time we had to give it to him and we spent about an hour talking about it before hand. Also...
Thanks so much! I'm going to make it tomorrow! Susan...
I saw in a thread that you have a recipe for Banana Cake that uses almond flour. If you have time, would you post it? I would love to make it. Thanks!...
My son's GI told me to get him the flu shot. The dead virus, not the live one....
I have been hearing the same thing on the news and it makes me nervous! However, I do think the media blows things way out of proportion. Remember all the media coverage on the swine flu and it...
Lodi, My son had all these tests done at the emergency room at the hospital in the city where I live. When he first became sick, I thought he had the stomach flu. After several days, he wasn't...
My son had numerous stool tests prior to diagnosis. We live in the US They checked for Salmonella, Shigella, Campylobacter, E. Coli, C Diff Toxin, A & B, Glutamate Dhydrogenase Ag, Ova and Parasites....
Hi, Sorry to hear things aren't going well with blending your food. I read your earlier posts when you were getting started and thought it sounded like a great idea. You might want to check out the...
KillColitis, Your GI doctor sounds very knowledgable. What she says about the prednisone makes since to me in that I have read about the disease "burning itself out" if you can get the inflammation...
I just finished reading the following book: The Complete Book of Bone Health by Diane L. Schneider, MD It is a new book that includes many studies done on prednisone and bone health. According to...
No, mesalamine isn't a steroid. I would ask your doctor about them because they have really helped my son. Even though his entire colon is inflamed, it seems the worst problem was lower which is what...
When my son was having his first flare, and his doctor suggested Remicade, I decided I needed to find another doctor. I started looking into Mayo Clinic, Rochester, MN and they do have IBD...
As your son tapers off the prednisone, hopefully his side effects will decrease. I found this to be the case when my son was tapering. As far as school, I would think you have many options if he...
My son had joint pain while he was on prednisone. As soon as we started tapering down the prednisone, the joint pain went away completely. Glad to hear your son is doing well!...
MaxMilian, Are you taking an antibiotic to treat a flare, of is it for some other reason. I am just wondering if my son could be treated for a flare just with an antibiotic instead of the usual...
MaxMilian, When my son had his first flare, the doctor put him on Prednisone. The doctor also wanted to treat it with an antibiotic (Flagyl) after he was started on the prednisone because of the...
When my son was in the hospital, they did a colonoscopy and he didn't have to drink any prep. He was having D. so I think he was cleaned out enough....