has anybody here had adrenaline dysfunction because of using corticosteroids? I think I might have it was on Budesonide over six months and my BP has been really low one day it was actually 87 over...
Have you thought about taking her to a rheumotologist? Lupus and UC can sometimes coexist. Not trying to scare you but it is possible that she is having a lupus flare instead of a UC flare. I'm not a...
Anemia will cause you to be out of breath. Vitamin D can cause you to be tired if it is low. You do not have to see blood in your stool to be anemic. it is hard for some of us with UC to absorb...
Thank you guys for all the good advice. I called my GI and they didn't seem to be very worried about it. The nurse told me to go back to the dose I was at before the symptoms started but I am going...
I am just wondering if anyone has had an atypical allergic reaction to Sulfasalidine? It took me a while to figure out that was what it was because I did not get a rash but got a sore throat, painful...
I can't say that I have ever been through what you are going through but having had fibromyalgia for several years I know what it is like to be in pain and to be limited in activities of daily life....
thank you for the advice. I called my GI and he said to lower my dose to what it was before I got sick. If my throat isn't better soon I will get checked for strep. I don't know what it is but it is...
I can really relate to the situation with your daughter. My 17 year old daughter. As luck would have it I am expecting her to call today and ask if she can move back in with me. Her dad and I have...
vitamin water XXX. Coffee sets off my UC so had to stop drinking it...
well I know now for sure it is not a blood disorder. I have a terrible cold. Uping my vitamin C today and taking OTC cold med. I hope once my body adjusts to the meds I will stop catching everything...
I've been on it about ten days. I am on prilosec so it might not be reflux. Haven't changed toothpaste and it doesn't look any different than usual. But I have really been struggling with sinus and...
Just curious if anyone else has had a really bad sore throat while taking sulfasalazide? I read on the product info to call my doctor if I developed a sore throat but I feel stupid calling them about...
yea not so sickly girl I did have pain when it happened it felt like my rectom was being gashed open. And it is still burning and hurting. Quincy I have done the gallon prep twice. The first time it...
not metamucil brand but fiber caps before I got diagnoised the doctor thought I had IBS and they kept advising me "more fiber" "more fiber" they crammed it down my throat but I did not start to have...
I have tried several otc fiber supplements but have also tried fiberone bars, cereal etc. which worked to move my bowels but caused bad abdominal pain and triggered my UC. Years ago I used castor oil...
I am on cortifoam (about two weeks now) but I also started Iron i am supposeto take it twice a day but I am only taking it once a day because of constipation. I did take some magnesium twice...
sorry to have so many questions I am still very new to this Okay so I have been really struggling with constipation since my Colonoscopy and subsequent MRI (had to drink contrast) and I think I may...
ok I also just realized I am on an antiinflammatory. I bet that is why I am bleeding more than I would expect....
Thank you so much. It was pouring after the bowl movement for a few minutes but now it is coming out about a teaspoon at a time. I am hoping it will stop in a few minutes...
Ok I had a MRI several days ago and a colonoscopy a week before.The MI showed my colon had a lot of stool in it but I could not have a bowel movement. Afterwards I have been very constipated. i had a...
I know this is a little late to respond but have you thought about having a stool study? I had camplobacter and everyting I ate made my abdomen/stomach hurt. It is not uncommon for UCers to get...
I have excema and that is how it does, burns feels raw, sometimes itches but burns when you scratch. Excema is also a immune system issue so it probally is not uncommon to have it with UC. It also...
I am on cortifoam don't know if it is the same thing. it has helped me a lot but I have to take it in the morning because it makes me wired at night. the only side effect I have is severe...
Thank you for all the replies. I guess the not knowing when you are first diagnoised is hardest. I guess what I took from your replies is that there is no way to predict the course of this disease....
I see so many people on here who were diagnoisd years ago and are now on biologics. I just want to be realistic about what the odds are that I will end up on something like that if I live another 20...
Cortofoam has really helped me. I is a lot less messy than other supposotories. Also I had to be tried on several different meds until I found something that worked. My doctor always made me wait...
I would suggest getting a stool sample tested for Camplobacter. Because our immune systems are comromised (because of the disease and because of meds to control it) we are more likely to pick up a...
Does anyone have suggestions about how to deal with constipation without taking a laxitive? Since my colonoscopy, MRI with contrast and a round of antibiotics I am miserable but laxatives set off my...
I had hand tremors on corticosteroid. I am off them now and the tremors have improved but are not gone completely. My doctor told me it was because of the corticosteroid....
I am new to all this but I can tell you my experience with being on a corticosteroid was that i caught a bad bacterial infection which called for discloure to the health department. The nurse there...
I, like you have only been diagnoised a couple of years ago and still am not in remission but I am finally seeing some improvement. I also had several secondary infections while on a steroid...
Oh my gosh I feel so sorry for you. I just had a colonoscopy and my miralax/biscodyl laxative prep did not work. Anyway someone on this forum suggested I hold my nose an chug it. It actually helps...
yep my blood and moucus is gone and I do feel better. What is interesting is that when I was first diagnoised I had a UTI an was treated with an antiobotic and my symptoms really improved for a...
they found the campy through a stool sample. I am grateful that my new gastro was so thorough. They put me on zithromax. It is also reportable in my state. I got a call from the health department...
what is pico salex? I hadnt thought about the not eting 3 days. I guess it did add to the problem....
I can't even swallow one ounce without vommiting even when I take nausea medication first. The prep I did this time was miralax and lot of laxitives and water no ffod for three days. I could not...
Yes I am on zithromax for 7 days. My colonoscopy was 5 days ago. I used a 3 day Miralax prep because I cannot tolerate the other prep. Truthfully the only prep that has ever worked for me is the...
Emma you sound like how I feel I am new to this too and am having a hard time accepting this. But I noticed you mentioned urgency. My doctor prescribed Hyoscyamine and it really helped me with that....
thank you hateuc. That was helpful. You are right it is very annoying. I am just praying for remission even fo a little while...
am new to all this but have already ended up with campylobacter because of suppressed immune system from corticosteroids. I don't have any advice about whether to take prednisone or not but if you do...
I am really new to all this so I am kind of confused. I thought people with UC had lots of diarrhea. It is so weird. I am diagnoisd with UC and I also have camplyebacter so I should be having...
I so understand about the prep. Today I had a cat scan and had to drink like a half gallon of contrast and every single sip I took made me gag. I almost puked several times and....shhhh...don't tell...
Is it common for people with IBD to get campylobacter? I contracted it I guess because my immune system was suppressed with meds. Going on Zpack today. What is so weird is that my bowels are not...
thanks for the tip. This is my first expeience with any of these types of meds. When I found out my diagnosis and I read about what type of meds I would be taking I hit rock bottom and got so...
I am not sure how much Prednisone I was on but I have had serious life long problems taking Prednisone so it is not even an option anymore. If Uceris has any steroid in it I will not be able to take...
Well I have tried both Asacol and Colozal also Prednisone and had absolutely no improvement. Until recently I was on Endocort and I was doing quite a bit better but after four months I developed a...
This is my third day on cortofoam and I don't really see any difference.Wondering if it has worked for you and how long it takes to actually work. Waiting to see the GI on May 1st and I'm not on any...
thank you applevenus for your honesty. I thought about what you said about the good days giving false hope. I think that is part of what is wrong now. I was on Budesonide for four months at full...
nope the nurse called with the results she did not distinguish between crohns and UC but the inflammation was mostly in the colon and the lower intestines so I think it is probally still UC. She said...
thank you guys for all the helpful feedback. Doing better today and realizing that a lot of this was influenced from changes in my meds (stopping Budesonide and Ballsalazide) and side effects from...