Been in remission 4 years and bam, chrons is back. First time, prednisone killed it and that was it. Second time, prednisone did nothing but lialda and imuran knocked it out. This is the third time....
Was on 75mg of effexor but was still feeling down. 150mg made me feel great then sent me into manic-mode. Doc thinks adding Depakote will stabilize me. Anyone on this combo?...
Thanks for the replies. I have been SOOO sleepy during the day at work. Could this be the Imuran? It's seriously effecting my work. Is this normal?...
I have just started Imuran. I am in a mild flare and hoping to avoid Pred. Anyways, how long am I supposed to take this after it heals me (which hopefully it does) Thanks!...
Ugh dissolving won't help. Would make me have inter-dose withdrawal. Guess I will just snort it or shove it up my ass. Sucks because they work so good when I'm in remission. Which is rare for me to...
I'm starting to have a very minor flare.. but every time I do I notice my Lexapro doesn't work as well. Is there any other way to get this into my system? Maybe crushing it up or putting it up my.....
Meg, I am curious about the Klonopin part. Was it easy to switch from klonopin to xanax without any withdrawals? How did you know you had reached tolerance? I am curious because I am taking a low...
Thanks so much for the reply! I just hate feeling so spaced out. I can barely hold a conversation because I'm stuck inside my head if that makes sense. I've been taking the .25 mg of klonopin for a...
First week was 5mg and tomorrow will be my second week at 10mg. So 3 weeks total. I can feel a LITTLE relief, but it is overpowered by the tiredness and numbness of my mind. I am feeling...
I've thought about it too. It would be nice to not have UC lingering around me all day and night. Everything about UC just sucks. Being tired all the time, going all the time.. etc. But I will keep...
Thanks for that. Although i was hoping the oily skin part would go away quickly. The fatigue is gonna be killer I already know. I am taking juice plus which has helped a lot. I am not looking forward...
I have been on them just over 3 months :( will taper to 5 tomorrow. Doc wants me to stay at 10 for a while but I'm not going to. Tired of all the pred crap....
How long after you were at 0 did it take for things to get back to normal? (acne, oiliness, anxiety.. etc)?...
I have tapered down to 10mg pred and am on 75mg Imuran. My skin has been very oily for a while now. Anyone know which of these two is causing it?...
It very well could be the imuran just working. But this was literally an overnight type of thing. It may be a fluke or whatever, but people around me have asked me if I have been feeling better...
Just figured I would update my condition since it's been a little bit since I have posted. I was posting a lot for a little while there the past few months. Freaking out about everything and how bad...
No probiotics or anything else :/. I'm having trouble keeping track of all the crap I'm on now. Gonna call the doc tomorrow and try to be more proactive about this....
Other than my face, no. It's protruding out like I'm massively constipated. When I go to bm it's mostly gas. Lots of it. And when I do bm it's 70% formed and a lot of times a light green/gray. Smells...
Is it the pred or flare causing my protruding stomach? I hate it because I'm fairly thin and usually am at my apartment pool all summer and haven't been once this year because of it. It's...
I'm worried I will finish up the pred before the imuran kicks in. But I have been on pred way too long....
I can't tell if its pred or flare. Pred made me very up and wired the first flare. This time is so different....
Thanks.. I'm going to keep tapering. I have to get off this stuff. I have to ask one more question that has been bothering me a lot. I have been very "zoned out" lately. For instance, when I'm face...
I have been on 35+ pred for 2 months now. Finally, after a scope and starting Imuran at 75mg 2 weeks ago, I am at 30mg pred and Lialda also. I called the doc to ask if I could keep tapering 5mg a...
Hm, I'm thinking its tapering down on the Prednisone. It's the only thing that makes sense. :sigh: My Colon has been doing great. (still mucus and gassy) but no pain or blood or anything. Pred is the...
I am into my second week of 75mg Imuran. I am on my 9th week of pred and just dropped from 35 down to 30mg this past friday. The first week on Imuran I actually had a bit more energy and was feeling...
I'll take that as a no......
Has anyone tried this or know anything about it?...
not sure.. I have bloodwork being done this week and a follow-up next week. I'll probably call this week sometime....
Usually I only get joint pain when I am tapering pred but I have been at 35mg for a while now. I just started 75mg Imuran last week. My hips are killing me and there are stabbing pains all throughout...
Oh and one more question for anybody. I know pred kills libido but what about imuran?...
Thanks you for that. Nice to hear some positive stories! Congrats on the weight loss too. I am enjoying the extra pounds....
I feel ya janey. I'm on 35 after a few weeks at 40. I constantly feel like I'm freaking out. Constant anxiety and roid rage lol. Everything annoys me and I can't concentrate on anything. I hate this...
Thanks, Cita. So how are your energy levels and normalcy of life now? Did you have any start-up side effects that went away? I'm just kind of down because I realize my entire summer is pretty much...
I agree with the colon prep. That tore me up and brought back some of the original symptoms for a few days. My UC symptoms arent too bad really. It's just the meds that are killing me. I am taking...
So you didn't have the exhaustion? I think I'm having trouble figuring out what side effects are from UC, Pred, and Imuran. I'm kind of thinking its all the Pred lol. I swear I feel like I'm losing...
Well this is day 2 at 75mg. Only thing I have noticed so far is even more exhaustion than I thought possible (still on pred). Will this go away as I get used to it? Slight nausea but nothing major.....
Thank you all for the replies. I don't feel sick yet lol. I did notice some strange side effects while I was trying to sleep. It was like I was hearing noises and my senses were heightened. Every...
So are you in remission?...
75 mg. still on 35 mg pred while this "kicks in" and 3 lialda. Does anyone have success stories to maybe help me get in a positive mood about this? I'm worried about it making me sick. I have work in...
During the start of my current flare.. I didn't know I was flaring but was beyond exhausted by 2pm every day. Finally my gut started acting up and I knew I was flaring....
So I took my pred at 4pm last night. I slept fine (help from remeron) and did great till noon. Things went downhill fast at work and I was barely hanging on. Fatigue was too much and so was the...
That's pretty much how I feel after I taper. Took me a while to feel normal again. You should see a psych and maybe they can give you something to help you through it. I take remeron and this round...
I'll update and let y'all know how the pred at night goes. Still have no appetite from that prep messing up my stomach. I'll say another thing.. It felt kind of nice being in the hospital. I didn't...
Thanks so much...
Just got back. Here's what happened. They were worried about my dehydration so gave me 2 iv bags. That helped a lot.. I was in bad shape. Then the scope. Luckily even though I was still having brown...
Thank you.. Waiting here now. Major anxiety :(...
Took my last prep packet around 815pm. Still pooping brown liquid not to mention I've been puking after every bm since 1115pm. It's the new prepopik brand. I have never been this thirsty in my life....
I wish I had done that, Gary. I did it backwards.. Started on uceris but it wasn't working fast enough so now I'm on the long, dreaded pred taper :(...
Do you have low energy while in remission too? Low energy has been my biggest complaint and when I get out of this current flair I am going to meet with a nutritionalist and get vitamin levels...
Yes, I know. Sorry. Everything has been just such a mess lately. Blood pressure is fine. He hasn't said anything about iron. It's not complete d.. In soft little pieces. Although ever since going...