God doesn't fix people, doctors and medical science does....
A UK point of view here, firstly, share a room? That be nice! I had to share a ward with 10 smelly old men burping out of either end at will!! I'm now 7 weeks post op, laproscopic all the way through...
I had a long running flare for probably upwards of 3-4 years. Nothing worked to stop it properly. I used to not leave the house till i knew it was safe to do so, i took tramadol for my back pain...
I did a year on it, paid for by the brilliant British NHS. It didn't work for me so I/consultant stopped it after a sigmoid exam showed no improvement. I had surgery 5 weeks ago to remove my...
I tick all three of Sue's list! Do I get a prize other than impending surgery?!?!...
I am waiting for J pouch surgery now, I have suffered with UC for 20 years+ and only the early years was i in remission. It has got to a stage where I don't remember not having to worry about where...
You poor thing, its no fun is it. Nobody will understand how you feel unless they have suffered it themselves and the chances of a medic or doctor having suffered with IBD are slim. The fact you have...
I've had quite a few colonoscopies without any drugs and I've never experienced any pain from biopsies, i could feel a bit of tugging but no pain from the tools. The last time i had a full colon i...
Pred at night? That doesn't sound right. Good if you do a night shift but anyone with normal waking hours I'd be tempted to ignore that advice. 6MP did help me but at a very high dose of 150mg which...
Poor thing, this disease is no fun at all is it. The fear of what might happen is often worse than the condition itself, being constantly on edge about every little twinge in your belly. If your UC...
C diff stinks! Literary! That was the second sign that i recognised having an infection. The first was the stool sample i left at the hospital. Is c diff limited to the colon or can it appear in the...
I was 14, i'm now nearly 36. Was hospitalised in December 1991 a few weeks before Christmas. UC caused severe joint pain 3 times which i was hospitalised for a few years after first dx. Recently was...
Initially it was once a year, then my condition was termed as under reasonable control so i got moved to 18 months. Then i stopped going there and moved to a different hospital. The new hospital...
150mg worked quite well for me but be aware that your immune system will be very suppressed at that dose. It left me wide open to a simple cough which ended with me being admitted and given IV...
I did 13 days back in 1991 when i was 14. I got discharged on Christmas eve and was allowed home for Christmas and boxing day. Had to come back in on the 27th for a couple of days for a barium enema,...
1I've only just found your blog, it looks very interesting and i will spend time reading it all. I too am at the end of the road with medications, i just wish i could wake up and it all be re plumbed...
Not sure about the coating on these capsules, i thought they were just normal gelatine capsules, i have thrown them back up when being sick and they were opening within minutes of swallowing. As for...
No side effects at all here, was on it for a year without anything bad happening. Could get a bit tired afterwards but that was due to be nodding off in the 2 hour infusion time and then having to...
I have this problem. My GI consultant has identified several occurrences where this happens with some patients. Rather than a big explosive flare, there is a constant grumbling of symptoms that wont...
It used to be common with me as well, shouldn't worry about it. It would be nice to get any semi formed stool at all though now!...
Self employed intruder alarm and CCTV installer in the UK, i can work when i want to and be as flexible as i want. If i had a proper job I don't think i would be coping very well....
Last full colon i had i was given 2 packet preparations of movi prep, had one and said thats enough of that, not having two. Drank plenty of water and i was nicely cleaned and polished out. Years ago...
I had one this winter, mainly because my immune system is knackered big time. Didn't have any adverse effect on my UC. It did help the flu situation though, i usually get something that knocks me...
I too am trying to follow the SCD diet but i'm seeing mixed advice. One site says start by eating this, another site gives conflicting advice etc. I made the chicken broth/soup and have cut out...
Part of the joy of having this wonderful condition. I suffer with painful knees and one shoulder. Many years ago i had really painful hips to the point where i couldn't move my affected leg, they had...
I've been reading the stories posted here regarding Infliximab as i feel its my last hope. I don't really care about the side effects as i'll deal with them as and when. What suprises me is the price...
Hmm, i don't suffer from staining much, what i have been doing is just folding a piece of toilet tissue and letting it sit between my cheeks in case i leak a bit. Other than staining i was talking...
I know some of you won't leave the house without a pad on for fear of messing oneself, i do have this fear and on a hour and a bit trip i messed myself, whatsmore i was on the motorway on the phone...
Sorry for the graphic title but i have one hell of a sore bum. I have what i think is a cold sore on the side of my anus and its bloody killing me. I suffer from cold sores on a regular basis and get...
I find I'm more twitchy if i'm in a strange place where i know there is no toilet access or i'm not protected. Mondays are always worse for me, i can usually keep it in if i'm active and busy, i find...
I find it does help me, sometimes have trouble keeping it in though, it comes straight back out if you get me! If it stays in it does help, seems to have less side effects too....
I tried it but like others have said it made me very light headed and felt sick, effects just as if smoking for the first time in ages....
Psillium husk works brill for me, the days i forgey to take it are easily spotted. Gives me a bit of extra gas but i'd prefer that than a runny bottom!...
My knee has been giving me pain for the last few days and is a bit swollen, thought it was getting better but this am its bigger than normal. Will a bit of pred help reduce the inflamation in the...