Don't you wish this stupid disease were more cut and dry? Sometimes I think we're all (and I'm including doctors in that "we") bumping around in a dark room just hoping to grasp onto something. I've...
I agree with zoolandermsm 100%. I think for the mild cases of UC, a ND would be wonderful - as would following a paleo diet or the SCD. For the really tough cases, sometimes the big guns really are...
I guess this isn't really a direct answer to your question - but I hope it will be helpful, nonetheless (especially since VSL #3 is so terribly expensive - especially out of pocket!) I was on VSL #3...
My husband is friends with a guy who works with the FDA to get these drugs approved for market, and he pretty much said exactly what Katmom stated in the post above. I'm in the middle of a horrible...
Believe it or not, eliminating wheat from our family's diet had a HUGE impact on the amount of weight we carried around our bellies. We cut all grains, but from research, it looks like it was the...
Very interesting!...
I always had to taper VERY slowly once I got to the 10-15 mg mark. For my last successful taper, we were cutting it by 1-2 mg every week. It was a loooooooong slow taper that felt like it would never...
I had lots of vaginal pain while on 5-ASAs. We finally figured out I'm very sensitive to them. I know an old midwife remedy to start labor is to give the mother castor oil in the hopes that...
It gets so frustrating trying to decide what to believe, doesn't it??? I've had soooooooo many hospital and lab tests done through MDs, but they can't figure out how to help me. I guess I was truly...
Another idea would be 2-3 teaspoons of L-Glutamine powder. NOW brand has one without additives, although I'm sure you could easily find another good one in a health food store. The L-Glutamine can...
Hi guys, I just wanted to get some general opinions on NRT testing. I guess a brief rundown of what's been going on would be helpful? I started transdermal LDN about two months ago, and had been...
I buy ours at gotmatcha.com, but the other posters are correct that there are many places you can purchase it through amazon. I only use gotmatcha.com because I got a google deal that made it the...
Hey all, About two months ago, I started having a daily cup of Matcha tea with my lunch. I've noticed it helps with my cramping and urgency - benefits that last well into the evening. I started to...
very interesting!!!...
I get a large part of my calcium from dark leafy greens. Also, I take fermented cod liver oil and transdermal magnesium (easier on my gut!) to make sure I can use the calcium I get....
This is such a difficult question to answer... I've had 3 colonoscopies in my life - 2 of them put me in the hospital with flares even steroids could not control. However, I understand that I am at...
That's awesome!!! Thanks for the laugh! :)...
I am both gluten and dairy free. To see real improvement, though, I had to go completely grain free. I don't miss the grains so much, but I really do miss the dairy. (I used to consume at least 16...
Hi all, Just wanted to update anyone interested on the results of my astaxanthin enema experiment... Well, if this is to be successful, it will be so at the hands (or bottom) of a more inventive...
Hang in there. UC and Crohn's have an extra layer to them - humiliation. Even if we only feel humiliated in front of ourselves, it can be really defeating. Quincy nailed it on the head when she said...
bananagirl - ha ha! I had the same effect during the intro diet of SCD! All those carrots turned everything red orange! I have no idea on how many capsules... I think if I don't hear back from anyone...
I take it orally every morning (12 mg), and I do believe it has helped my UC marginally. I just can't get these last few inches under control. It's maddening!!! That's why I was wondering if topical...
I've tried the vitamin e enemas in the past with no effect (no worsening of symptoms, either). Has anyone here tried using astaxanthin in place of the vitamin e? It is supposed to have a much greater...
Hang in there, FeelBetter?. You are not alone....
I just had the same situation happen. Each time I have taken 5-ASAs, they help at first, then I begin to show increasing signs of sensitivity. A few weeks ago, we pulled me off of Lialda, and within...
You guys are awesome! Thank you!...
We aren't sure it's the mesalamines, but the trend has been the same throughout the Asacol, Lialda, Canasa and Rowasa. We're leaning toward thinking it is a medication sensitivity because each time...
I think we have decided, at this point, that I will probably react badly to any 5-ASA. But thank you so much for the suggestion!...
I have found that supplementing folic acid and iodine (naturally sourced from kelp) through a good quality multi-vitamin helped tremendously. The higher quality vitamins cost more, but work better -...
Our family uses one. We love it - although it certainly looks funny in the bathroom! My husband and I have shared many laughs coming up with funny stories to tell if family ever asks what the weird...
Awesome! I'm going to research Humira, colazal and willow bark today. I love it that we have a community that can help each other out with ideas! Thank you!!!...
Hey Freddy, I've struggled with this in the past! Yuck! It was miserable, so I really feel for you right now! I tried all natural treatments, but in the end, it was Nystatin that resolved this issue,...
I have more information about my diagnosis and treatments in my signature. For some reason, I can't get it to show up in my posts. :(...
I have tried sulfasalazine - had a reaction similar to mesalamine. Helped at first, then developed increasing sensitivity the longer I took it. I have also tried prednisone and Remicade. I haven't...
My GI and I thought we'd finally found a mesalamine formulation that would work to control my symptoms - Lialda - but it turns out I have a sensitivity! So far, I've tried Asacol, Lialda, Canasa and...
Kathy, I had muscle weakness and joint pain after my infusions. I was on Remicade for nearly a year, and these side effects did get better with time. I think a lot of it was the more healing my body...
I've had to go grain free to ease symptoms, too. I've been grain free for about 6 months, after trying gluten free with only moderate improvement. Recently, I tested the grain-free theory by eating...
Thank you!...
My GI is not concerned, either! (He also believes diet plays absolutely no role in IBS/IBD). It's my D.O. who is seeking to help me put these pieces together. I hope your daughter is doing well with...
Thank you both for reading and replying! Don't worry - I don't ever plan to go off mesalamine, again! Ah - the arrogance of youth! What a lesson, eh?...
Bananagirl, I agree with the other posters! Your doctor should be looking for other causes before sentencing you to surgery! There are many, many conditions that will cause the human body to produce...
Hi Inflated, I noticed a dramatic and almost immediate reduction in symptoms when I eliminated grains from my diet. It's very hard to do, but for me, it has been worth it. The hardest part is that...
Hi everyone, I've been helped immensely by reading the posts on this board for a while (thank you!!!) but have just joined today. I guess it's sinking in that I can't beat this diagnosis! I wanted to...