Not being able to take NSAID's is tough because they are so effective at relieving minor inflammations, swelling and pain. I have overdone it with the NSAID's in the past and paid the price with a...
I took it for 10 weeks, no weening required as it treats locally - it is not systemic like pred....
6MP does not and will not put you in remission, so you have to use something else like prednisone to get you to remission while the 6mp gets fully in your system where it can then keep you in...
UC really isn't as glamorous as everyone said it would be....
I love propofol! It's the only good thing about the scope!! And my 6 year old daughter had and endoscopy yesterday (she was just diagnosed with Celiac's), and they used propofol and did great with...
Plums! I eat about 5 per day june - august. Love....
VSL-3 has Maltose in it, so if you are sensitive to artificial sugars - sucralose etc - then VSL-3 may cause loose stools. I had that problem with it and had to stop taking it, which was a shame...
There are a few pre workouts products out there that do not contain artificial sweeteners and very clearly label their ingredients and quantities. I use one called wod fuel, that has worked well for...
What Marauder said! I would be VERY cautious with this and get a second opinion (medically). 6MP is no joke, it requires close and regular monitoring and that is why the normal protocol is to start...
1.5mg/kg sounds correct. I weigh 165lbs and was on 75mgs - recently reduced to 50mgs due to my wbc count getting too low....
oh, ok, I see what you are saying. Thanks nssg....
Thanks for the responses everyone. I will ask my GI about the allopurinol too. I have not spoken to him directly as he is on vacation, just to his nurse. I don't know my exact wbc level - the nurse...
Thanks Pandora. Interesting. I thought allipurinol also is known to reduce wbc, no? Or is it, but not as much as 6mp? Glad you found a combination that works for you! I am a bit stressed that I have...
Hi everyone, I haven't been around much lately, but have been doing great the last 18 months since the 6mp was fully in my system. I have been taking 75mg/day, but in the last 6 months, my GI has...
Hi Sephora, I started the 6mp at 50mg. At the time, I was also started prednisone to get me out of the flair I was battling. To keep the flair at bay, I then went on Uceris to bridge the gap to when...
Good luck with DMC. FYI, I have been on it for over a year now and it has worked great for me - full remission. And I take it first thing in the morning on an empty stomach along with my Lialda...
In the 18 months or so that I've been on 6MP, there has been no indication that my immune system has been compromised at all. I almost never got sick before 6MP and I have not once since being on 6MP...
I have been on 6MP for over a year now. I never experienced any nausea, but I was getting fatigued and I did attribute that to the 6MP. Thankfully, the fatigue only lasted 3-6 months (can't remember...
Uceris is prescribed for periods longer than 8 weeks. 8 weeks was the length of the study that led to it's approval, so that is why people think that. Now that Uceris has been out for a while and...
Just how much coconut did you eat?! And in what form?...
I'm on 75mg of 6MP for about a year now. No side effects I know of - except after my last blood test I got a letter from my GI saying that my white blood cell count had dropped a bit. He went on to...
I gave it a shot during my last couple of flares and it did not relieve my symptoms at that time unfortunately. However, if I can put this disease to use for once and get a cannabis prescription out...
There's not really any downside in adding LDN to your current meds, but I certainly wouldn't replace anything proven with LDN. What NSS said!...
Youretoomuch, If your GI is going to put you on 6mp, he should be starting it on you now while you are on the Uceris so that you are not left unmedicated! The 6mp takes a few months to kick in, so...
My GI had me get a flu shot. He also wanted me to get the Pneumovax vaccine for pneumonia, but I did not get that one....
Unless it is causing you nausea, the timing doesn't matter. If it is causing you nausea, then you could take it before bed or with food, see what works. I take mine first thing in the morning,...
6mp can take several months to kick in. 50mg is the typical starting dose. I was on prednisone when I started 6mp. Because the 6mp takes so long to kick in, I did a pred cycle starting at 40mg and...
This reminds me, I put a Milky Way in my freezer about 3 weeks ago, totally forgot!...
From 10, go to 5 for a week, and then 5 every other day for two weeks....
Uceris really only helps with mild flares, so your current condition may be more aggravated than Uceris can quell. I had to take pred to get my flare down enough so that the Uceris could keep it...
I'm not sure exactly what you mean by "spontaneous remission", but if you mean getting into remission without additional meds to combat the flare, then yes. Up until my last flare up which required...
We are in the UC forum, not the cancer forum. Here in the UC forum, I think we all consider a worsening of our condition to be "bad news". I sure do. Sorry to hear your uc has gotten worse Jacket...
I have found Magnesium Citrate to be the easiest because while it is totally disgusting, it is only 10oz of liquid and you can chill it and chug it pretty quickly and relatively painlessly. And then...
You may want to try a stool softener like colace. If you did not start the miralax at the same time as the constipating drugs, you may too late with it and may have to suffer through some tough BM's...
Your doctor should have said that the vast majority of people do not experience any side effects from Lialda, but he should also know and perhaps mentioned that with people with UC, anything can...
Don't worry about it too much, you may very well have none to minimal side effects. You are starting relatively light and tapering relatively quickly....
Peace be with you, PathogenKiller and may your remission last forever....
Before this thread gets locked, I just want to say I agree with gary on all his points here. Good thread!...
Ease up there Guardian and why don't you read my posts all the way through before you fly off the handle. When you do that you will see I did say that it is "worth a try". I accept your apology in...
Actually, that's just a feeling you have, there is no data saying how many people LDN has helped versus how many it has not. My feeling is that it hasn't really helped many people at all - but I have...
I gave LDN a try too and it didn't work for me. But that's not why I am skeptical about it. Nobody can explain what LDN does, what the mechanism that may help those who suffer from auto immune...
It does not need refrigeration if it is kept at relatively normal room temps. If you live in a very hot climate and don't have a-c, refrigeration would be wise. But normally, not needed....
Delta, What is the normal range for a 35 yo? It is true our T decreases with time but it is not normal to have low T for your age ever really. If you are low, don't suffer it, get it fixed! There are...
Valium. Good stuff....
If Westchester is better for you, try Dr. Marvin Chinitz in Mount Kisco. He is excellent....
I stopped it cold after 10 weeks with no withdrawal symptoms. No issues whatsoever....
I wouldn't worry too much, but I wouldn't ignore it either. An individuals serum creatinine levels should stay fairly constant over time. A significant lifestyle change can affect the levels...
Is your GI concerned? I had a similar situation this past winter where my serum creatinine levels were rising and although they were still well within the normal range, my GI was very concerned and...
Prednisone was nothing short of miraculous for me. It gave me total relief within hours of taking the first dose. And virtually zero negative side effects (some light acne is all). Because my GI...
Sorry about that PamSmith, my profile info was a bit outdated. I am currently on Lialda and 6mp only. I was on prednisone when I started the 6mp. Once I had tapered off the prednisone, I still needed...