tried 6mp earlier this year....i'm one of the lucky few who is allergic to it. :( i'm on entyvio as well which is for the UC, the MTX is for ITP/hypereosinophilia but doc is thinking it should help...
Anyone here on methotrexate injections for ulcerative colitis? Did you find it gave you more stomach issues or less? My stomach has really been bothering me since starting it 2 months ago (more...
my hemo & the ER docs were sure i had an infection, but the more i read about 6mp the more i think that is the problem...and most sources say to stop it immediately if you are running fevers/have...
@quincy - dr zarychanski is my hemotologist. he definitely leaves no stone unturned! i think that's whats getting so frustrating now. so many tests, and finally a diagnosis of eosinophilia, but...
had a colonoscopy in february. yesterday they ran a urine test and some blood tests. and i know i had some other blood testing earlier this year as a precautionary measure to check for certain...
i think my blood pressure was okay for the most part, when i checked i was seeing numbers like 112/78, nothing too far off from 120/80. oxygen was sitting at 95% or higher too, just my heart rate was...
i've been on 15mg of prednisone since early februrary. was fine my first two weeks on 6mp, the first blood test even showed my liver function was normal too. this exact same thing happened to me back...
i don't know if i'm flaring though? i am definitely seeing some blood (my scope in feburary showed internal hemorrhoids so don't know if its due to that) & having some abdominal pain when going, but...
i'm reaching out here because i am beyond exhausted & just don't know what to do anymore... i started 6mp 50mg about 3 weeks ago. stopped asacol about 1.5 weeks ago (i have eosinophilia so my GI...
Ah ok. I'm sitting at about 140lbs right now so going by weight that dosage makes sense....
hi all, for those of you who have been on 6mp, what was your dosage? my doctor wants me to start at 100mg which i feel is really high? although it is being used to treat 3 conditions (UC, ITP &...
i actually do already go for bloodwork on a weekly basis to monitor my platelet and eosinophil levels, and they do a liver panel too. my hematologist did say that we would continue to do this so that...
i know this is the uc forum, but thought i would give a bit of background first in case i get lucky & some of you are familiar with these other conditions... i was diagnosed with uc back in 2012....
the hematologist i'll be seeing is dr. zarychanski. heard back from the nurse today and i'll be going in for more bloodwork next week, plus 4 more days on the steroids from today & then i can stop...
i wound up at hsc. i had two IVIG infusions (i believe that's what they're called) and tomorrow will be my 6th day at 40mg of dexamethasone...am still waiting to hear back from the doc on how to...
fyi all it had nothing to do with the antibiotic....wound up being hospitalized and have been diagnosed with ITP. seems my body trying to fight off the flu so hard for a week set off my immune system...
Well looks like I'll be asking for a different antibiotic....hopefully two pills of this clavulan hasn't done too much damage....
Possible side effects on my sheet are diarrhea, nausea and vomitting, and vaginitis in women. Both doc and pharmacist know I have UC and the pharmacist recommended the probiotics....
Hi all, I've been in remission (1-3 bms a day) for over a year now. Yesterday I was prescribed the antibiotic clavulan for a chest infection. I'm two pills in and have also taken 1 Ultimate Flora...
i wonder if some sort of cream would even work for me at this point....i have had the external hemmies for 5+ years now, and they've slowly gotten worse over time. don't know if this is normal or not....
so a few months ago my family doc gave me a rectal exam & seemed very concerned with my internal & external hemorrhoids. he said they are part of whats causing me to lose muscle function/have urgency...
just wanted to let everyone know that i had a GREAT time in punta cana!!! did take some occasional imodium just to slow things down with all the fruity/slushy drinks i was having, haha. lots of great...
i take psyllium husk powder twice a day - with lunch & dinner. this is the ONLY thing i've tried since diagnosis that actually helps me have solid bm's....
ah ok! well i can definitely pack some pepto just in case. so i'll be taking with me: asacol, psyllium husk, culturelle probiotics, imodium, gravol, b12 & a box of snack bars....
i keep reading to pack pepto bismol & take a shot of it a day to prevent getting sick...but i thought it affected the way asacol worked?...
i'm thinking just the regular tablets. i don't think i'll get too nauseous, but longer flights definitely make me anxious so i'm thinking half a gravol will help calm me down/let me sleep through...
another question - are we able to take gravol with colitis/while on asacol?...
i'm thinking of picking up some culturelle to take with me - my current probiotics need to be refrigerated so i'm not sure if they'd be any good after 10+ hours in the heat on a plane. imodium would...
really? my body won't even digest the skins - they come out the way they went in & i get really bad d whenever i eat more than a few of them......
so my trip to punta cana is booked! i am leaving next week & staying on an all-inclusive resort. i'm wondering if anyone has any recommendations on avoiding travellers diarrhea? obviously drink only...
the boyfriend & i are taking a vacation in april, and panama is one of the places thats been suggested. anyone been before? forgive my ignorance, but is this one of those places where one has to be...
different foods affect everyone differently. just eat things in moderation & pay attention to what has a negative affect on your body. i've never been a big coffee drinker so no personal experience...
with DHL in my experience - i've always received the package within 5 business days, sometimes even less....
depends on the weight. last time i bought a bottle of the probiotics & 3 bottles of psyllium husk - $11 in initial shipping charges, and then DHL charged another $20 when they delivered. which they...
i was like this too for the first year after i got diagnosed! obsessively worrying & googling about it. i finally realized that it was actually making my disease worse. i forced myself to focus on...
it is just under $28 for 90 capsules. i usually select the DHL option which is...not cheap, in my opinion. but if i do a bulk order with my psyllium husk powder, its worth it. i make an order from...
quincy - i purchase the reuteri on iherb.com - they are the capsules....
just picked up a saline nasal spray & benylin cough & chest congestion - will give this a try for a few days & if there's still no improvement, i'll give in & take the antibiotics....
literally my only issue right now is the cough. sleeping just fine. no fever, no headache, don't feel stuffed up at all. it is pretty bad first thing in the morning but by lunch time eases up quite a...
fatigue is unfortunately a common issue in those who have ulcerative colitis. although for me i had blood testing done & found out my B12 levels were drastically low - started supplementing that &...
has anyone here had to take zithromax before? how did it go? i've been prescribed it for 7 days for a phlegmy cough that's been sticking around for over a month. am only on asacol right now, and i...
actually measles is one of the few vaccines that i did get! thanks mom, haha! i was on prednisone at one point, but have not been on it for almost 2 years now. only asacol now. so...sounds like i...
so, my dad is one of those anti-vaccine people & as a result i never got my shots for hep a/b/c, tetanus, etc. the boyfriend & i are planning a vacation for march and so i need to get these shots. i...
so i just had a rather disappointing appointment with my doctor this morning. 1) it looks like i have some really bad hemorrhoids. he said i'm going to have to get them banded - so what should i...
i use the "now foods" brand of psyllium husk powder. 1 tablespoon before lunch & 1 tablespoon before dinner, mixed in a glass of water....
i have used both mesalamine & steroidal enemas nightly for up to months at a time before...didn't seem to have much effect on urgency, but i will give them another go since so many people suggested...
hi all, haven't posted in a while as i've been doing really well. right now just taking asacol (2 pills twice a day - although i am seeing shells on a daily basis so i wonder if this is even helping...
i'm in the same boat as your fiancee right now. tell her to start looking for other jobs that interest her....
for me personally, salad and whole grains cause nothing but trouble. i get my veggies by cooking/steaming them & having them with some rice & chicken stir-fry style. you could try using psyllium husk...
mediclear plus by thorne research!!! i buy it online from iherb.com its a pea-based protein, as opposed to a whey protein which can cause issues for people with dairy intolerance. hypoallergenic. all...