I agree with Sherry that if you had pain killers, this could also cause constipation. I had a kidney stone a few months ago, went on pain killers and I became constipated. Constipation can be scary...
My symptoms were actually better before I started Imuran but only because I was still coming off of prednisone. After I got off it, my flare started back fully again. I started at 50mg for two weeks,...
For those of you where Imuran (or 6MP) helped you, how long was it before you started noticing improvement? I have had to go on prednisone multiple times this year for flares so my doctor started me...
Now that is funny. I wonder how many of our posts are done while we are in the bathroom....
Sorry to hear this Noelle. This disease can be very frustrating with the ups and downs. It makes it hard to determine what works and what does not. You are doing the right things. I would just...
I have never researched much on resistant starch although I have seen it mentioned many times here on HealingWell. I will research further and perhaps give it a try. I am currently taking VSL#3 and...
juststud, the only diet I have tried was the SCD diet. I stopped it after one month though as I lost too much weight on it. Lately I have been trying to eat lots of anti-inflammatory foods including...
I suffered a flare in December after almost three years of "remission." I got better after one month but still have minor inflammation (had a colonoscopy earlier this month). I also showed potential...
I am moving to Europe this summer (Slovakia). I wondered if any Healing Well members live in Europe and/or know the corresponding names over there for the following medicines that I take here in the...
I use Canasa almost every day as well (except when I am doing the enema) and wonder too why he would ask you to use them every third day if you are still seeing a little blood. I have never heard or...
Take a look at this: http://www.bendbulletin.com/apps/pbcs.dll/article?Aid=/20130728/NEWS0107/307280363/1001/NEWS01&nav_category=NEWS01 ...
I've never had more blood after taking VSL#3 personally. I would not think that only one sachet would have any effect on you yet other than possibly some bloating/gas if this is your first time...
Thanks Markian for writing this great article! It is mind blowing that such a little change can keep this from possibly going generic for a while....
I know how you feel...at least about the hemorrhoids. It was one of the most painful things I have ever had in my life. I was close to going to have surgery to get them removed. I tried warm baths,...
I've had to take loperamide before when traveling to Europe and it worked great for me. Too bad it made you worse. Some use Lomotil, which is a prescription based anti-diarrhea medicine here in the...
This article makes me so angry at the drug companies...I wonder if that was the same author that wrote on here a couple of days/weeks ago asking if we would share our experiences with her/him....
Not sure if it the same, but every once in a while I get a sharp pain near the belly button that feels like there is a string pulling at me from the inside. I have to stay doubled over for a little...
Some individuals are more sensitive to mesalamine than others. You might want to give them a try while you are taking prednisone to give them time to work. They can take a couple of weeks to a month...
I know there are a number of side effects, both short and long term, for oral steroids but they have their place. I tried many things with no luck, then went on a three month long taper of prednisone...
They start helping me immediately as well. No one told me when I first started taking them that I might flare up again when I started to reduce them and I had thought I was "cured" after taking them...
I was angry too when I first was diagnosed but you grow to "accept" it as much as that is possible. Now my wife and I joke about my poop issues. I would agree with the others that you might want to...
I agree with iPoop. The transcript from the seminar listed above is a great place to start for anyone thinking about going up to the next level medicines....
I have not tried Colostrum but I have done well with VSL#3 DS which is the prescription strength version. The therapeutic amount for the reatil version costs so much that I am grateful that my...
There are a few studies underway right now and a number of anecdotal stories that show it may help some. There are even some studies being done that might show promise of using worm therapy to help...
I tried it but I'm not sure if the enteric coating worked as I ended up burping peppermint all day. I was taking it to get rid of cramps. It is hard to say whether it helped or not as my cramping...
There was another individually on another popular UC site that was medically discharged due to Ulcerative Colitis but his case was not under control like your son's UC seems. Someone from that other...
I came here for UC. I stay to see what Somedude says....
I guess it would depend on exactly what the patent was although based on other articles I have read, I do not think the change to delzicol affects the patent. Other articles were speculating if a...
I just read the following from a financial website: "Actavis (NYSE:ACT): JPMorgan recommends adding to Actavis positions following the modest pullback over the past month. It believes that a generic...
You might still think about trying the enemas. The thought is that your oral medicine might reach the upper part of your colon easier and the enema would reach the lower portion easier. The "treat...
I would ask your doctor about both mesalamine enemas and VSL#3 DS. They both helped me when I was flaring. These can sometimes take a while to work though so you might think about starting a quick...
To quote the philospher Larry the Cable Guy, "That's funny. I don't care who you are, that's funny right there."...
Maybe the spam that was just added to the forum about buying NBA jerseys just gave us an idea. We should start our own UC basketball team and play other people with chronic diseases. Of course, our...
Of course, I've also read where people that live in the South in the US get it less too. Although I live in the South so a lot of luck that stat did me....
I know the CCFA website says UC is more common among white people of European origin and people with Jewish heritage. I wonder if anyone has ever heard of why scientists think this is the case?...
I can't answer your question about how long your flare might last as everyone is different, but I would still encourage you to keep trying the enemas (unless you are allergic to them). They can...
Oh, the dreaded "cart service" time. I feel trapped when the cart is between me and the restroom thinking will I have to jump over the cart to get to the restroom! That is when I start looking at the...
I never thought about that but that is very true. I guess it has to do with people both young and old wear glasses but most people that have hearing aids are usually older. It is easier to laugh at...
This might be an interesting article as I have yet to hear from anyone knowledgable on why Asacol HD is still safe if the regular Asacol was changed....
I was flying back from a work trip and as I was getting on the plane, a guy told the attendant that he had a medical issue where he needed to be as close to the bathroom as possible. The attendant...
My insurance covers it as well. Although I had to write them before I got a prescription for them to consider it. I guess I was the first person to ever ask for it through my insurance. My doctor...
Just because you do not have bloody stool does not necessarily mean you do not have UC, especially if you were officially diagnosed with it previously. You could just be in a partial remission. What...
I have tried it and will probably try it again at a future date. Once you get past the "ick" factor, it was not that big of a deal. I did not notice any improvement, but I only tried it a few times....
Some doctors are rethinking that strategy. Instead of the step-up therapy you described above, they suggest that it may be helpful for some patients (especially those with active UC throughout their...
If you have not tried the mesalamine enemas, I would try those first before moving on to the bigger gun medicine. My first doctor did not think that they would help and wanted to start me on a bigger...
In terms of increased risk of non-Hodgkin’s lymphoma, there is a 6 in 10,000 chance of getting cancer using Remicade. This compares to a 4 in 10,000 chance of getting cancer using only immumodulator...
SCD stands for Specific Carbohydrate Diet made famous by Elaine Gottschall who put her daughter with UC on it right before she was going to have surgery and her daughter's UC went into remission....
Diet is so individual with this disease. I find that as long as I am in remission, then food does not affect me and I eat whatever I want. When I am flaring, I stay away from coffee and limit the raw...
There are two schools of thought on using nicotine for the treatment of UC. One is that it is the nicotine that helps with UC as some studies show that nicotine patches help (...
You're right Quincy. I should have proofread my previous post as I meant to say that it can be related not that it was always related....