That thread shouldn't have been shut down....
There's an antibody test you can have done (~$200, I think?) to see if you've developed a resistance to Remicade. If you have, I'm quite certain it erases most of the likelihood of you obtaining any...
I highly recommend calling your insurance company to see what options are available for reimbursing you for expenses incurred abroad (that you have approval to get reimbursed for at home). Also, call...
I wish I had some answers for you, but I wish you all the best. Thank you for sharing what you can with us, I'm impressed that you even have the willpower and energy to log into this forum at this...
Good stuff. Pay raise? Stay honourable and being the executive of your father's estate will be fine. It's all about integrity....
Perhaps that's a mature approach. I am a more vengeful type of person, perhaps. But then, she didn't really wrong you so much in a direct sense. She's sort of all over crazy....
I'm under the impression that Humira, if effective, yields its benefits much more quickly than Imuran....
As for the Chuck-E-Cheese visit.... that's awesome. Vicarious enjoyment is fantastic. As for the vacation request, nothing is certain until a deal is made....
I don't believe the Humira has been given enough time to really take affect. It's just that in the meantime, I am fairly miserable with my condition since nothing seems to be controlling the...
After quickly looking, the ulcerative colitis forum has the most topics and the most posts when compared to all other forums. What does that tell us, if anything. I also noticed there is no off-topic...
JohnPhx and iPoop sound like tough guy. Much tougher than me, anyways. I admire that. Hope you feel better soon....
She's obviously a very sick person. Perhaps she has some form of mental illness? I sort of have a relative like that, but not nearly as bad as what HabsHockeyFan (terrible to read all that hardship...
There's always the opposite avenue to crying from sadness or frustration, there's crying from joy. Some really touching videos online are at this site called Welcome Home Blog, where soldiers...
Absolutely. I was away from here for years after feeling better. I now regret that because I think I can offer some perspective and experiences that those new to the disease looking for information...
Hello. Something similar happened to me after about two years of using Remicade. While receiving the infusion I began to feel flushed and faint. The nurse overseeing the infusion group noticed this...
I don't know too much about Humira - can you increase the dose and/or frequency before writing it off completely? If those aren't options or if they don't work, why not try Remicade before Entocort?...
I often have the desire for a group hug in these forums, especially when reading posts of people candidly sharing their sufferings. I just wish I could hug them and make their pains go away. Good...
Medications are recommended based on scientific evidence of their efficacy. The same cannot be said for people claiming they "cured" themselves by consuming psyllium husks and avoiding dairy, while...
I'm just curious about surgery, perhaps it is in my future. Fortunately, aside from a recent doubt with extreme knee pain and foot swelling which I'm quickly recovering from, I'm doing quite well...
I disagree. I also think soystud's earlier response to me was mocking conventional treatments, while metaphorically standing on the nonsensical "diet cures all" pedestal. In my view it's all Dr. Ho...
It's ridiculous to think you can or should change the pH of one's blood, considering it stays within a very narrow pH range by design. Same goes for much of the rest of our bodies. This whole pH diet...
Crying serves a biological function, I believe, and part of it is to provide the relief you've experienced. It happens to all of us. I'm not much of a crier myself, but these ordeals can be...
I think I've had that in the past, when the pains were so frequent and intense that I began to overheat from all the exhaustion, I may have has a fever for a few moments, including the teeth...
Look, we don't need to go back and forth on this. I'm simply stating my point of view that people who espouse dietary cures for UC and/or CD are either a) lying snake oil salespersons or b) deluded,...
My first time getting hit wasn't a stressful time, but I've noticed some correlation between subsequent flares and stress (the kinda stress that kills my sleep and makes me somewhat of an insomniac)....
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Anyone watching Bates Motel? I'm gonna give it a spin....
I am sure we are all very sympathetic towards your position, and even agree with you to various degrees. But your whining about these threads is something I think few of us have sympathy for. Again,...
I was just making fun of you. I don't know exactly what it is that you recommend via diet (eat this, avoid that, etc), but whatever it is, I put it in the same category as sending money to Peter...
Great news, but I'm skeptical of the Remicade being credited with your improvement condering you began using it last year. Like others have said, perhaps the Imuran is more resposnible. Also possible...
I wish I had some meaningful advice to give, but I have never experienced such a suddenness in blood being visible. For me, degeneration of health or improvement is always incremental and somewhat...
We kind of share that in common, as the delay was similar for me. I was diagnosed with UC in the summer of 2006, and here we are seven years later and my illness has sort of morphed in terms of its...
I guess people like that shouldn't go to funeral preparation or estate planning discussion forums....
In general, I would say it's worked quite well. Strangely, I went into a two-year remission without any medications or specific lifestyle changes. If I had opted for some quirky Dr. Ho or Suzanne...
Thanks for the video. I'm not sure somedude was equating "normal" with "ideal". I understood where he was coming from (I think). I didn't take his comments as in any way denigrating people who for...
Why does it bother you? Nobody is forcing you to read or participate in this thread. Additionally, I find this thread entirely relevant to this forum, and people with Crohn's disease have a lot in...
Thank you for your posts. You have nothing to apologise for with respect to being angry over all of these things. I for one didn't realise that UC had so much more research and money dedicated to it...
Thank you, I found that study that Liz posted. It seems better than I expected, very successful for patients who truly have UC and not mis-diagnosed CD....
I always like your posts. You think the way I think. Good for you. You are on the path of righteousness and enlightenment. lol[/quote] I agree with you, notsosicklygirl has a good perspective....
Good luck to you on your surgery, it's a quite a quick turnaround considering you just had your colectomy in April....
I agree with your sentiment, although I am very cynical of people who claim to have "cured" themselves by eating this, avoiding that, supplementing this, etc. I roll my eyes when I hear or read...
What was your recovery like post-surgery? If you've already gone into it in detail somewhere else I apologize, but perhaps you can do a copy-paste job for those of us who are curious about your...
Do have the option to reverse it and get a J-Pouch operation done? If so, would you opt for that? I'm also curious, what is the risk of infection? Can you go swimming (is that a stupid question?),...
I'm curious, was joint pain always associated with your UC flare ups, or did it arise later into your UC "career"? I was diagnosed with UC in 2006, and here we are in 2013 and this is my first time...
Is this joint pain of yours something commonly associated with your UC flare ups? I was diagnosed with UC in 2006, and this is the first time I've experienced this pain (which became severe at its...
Hi folks. I saw a young and new GP yesterday (looks like he's in his thirties) for the first time (my previous family doctor retired). He gave me a prescription for prednisone (the classic 40 mg/day...
Are you able to get the J-Pouch procedure done? If so, are you interested in it?...
"Waiting for a cure" is certainly the most irresponsible strategy I've ever heard of to deal with UC....
Can you get a "reversal"? Can you get a J-Pouch operation done?...
As everyone else has already said, it's a case of misdiagnosis, not some sort of disease transition. Imagine having both Crohn's disease and UC, though. There must be people out there with both....