Hi guys! I've been in a flare since May of this year after Remicade stopped working. We tried Humira and I'm on Simponi now with Immuran and have not seen any improvement. The only time I've felt...
I took a tylenol today for my head ache/muscle ache and I take a daily allergy pill so I should be good....
I was on Immuran when I started Remicade and then weened off of it. After 18 months it stopped working. I had the Promethus test done and I was full of antibodies and nothing would make it work...
I just had my loading dose of Simponi today. I was on Remicade for 18 months which worked great until it stopped. Tried Remicade for 6 months which did not work at all. Anybody have any luck with it...
I don't feel any guilt, but just be careful with the memory loss. It hit me hard....
So weird. I only get predisone munchies on low doses. Just killed two bagels and some frozen yogurt....
It's amazing what an anti nausea and 2 tylenol will do for you. I feel better right now. That and a jim beam and coke... dinner tonight is rice and chicken. excitement!...
I love sushi and have had zero issues with it. The only foods I have problems with are Curry and Chili. Then again, my Curry and Chili gave me problems when I was in remission too....
what are the other techniques? I've been tapering by 1.25mgs every 7 days. down to 6.25 right now and I feel nauseaus, weak, tired, crampy, and moody. I feel really uneasy. Also, I used to be...
I've been on it for about 3 months after taking Remicade for 18 months. It has not worked for me at all. Switching over to Simponi soon....
I was in complete remission using Remicade which stopped working one day due to the fact that I built up antibodies to the medication. This was proven using the Prometheus test. Food did not trigger...
Dr-A, I didn't mean to offend you. You sound like you are focusing on what you are supposed to do, help people with their back pain. This particular Chiro that I know feels that can cure everything,...
Yes! Even a hard fart hurts my butt...
I've been tapering off of Predisone for the past 6 months going from 60mgs down to 6.25mg. I am feeling like complete crap right now. I have extreme foot cramps, nausea, and a general feeling of...
I've tried many times. I've cut gluten out for a month and have done the fodmap diet as well. Nothing works except for serious meds. I'm about to start simponi and am already on Humira along with 6mp...
My Chiropractor neighbor, who believes that he is better educated than my GI, keeps on telling me that my problems are related to my diet and other health issues. He keeps on pushing me to take...
Seriously! I don't eat that much yet every day I have 15 to 20 BMs during a flare and I don't know where it all comes from. It's like there a portal to a shit dimension in my rectum that has been...
When Remicade was working, I could eat anything. After 18 months it stopped working and I've been flaring since mid-May. I've tried Humira with out any results and am about to start to start Simponi....
I've been in a flare since mid-may and nothing has helped. I've had UC for some time and Remicade put me into remission but I built up antibodies to it. Since then, I've been on Pred and Humira with...
I've been on pred for 5 months and am tapering from 40 and down to 15(2.5 a week) plus weekly humira shots and still in a flare. Next week is simpoli...
When I got UC I was 235 of fat and muscle. After UC I was 185 of all muscle. After an ongoing 5 month flare I am 170 and not very muscular. Predisone has destroyed my body. All hair, pimples, and...
Moved onto weekly humira. If after 6 weeks it doesn't work going onto immoran and simpoli. Doing a pred cut right now and am miserable....
Tomorrow I am driving 4 hours to Wake Forest to get a second opinion on my normal GI's orders. Remicade has failed me, Humira's not working (6 weeks+), and I'm pred dependent (12 weeks now and I...
THe blood and mucus are less when I don't drink. Also depends on what I drink. Beer is a no go for sure! As is Tequila. Wine seems ok as does whiskey....
I'm a pretty heavy drinker and have been for the past 20 years. I don't get smashed, but I put down 3 drinks a night without a problem. I've had diagnosed UC for the past 3 years and went into...
Remicade stopped working for me about 12 weeks ago and we've tried Humira with very little results. The only thing that helps is Predisone. My doctor is going to order Simponi for me. Anybody have...
This pred cut is killing me. No real blood or mucus but I still have diarhea constantly and urgency. Who would have thought going from 30mg to 25mg would cause things to backward so fast....
Digging my own grave here guys! Ate a ton of chocolate chip cookies last night, a bottle of red wine, and dinner was almost all veggie based. Paying for it big time today but it's not flare poop...
I'm a head hunter and have worked from home the past 7 years. I don't think I could work in an office even in remission because I still go to the bathroom 3-5 times a day....
Yeah, I find myself having to force myself to finish my meals. A can of vegetable barley soup which shouldn't be too much food for anybody was too much today. Just want this to go totally into...
I really think it had to be the black beans I ate for dinner the past two nights. I make a home made cuban black bean dish with chirzo, black beans, onions, green peppers cooked for hours with...
I had an undiagnosed gut infection and Cipro and Flagyl made a world of difference. It took about 10 days and it cleared up 90% of my issues. I'm still in a small flare but no where near the 30bms...
This morning I woke up and had mucus again out of no where. No blood but I feel like I have to go when I don't and there is a little burning. This sucks. Hopefully it was just something I ate last...
Humira takes some time to build up in your system. For me it took 3 shots before I felt any relief and even now I still have some D (also tapering off of Pred). Uceris also takes a while to build up....
Argh. Cutting down to 30mg pred and a small touch of blood and mucus. Hope it's just a blip on the radar....
Almost there guys! Little D last night and a small BM this morning but feeling like a human being. Hope this keeps up!!...
Update! 1 bm today only. Finished my flagy and cipro and still cutting pred by 5 a week (at 35). Added asacol Hd 6 pills with the humira and an antidepressant. Just a little pain in the rectum. No...
Today wasn't too bad. Went maybe 3 or 4 times with no blood or mucus. I definetly have an IBS issue as stress sets off the bm. Shame I can't have a drink to unwind but taking flagyl....
ended up having a total of 3 BMs yesterday which is great for me. All lose but no blood or mucus. Woke up this morning and I've had 2 so far, one blood and mucus, which is normal for me at any point...
That's the thing, I don't have "trigger" foods. I can eat almost nothing an poop all day long or I can eat curry and poop all day long (it just burns more). I've never stopped drinking coffee even...
This morning I woke up, had a lose BM, and haven't pooped since. I've been going 10 plus times a day for 10 weeks, have lost tons of weight, feeling like crap and then today is normal. I had my third...
I'm done. I can't take it anymore. 10 weeks in a flare, Pred is making me mental, humira isn't working, and I want my life back. My wife and son are gone for a week on vacation and I can't go because...
This sucks! Felt great today still had d with urgency (5-6 times vs the usual 10 by now) and decided to have some pot roast, carrots, and potatoes. Huge mistake. Feel like shit now....
nitroglycerin paste and butt paste. You want something stronger than a cup of coffee? Shove up some nitro up your butt....
I spoke with her and I think she's ok now. My wife's not a flower girl. However, I did order her some solar spot lights for her garden and a piece of furniture. On a side note, feeling better today...
I've been on and off of Pred several times. The worse side effect I have had is joint tenderness, chubby cheeks and chubby lower belly no matter how thin I got, and some acne. However, once I taper...
I'm in the same boat. Since this flare started 8 weeks ago, I've lost 22lbs. I'm constantly nauseus and I don't want to eat at all. I force myself to have meals. Protien shakes are a life saver for...
Yeah, my wife and son are away for a week. Going to try and nothing but get my job done and rest. Damn anal fissure sucks though....
will do. Just on a note, I think my wife has had it and I feel bad for her. I don't think she understands how much more this disease is than just having to go to the bathroom, especially when you...
sorry! I have not tried Cort Enemas. I have Cort suppositories though and I did not react well to them. Increased the D....